Category Archives for "My Chronic Life"

Chronic Illness: Making Simple Errands Seem Like Mountains

When simple errands seem like mountains, BLOG

When unforeseen problems force me to go out despite severe ME/cfs, things can get pretty rough.

I had to go out today, needed to send off some paperwork, but my printer ran out of ink again - just changed it about two weeks ago! I needed to print off a load of sheets, so I had to take a bus to get that done at one place, then off on another bus to find a post office to send it.

By the time I got to post office my legs were not working properly anymore, it was like I was wading through lead or mercury, let's just say Nutella (have to keep things positive!). I had shooting pains all over the place, so was reduced to waddling at snails pace (seriously) at one point I thought I wouldn't make it across the road, but the bus driver was patient and waited for me to get safely out of his/her way.

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2015 Invisible Illness Awareness Week, 6 Months Into ME/CFS

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It's Invisible Illness Awareness Week and this will be the first time I am participating in an online awareness campaign of this kind. Today marks the end of six months since I got the viral infection that changed my life. That gloriously sunny day in Italy on the first of April. It all happened so quickly and unexpectedly, I was out cycling in the countryside one minute and in bed the next. My body reached a point of weakness and exhaustion that I'd never known before and nothing has been the same since. 

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My Assessment And Diagnosis At The Chronic Fatigue Clinic

I attended my first appointment with the Chronic Fatigue Clinic today. I finally have an official diagnosis of Chronic Fatigue Syndrome (also known as Myalgic Encephalomyelitis). At last!

I was referred to the CFS clinic by my doctor about 5 months ago, but the waiting lists are long. I've been searching for help online in the meantime and just doing what I can to manage alone.

The clinic is about 45 minutes away and requires a couple of changeovers by bus, so a dear friend travelled across the city to accompany me. 

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