Category Archives for "My Chronic Life"

Crops In Pots, Indoor Gardening While Housebound

3 pots with seedling vegetables growing in them. Title reads Growing crops in pots, follow my gardening adventure growing vegetables indoors

​This month my sister and I are taking on a new project: crops in pots! I have always been interested in gardening and have always had a dream of being self-sufficient, living off the land, ​so now we are going to have a go at growing some edibles in pots at home! 

In this series, I will be documenting our progress and sharing any information or tips I discover. I hope you will find this helpful or interesting. Gardening indoors while severely ill, ​I'm excited to see how it turns out, and you?

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Getting Organised For The Year Ahead – Personal Update, Jan 2020

A photo of a bookshelf with books and greeting cards. Title reads: Getting organised for the year ahead.

​I am so excited for the year that lies ahead; something about new beginnings just really ​makes me happy. For me, 2019 was quite a difficult year health wise. It started off really well and then I think I overdid things in May with my very ambitious ME awareness campaigns and it totally wiped me out for the rest of the year. So I will try hard not to make the same mistake again this year.

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Supplements To Manage Chronic Fatigue And Pain

Pills lying on a table top. Title reads: Supplements to manage chronic fatigue and pain. Find out which supplements have helped me the most

I am often asked about the benefits of using supplements for Myalgic Encephalomyelitis or Chronic Fatigue Syndrome. People usually want to know which supplements I use for chronic pain or fatigue so they can have a better idea about where to start with their own supplement regime. Unfortunately, like everything else about this illness, we all respond differently, so what helps me might not help you the same way. 

Herein lies the beauty of sharing our experiences though - some of the things that are helping me the most are the things I was most sceptical about despite being recommended by others who had claimed success using them. This has taught me that even if I am sceptical, it is always worth trying something for a while if it might improve my quality of life. I hope this post will do that for you too.

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Exploring The Garden And Our First Family BBQ In Years

Char outside in the garden wearing a sunhat and sunglasses, title reads: exploring the garden and our first BBQ in years. Personal update.

​Last year, at the end of Summer, we moved into this house that has a lovely little garden. It was the first time in years that I have had a private garden to explore and relax in - quite a treat when you're housebound and severely ill!

Last year we didn't do much in the garden, the family focused ​their time and energy on the inside of the house and I focused on recovering from the move and the disability assessment that came soon after it. This year was different - we have really enjoyed the garden this Summer!

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Creating A Retreat Away From My Own Bedroom

A beautiful red Lily. Title reads: Creating a retreat away from my own bedroom, personal update.

Look at ​that beautiful Lily! Everyday there seems to be something new in the garden. It's constantly changing. I try to take a walk through the house daily, so I can look out the windows and see the different parts of our garden, it doesn't always happen, but it's a goal. ​And I've been careful to stay out of direct sunlight, shading my eyes better this week, after my sun-induced crash ​recently.

Looking Back On The Past Week

I've spent much of this week in the dark after some ​unforseen circumstances at the end of last ​week caused a flare. Ma brought ​some beautiful flowers in ​​while I was not doing so well. Having ​fresh flowers ​from our own garden ​in my room is such a treat, especially when ​I can't get out of the house regularly. I did however finally get out into the garden later in the week. So much colour, such a joy!

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