Category Archives for "Personal Updates"

Update: When Intention, Creativity and Chronic Illness Collide

When intention, creativity and chronic illness collide, BLOG

This month has been quite productive! I can't believe it's almost gone already. I'm once again taking part in this thought-provoking monthly link-up with Sheryl from A Chronic Voice. I love the prompts she comes up with each month - they really force me to consider things I might not otherwise think about and perhaps, in a way, that helps to keep me focused and accountable too. This month's prompts are:

  1. Adapting - to intentional rest and fasting
  2. Practicing - watercolour blending
  3. Realising - it's hard to stick to a schedule
  4. Celebrating - a year since my parents moved to the UK
  5. Inviting - other chronic illness warriors to share their story
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Imagine… A Day in The Life of ME

A messy bed. Title reads: Imagine... a day in the life of M.E. Have you ever wondered what chronically ill people do all day?

It might surprise you how often people with chronic illness are asked what they do with all the free time they have at home. I think many healthy people have no idea how difficult it is to deal with unrelenting symptoms on a daily basis. I hope to shed some light on this by sharing with you what a day in the life of Severe ME is like.

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Reflecting, Aiming, Expanding, Focusing, Refreshing

Jan 2018 Reflecting Aiming Expanding Focusing Refreshing BLOG

I'm so happy to finally be taking part in A Chronic Voice's monthly link-up! I have been silently following along from the shadows for months, then last month I finally wrote the post, but of course I waited till the very last day and actually missed the deadline by 4 hours because Sheryl works on Singapore time. 

This time I'm doing a bit better, I am writing this post with 6 days to spare. Wow, I must say I am impressed with myself. I am trying hard to get into a good and productive as can be routine, but before I delve into all that, here are this month's prompts:

  1. Reflecting (on the year that's passed)
  2. Aiming (to get out more)
  3. Expanding (my social media presence)
  4. Focusing (on making more art)
  5. Refreshing (my soul)
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My First Outing in 5 Months

First outing in 5 months BLOG

I am so happy to have visited the beautiful Lake District this holiday! As anybody with a chronic illness can tell you, holidays are a stressful time that we often dread. With many more people around, an increase in noise, activity and an abundant selection of unhealthy food choices, it is inevitable that we will experience an increase in unpleasant symptoms and will at some point need to isolate ourselves in order to rest and recover.

I am fortunate to have a very considerate and understanding family who keep noise levels low, TV off most of the time and serve me like royalty so that I don’t have to exert the little energy I have. It is frustrating when you want to join in and help others, but are bound by your condition to sit still and rest for much of your day.

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