Category Archives for "My Chronic Life"

Exploring The Garden And Our First Family BBQ In Years

Char outside in the garden wearing a sunhat and sunglasses, title reads: exploring the garden and our first BBQ in years. Personal update.

​Last year, at the end of Summer, we moved into this house that has a lovely little garden. It was the first time in years that I have had a private garden to explore and relax in - quite a treat when you're housebound and severely ill!

Last year we didn't do much in the garden, the family focused ​their time and energy on the inside of the house and I focused on recovering from the move and the disability assessment that came soon after it. This year was different - we have really enjoyed the garden this Summer!

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Creating A Retreat Away From My Own Bedroom

A beautiful red Lily. Title reads: Creating a retreat away from my own bedroom, personal update.

Look at ​that beautiful Lily! Everyday there seems to be something new in the garden. It's constantly changing. I try to take a walk through the house daily, so I can look out the windows and see the different parts of our garden, it doesn't always happen, but it's a goal. ​And I've been careful to stay out of direct sunlight, shading my eyes better this week, after my sun-induced crash ​recently.

Looking Back On The Past Week

I've spent much of this week in the dark after some ​unforseen circumstances at the end of last ​week caused a flare. Ma brought ​some beautiful flowers in ​​while I was not doing so well. Having ​fresh flowers ​from our own garden ​in my room is such a treat, especially when ​I can't get out of the house regularly. I did however finally get out into the garden later in the week. So much colour, such a joy!

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My Chronic Illness Story: How I Became Housebound With Severe M.E.

Title reads My chronic illness Story, How it all started and how you can help, by Chronically Hopeful, Picture of Char lying in bed under blankets, shes in an ME flare wearing sunglasses and headphones

​May is ME Awareness Month and once again I am participating in the ​virtual campaigns online to help raise awareness of this life-destroying illness called Myalgic Encephalomyelitis. Today I'm sharing my story. How did I become so terribly ill and housebound? When did it happen? And how long did I have to wait for a diagnosis? Here's my ME story:

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Health And Fitness: A Week Before I Fell Ill With Severe Chronic Illness

Title reads Health and fitness the week I fell ill with severe ME. Photo of Char and friends walking in a park wearing pink fluffy bunny ears and carrying green balloons. By Chronically Hopeful

​Ironically my life was super busy and active during the weeks and months ​before the onset of what lead to my Chronic Fatigue Syndrome diagnosis. There seems to be the general belief that we are tired or lazy or that we have some sort of unhealthy aversion or fear of exercise, but nothing could be further from the truth!

As we move towards ME Awareness Month (May), ​I wanted to share some of my health and fitness memories from the ​week before I fell ill. I hope that this will help to dispell the idea that we are lazy and afraid of exercise and help people understand that the opposite is actually true. Now I know that ​healthy eating and exercise simply doesn't cure everything.

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How Can I Be Physically Disabled And Not Depressed?

A girl sitting on her bed holding a cup of tea, resting her head on her knees. Title reads, I'm okay, seriously. How can I be physically disabled and not depressed? By Chronically hopeful

I'd like to speak about my own mental health. I feel like some people misunderstand my condition, so I wanted to address the matter directly. Yes, I have a severely debilitating illness. Yes, I practically live in bed. No, I cannot go out and I cannot have visitors coming over without paying for it​, but I am okay. Seriously.

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