Frequently Asked Questions About Myalgic Encephalomyelitis

Blue emojis with quizzical look on their faces. Title reads: Frequently asked questions about M.E. Elaborating on terminology and topics I commonly refer to.

​As this community grows I get more and more questions about certain words or acronyms I use in my writing and graphics, so I thought I would create a page to answer some of the most frequently asked questions about M.E.

I hope this will be helpful to you, please share any of the images from this page. It would help us raise awareness and eliminate stigma if more people understood this condition.


​Frequently Asked Questions About M.E.

This page won't only contain ​answers directly concerning M.E. but will also contain a selection of terminologies and subjects commonly ​referred to in our community​. Get in touch if you have any suggestions or questions.

M.E. | CFS | PVFS | PEM/PENE | Crash | CBT | GET | LDN

What is M.E?

FAQ about M.E. What is M.E?

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Myalgic Encephalomyelitis is a devastating neuroimmune disease which affects all body systems including the neurological, digestive, muscular, immune, endocrine and cardiovasscular systems.

25% of patients are housebound or bedridden. The most severe are unable to tolerate light or sounds, unable to speak and are tube fed. Only about 5% recover.

​What is CFS?

FAQ about M.E. What is CFS?

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Chronic Fatigue Syndrome is the name given to a collection of debilitating symptoms, lasting more than 6 months, when no other cause can be found.

It is diagnosed by process of elimination. Not to be confused with chronic fatigue which is a symptom of many other conditions.

In some countries the terms CFS and M.E. are used interchangeably as they seem to manifest in much the same way.

​What is PVFS?

FAQ about M.E. What is PVFS?

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PVFS = Post Viral Fatigue Syndrome

The initial diagnosis given when a patient is still feeling very ill after a viral infection, even though the virus has passed.

PVFS is common and, with lots of rest, it should resolve itself within a few weeks to a few months. If the symptoms persist for 6 months or more, and no other causes can be found, a new diagnosis of CFS or M.E. may be made.

​What is PEM ​or PENE?

FAQ about M.E. What is PEM and PENE?

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PEM = Post Exertional Malaise

PENE = Post Exertional Neuroimmune Exhaustion

Both are considered key symptoms of M.E. (Myalgic Encephalomyelitis). It is when a patient's symptoms flare up after minimal physical, mental or emotional exertion. It can be delayed for up to 72 hours and can last for days, weeks or even months.

​What is a crash?

FAQ about M.E. What is a crash?

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In the M.E. community a "crash" is an acute episode in which the patient becomes extremely weak or incapacitated.

This usually happens after physical or emotional stress. Perhaps after showering or following an unexpected loud noise.

The patient might temporarily lose control of bodily functions and may experience loss of speech, seizures or paralysis.

​What is CBT?

FAQ about M.E. What is CBT?

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CBT = Cognitive Behavioural Therapy

CBT is a talk therapy based on the idea that negative thinking patterns and behaviours could be perpetuating one's physical condition.

It is not a treatment for M.E. but, if done by an M.E. literate therapist, could help some patients adjust to their new circumstances

​What is GET?

FAQ about M.E. What is GET?

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GET = Graded Exercise Therapy

GET is a structured exercise programme which starts with low intensity exercise, steadily increasing in intensity over time.

It is not an appropriate treatment for M.E. Many patients have suffered deterioration after doing GET. It can however be helpful for those who are recovering steadily and are able to sustain the increased exertion.

​What is LDN?

FAQ about M.E. What is LDN?

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LDN = Low Dose Naltrexone

Naltrexone is an opioid antagonist used to treat opioid or alcohol dependence.

Its off-label use, in very low doses, can be beneficial in managing various chronic illnesses.

Some of the most frequently experienced benefits of LDN are: reduced pain and brain fog as well as an increase in energy.

​More About M.E.

Join the MAIMES campaign, Chronically Hopeful #MEcfs #pwME #ChronicIllness
A long list of symptoms, title reads: my symptoms of ME/cfs in 2015. Dozens of fluctuating symptoms.
ME CFS Flares, How to cope BLOG
Why I don't go to emergency room for ME CFS flares BLOG
A collage of awareness pictures, Title reads: Where to find impactful M.E. awareness pictures
Char pulling a funny face. Title reads: How to have M.E. successfully. A humorous look at life with Myalgic Encephalomyelitis.
Thank you for stopping by. Hugs, Char xx

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