Category Archives for "Personal Updates"

Chronic Illness: Making Simple Errands Overwhelming

Autumn leaves on a tree. Title reads: When simple errands become overwhelming. Personal Update.

When unforeseen problems force me to go out despite severe ME/cfs, ​simple errands can become overwhelming very quickly. I had to go out today, needed to send off some paperwork, but my printer ran out of ink, again​! I needed to print off a load of sheets, so I had to take a bus to get that done at one place, then off on another bus to find a post office to send it.

By the time I got to the post office, my legs were not working properly anymore. It was like I was wading through lead or mercury, let's just say Nutella, have to keep things positive!.

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My First 6 Months Of ME/CFS: The Best And Worst Months Of My Life

Yellow roses on the right, Title on the left reads: My first 6 months housebound with MEcfs.

Today marks the end of six months since I got the viral infection that changed my life. That gloriously sunny day in Italy on the first of April 2015. It all happened so quickly and unexpectedly, I was out cycling in the countryside one minute and in bed the next. My body reached a point of weakness and exhaustion that I'd never known before and nothing has been the same since. 

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My Assessment And Diagnosis At The Chronic Fatigue Clinic

Clouds in a blue sky, Title reads: Assessment and diagnosis at the chronic fatigue clinic, an update on my ME/cfs journey.

I attended my first appointment with the Chronic Fatigue Clinic today. I finally have an official diagnosis of Chronic Fatigue Syndrome (also known as Myalgic Encephalomyelitis). At last!

I was referred to the CFS clinic by my doctor about 5 months ago, but the waiting lists are long. I've been searching for help online in the meantime and just doing what I can to manage alone.

The clinic is about 45 minutes away and requires a couple of changeovers by bus, so a dear friend travelled across the city to accompany me. 

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The Randomness Of My Post Viral Symptoms

A bouquet of yellow roses in a vase. Title Reads: The randomness of my symptoms, a personal update

This week I'd say my main issue has been pain. I'd wake up in pain, in the night, and in the morning. I'll have aches all day, toothache, headaches, migraines, stabbing pain, hip pains, light sensitivity pain... All sorts. I'd still have a bunch of other symptoms too, but overall I'd say it's been a relatively good week anyway.

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