A Community of ME/CFS Bloggers

ME Directory, Join on Facebook BLOG

When I was first diagnosed with ME/CFS, I felt lost. Chronic Fatigue Syndrome was a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by!

For this reason I have created some groups on social media where bloggers, vloggers and other content creators with ME/cfs (and their carers) can share their posts to help support the ME/cfs community better.

My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support and resources available to them. 

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The groups are not just limited to blogs, but also YouTube videos, Instagram entries, tweets and Facebook posts by people with ME/cfs.

I know that some people with ME cannot type and prefer audio clips. Many cannot manage more than one social media platform at a time either and prefer to stick to something simpler like IG or Twitter.

I'd like to have all content, from wherever, shared to these groups so that people with ME, once diagnosed and searching for information, can find people who understand them - a collection of resources by people who know what they are going through.

If you know of any ME/cfs bloggers or vloggers, or any people with ME who post interesting or helpful posts on their social media profiles, please share this post with them or leave their link in the comments below and I will invite them.

Lets help the ME community to unite and support each other. Let us no longer be single voices shouting to the wind, but a strong community who can be easily found and heard. I really believe we are stronger together and I'd hate for newly diagnosed people to feel lost and alone when there are so many of us out there trying to help them.

The ME Directory Facebook Group

There is now a lovely Facebook group that content creators and readers can join. The group is public, so even those who are not members or not yet open about their condition on social media can still access everything that is shared.

People can share their blog posts daily, from their blog or from their blog's Facebook page so that readers can find their pages too. The same goes for YouTubers and Instagrammers alike! 

If you'd like to be a part of this ME/cfs community, come join the ME Directory group at facebook.com/groups/MEdirectory

The ME Directory on Google+

I have also created a community on Google+ where ME/cfs patients and their carers can share their content. Click here to join!

ME Bloggers Group Board on Pinterest

Finally, there is a Pinterest group board for ME bloggers! Feel free to pin your posts directly onto this board. 

If you'd like to be added as a contributor, follow me on Pinterest and send me a message asking to be added.

You can also leave your Pinterest link or username below in the comments and I'll add you. You must follow this board to be added as a contributor.

You can find me on Pinterest at Chronically Hopeful and the ME Bloggers group board is here if you'd like to follow.

ME Directory, Join on Facebook PIN

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Exciting Times!

I am so excited about this new platform to share experiences and support each other on this slow and patient journey to recovery.

I have had a hard time finding ME specific content created by people with ME and I think having them all in one place would be very helpful to patients, specially those who are suffering with cognitive issues that make navigating the internet that much harder. 

Also, by sharing our experiences we can show newly diagnosed people that this doesn't have to be a life sentence. Some people recover, some still work, some start their own business or do beautiful creative things at home. I'd like this to be a place where we educate and give hope. 

See you in the ME Directory group!

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  • Hi Charlene,

    I’m a fellow keto ME/CFSer and just found your lovely invitation and great idea on chronic illness bloggers. It’s good to meet you!

    I’m following you on Pinterest (I’m “chrillog”), have sent you a message on FB 🙂 and bookmarked your Google page.

    I’m a former family doctor with me/cfs x 20 years now and improving.

    I blog mostly about the science and research linking subtle and overt types of adverse life events with risk for chronic illness of all kinds, including but not limited to me/cfs. It’s so hard to do a lot of research when we have a disease for which no diagnostic tests yet exist, although many good things are arising.

    As a result, I write about research in many other diseases such as type 1 diabetes (the autoimmune form of diabetes) to show the science, which is similar for many diseases, including my version of me/cfs.

    Research is explaining the interaction between life events, our developing nervous and immune systems and other organs, and how they change the way our genes function to influence our health. It’s not psychological, which is helpful to know! That’s my focus, along with sharing the new tools this info gives us.

    If you’re not familiar with Cort Johnson of the ME/CFS blog called Health Rising, it provides a lot on all the latest studies, has a very engaged community and is a great one to subscribe to.

    It’s lovely to meet a new colleague and fellow journeyer!

    Veronique

    • Chronically Hopeful says:

      Hi Veronique, I am so glad to have you on board!

      Thank you for sharing your experience and knowledge – I think it is so important for us to speak up and stand together to raise awareness and support each other.

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