Category Archives for "My ME/CFS Journey"

My First Outing in 5 Months

First outing in 5 months BLOG

I am so happy to have visited the beautiful Lake District this holiday! As anybody with a chronic illness can tell you, holidays are a stressful time that we often dread. With many more people around, an increase in noise, activity and an abundant selection of unhealthy food choices, it is inevitable that we will experience an increase in unpleasant symptoms and will at some point need to isolate ourselves in order to rest and recover.

I am fortunate to have a very considerate and understanding family who keep noise levels low, TV off most of the time and serve me like royalty so that I don’t have to exert the little energy I have. It is frustrating when you want to join in and help others, but are bound by your condition to sit still and rest for much of your day.

Continue reading

Share this post:

December 2017 Chronic Voice Blog Link-up

Blog Link-up Dec

As this year draws to an end, I have decided to start something new here on the blog.  One of my favourite parts of blogging is taking part in link-ups or blog parties.

If you’ve never heard of them, they are basically the virtual equivalent of a meet-up in a coffee shop with other bloggers online. Usually hosted by one or more bloggers, it is a collection of links, which are really invitations, to come visit other blogs who all have something in common; it could be a hobby, the focus or niche of their blogs, or the fact that they are parents that connects these blogs.

It’s a great way to find new blogs to follow and make new connections with other bloggers as well as possibly gaining a few new readers yourself.  There are usually questions, prompts or a theme to help guide the participants.

The link-up or blog party is usually run on a regularly recurring basis, either every week or month and sometimes there will even be seasonal ones! The prompts for this month’s one aimed at bloggers with chronic illness are:

  1. Recovering
  2. Shopping
  3. Enjoying
  4. Reminiscing
  5. Preparing

Continue reading

Share this post:

Coping with Christmas 2017

Christmas 2017 BLOG

One thing that can really cause a lot of stress for people with Chronic illness is coping with Christmas and all that it entails. For us, Christmas has changed so much over the years. From huge family get-togethers, to multinational bring-and-share gatherings of friends, to small meals with just my sister and I in my bedroom, to every combination in between! I think it’s safe to say that we don’t really have a typical Christmas tradition in our family.

This year we had a lovely quiet day at home, just the 4 of us. I was doing okay despite having had a bath the night before, I actually managed to spend most of Christmas upright with my family in the living room!

This post will be a recount of our celebration, but will also include tips on how I coped with the holiday chaos.Continue reading

Share this post:

Being declared unfit for work

The day I lost my job BLOG

I love Facebook memories. Each day you wake up to find a lovely look back at how much things have changed over the past year. Some people find this depressing or sad, but I love looking back. I don’t find it sad, I find it interesting and I enjoy being reminded of all I’ve made it through and how far I’ve come.

Even if I am still very ill and inactive, much has changed through the years, but it’s only with these reminders that I remember what I’ve gone through, what I’ve tried, what has worked and what hasn’t. It’s a great way to re-evaluate and keep track of things.Continue reading

Share this post:

Shaking and trembling with ME/CFS

Shaking and Trembling with MECFS BLOG

I was lying in the bath relaxing last night when I felt the shakes coming on... This is what I get for walking to the bathroom and getting undressed. I started feeling a bit of the internal tremors at this point, I imagined it might come to the shakes, and then as I lay in the tub to rest, before washing, they suddenly started up. (see the video clip below)

This is just the start, it then takes over my whole body and that's when holding my phone, or anything else for that matter, becomes very hard.

Continue reading
Share this post:
>