Last year, at the end of Summer, we moved into this house that has a lovely little garden. It was the first time in years that I have had a private garden to explore and relax in - quite a treat when you're housebound and severely ill!
Last year we didn't do much in the garden, the family focused their time and energy on the inside of the house and I focused on recovering from the move and the disability assessment that came soon after it. This year was different - we have really enjoyed the garden this Summer!
Look at that beautiful Lily! Everyday there seems to be something new in the garden. It's constantly changing. I try to take a walk through the house daily, so I can look out the windows and see the different parts of our garden, it doesn't always happen, but it's a goal. And I've been careful to stay out of direct sunlight, shading my eyes better this week, after my sun-induced crash recently.
I've spent much of this week in the dark after some unforseen circumstances at the end of last week caused a flare. Ma brought some beautiful flowers in while I was not doing so well. Having fresh flowers from our own garden in my room is such a treat, especially when I can't get out of the house regularly. I did however finally get out into the garden later in the week. So much colour, such a joy!
May is ME Awareness Month and once again I am participating in the virtual campaigns online to help raise awareness of this life-destroying illness called Myalgic Encephalomyelitis. Today I'm sharing my story. How did I become so terribly ill and housebound? When did it happen? And how long did I have to wait for a diagnosis? Here's my ME story:
Ironically my life was super busy and active during the weeks and months before the onset of what lead to my Chronic Fatigue Syndrome diagnosis. There seems to be the general belief that we are tired or lazy or that we have some sort of unhealthy aversion or fear of exercise, but nothing could be further from the truth!
As we move towards ME Awareness Month (May), I wanted to share some of my health and fitness memories from the week before I fell ill. I hope that this will help to dispell the idea that we are lazy and afraid of exercise and help people understand that the opposite is actually true. Now I know that healthy eating and exercise simply doesn't cure everything.
I'd like to speak about my own mental health. I feel like some people misunderstand my condition, so I wanted to address the matter directly. Yes, I have a severely debilitating illness. Yes, I practically live in bed. No, I cannot go out and I cannot have visitors coming over without paying for it, but I am okay. Seriously.