A Community of ME/CFS Bloggers
When I was first diagnosed with ME/CFS, I felt lost. Chronic Fatigue Syndrome was a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by!
For this reason I have created some groups on social media where bloggers, vloggers and other content creators with ME/cfs (and their carers) can share their posts to help support the ME/cfs community better.
My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support and resources available to them.
The groups are not just limited to blogs, but also YouTube videos, Instagram entries, tweets and Facebook posts by people with ME/cfs.
I know that some people with ME cannot type and prefer audio clips. Many cannot manage more than one social media platform at a time either and prefer to stick to something simpler like IG or Twitter.
I'd like to have all content, from wherever, shared to these groups so that people with ME, once diagnosed and searching for information, can find people who understand them - a collection of resources by people who know what they are going through.
If you know of any ME/cfs bloggers or vloggers, or any people with ME who post interesting or helpful posts on their social media profiles, please share this post with them or leave their link in the comments below and I will invite them.
Lets help the ME community to unite and support each other. Let us no longer be single voices shouting to the wind, but a strong community who can be easily found and heard. I really believe we are stronger together and I'd hate for newly diagnosed people to feel lost and alone when there are so many of us out there trying to help them.
The ME Directory Facebook Group
There is now a lovely Facebook group that content creators and readers can join. The group is public, so even those who are not members or not yet open about their condition on social media can still access everything that is shared.
People can share their blog posts daily, from their blog or from their blog's Facebook page so that readers can find their pages too. The same goes for YouTubers and Instagrammers alike!
If you'd like to be a part of this ME/cfs community, come join the ME Directory group at facebook.com/groups/MEdirectory
The ME Directory on Google+
I have also created a community on Google+ where ME/cfs patients and their carers can share their content. Click here to join!
ME Bloggers Group Board on Pinterest
Finally, there is a Pinterest group board for ME bloggers! Feel free to pin your posts directly onto this board.
If you'd like to be added as a contributor, follow me on Pinterest and send me a message asking to be added.
You can also leave your Pinterest link or username below in the comments and I'll add you. You must follow this board to be added as a contributor.
I am so excited about this new platform to share experiences and support each other on this slow and patient journey to recovery.
I have had a hard time finding ME specific content created by people with ME and I think having them all in one place would be very helpful to patients, specially those who are suffering with cognitive issues that make navigating the internet that much harder.
Also, by sharing our experiences we can show newly diagnosed people that this doesn't have to be a life sentence. Some people recover, some still work, some start their own business or do beautiful creative things at home. I'd like this to be a place where we educate and give hope.