Category Archives for "My Chronic Life"

My Summer Survival Kit & Top Tips To Beat The Heat. Spoonie Gift Guide, Part 4

A pink donut tube floating in a swimming pool. Title reads, Summer survival kit and Tips to beat the heat.

Summer can be a really difficult time for people with chronic illness. Regulating body temperature is a common problem. Add in a rare summer heat wave and you have a recipe for horrific flares including utter exhaustion, weakness, headaches and so much discomfort and sweating!

If you have a chronically ill friend you'd like to bless or help out this summer, I am sure they would be so very grateful. I'm really excited to share these great items I've been using this summer as well as my top tips for keeping cool if you don't have air conditioning and can't leave your house.

I hope these tips will be beneficial to you or somebody you love.

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Reassessing My Condition, Setting Realistic Goals

Time to reassess my condition ME cfs, ChronicallyHopeful

It's time for another personal update. Time to reassess and set realistic goals. This month has been so much harder than I anticipated. Somehow I imagined that summer would bring better health and more energy along with sunnier days and warmer temperatures, but it hasn't really. I have spent so much time in bed!

Despite this, there have been some exciting things happening here. Exciting for me anyway, not sure anybody else would define it as such! Haha... 

  • I got new glasses and prescription sunglasses (or was that in May?)
  • I got back into painting after a month off (slowly but surely...)
  • I made a few crafty things while in bed, to brighten my room (will show off soon!)
  • My parents bought us a bunch more mini cacti which I love! (see photos below)

There are many little things that have brought a smile to my heart even though I have been quite weak and flaring lately. It's important to focus on and cherish those little blessings that we so often overlook in the chaos of everyday life. Cultivating an attitude of gratitude. It really makes things easier to handle even if it will never cure our ills or heal our pain, it can certainly make life more pleasant!

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Baptism: Celebrating My Rebirth-day

Celebrating My Rebirth-day BLOG

April is a very special month for me. Many of my great life changes seem to have happened in April. This particular celebration is very special to me: on 7 April 2012 I was baptised in the sea at Brighton beach in the UK! 

I was 30 years old at the time. Baptism was something I had been thinking about doing for years, but I never really understood what living a life in Christ really meant and how baptism fit into it all, so I kept putting it off. In 2012 everything changed and I finally understood what Jesus' sacrifice meant for me.

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Update: When Intention, Creativity and Chronic Illness Collide

When intention, creativity and chronic illness collide, BLOG

This month has been quite productive! I can't believe it's almost gone already. I'm once again taking part in this thought-provoking monthly link-up with Sheryl from A Chronic Voice. I love the prompts she comes up with each month - they really force me to consider things I might not otherwise think about and perhaps, in a way, that helps to keep me focused and accountable too. This month's prompts are:

  1. Adapting - to intentional rest and fasting
  2. Practicing - watercolour blending
  3. Realising - it's hard to stick to a schedule
  4. Celebrating - a year since my parents moved to the UK
  5. Inviting - other chronic illness warriors to share their story
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