Category Archives for "Invisible Illness"

Celebrating Life Despite Acute Disseminated Encephalomyelitis (ADEM) – A Day In The Life Of Sarah

Sarah standing in front of a brick wall. She has pink hair and a black top. Title reads: Celebrating life despite Acute Dissemminated Encephalomyelitis. Interview with Sarah.

​Today I am honoured to share Sarah's chronic illness story. She has been battling Acute Disseminated Encephalomyelitis, also referred to as ADEM, for decades. This interview is part of an ongoing series where we meet warriors from around the world ​who share their struggles and victories as they navigate life with various chronic illnesses and invisible disabilities. 

I hope this series will encourage you and help you to find answers ​and community. I know that many of the things which I now rely on to manage my condition came from other patients with more experience. I hope that, by sharing these stories, newly diagnosed ​warriors will feel supported and less alone.

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Celebrating Life Despite Bipolar Disorder, Generalized Anxiety Disorder and Panic Disorder – A Day In The Life Of Nicole

Nicole wearing a black top and silver necklace. TItle reads: Celebrating life despite bipolar, anxiety and panic disorders. Interview with Nicole Neer

​This week I'm sharing Nicole's story. This incredible warrior lives with ​multiple chronic illnesses including Bipolar Disorder, Generalized Anxiety Disorder, Panic Disorder as well as undiagnosed chronic pain and fatigue.

​Her interview is part of ​our ongoing series ​​featuring spoonie warriors from around the world, each ​highlighting the realities of life with ​chronic illness and invisible disability and how they celebrate life in spite of it all. 

​I hope their stories will encourage you and help you to see that whatever you are going through, you are not alone. There is an incredibly supportive community of chronic illness warriors online - and I can't wait to introduce ​them to you!

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Supplements To Manage Chronic Fatigue And Pain

Pills lying on a table top. Title reads: Supplements to manage chronic fatigue and pain. Find out which supplements have helped me the most

I am often asked about the benefits of using supplements for Myalgic Encephalomyelitis or Chronic Fatigue Syndrome. People usually want to know which supplements I use for chronic pain or fatigue so they can have a better idea about where to start with their own supplement regime. Unfortunately, like everything else about this illness, we all respond differently, so what helps me might not help you the same way. 

Herein lies the beauty of sharing our experiences though - some of the things that are helping me the most are the things I was most sceptical about despite being recommended by others who had claimed success using them. This has taught me that even if I am sceptical, it is always worth trying something for a while if it might improve my quality of life. I hope this post will do that for you too.

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ME Warrior Of The Week: Brittany, Living With M.E. Since She Was 18 Years Old

ME Warrior living with ME since the age of 18. Brittany Lachapelle shares her story. Photo of Brittany lying in hospital wearing a hospital gown.

I'm Brittany. I have suffered with ME since September 2013. It started 2 weeks before my 19th birthday. I was a University student studying psychology and linguistics, working a part time job at a restaurant and had a booming social life.

One morning I woke up and felt that something was very wrong, I blamed it on exhaustion and not taking care of myself... I thought it would go away in a day or two, 6 years later it’s still here.

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ME Warrior Of The Week: Emma, Overcoming Stigma And Disbelief

ME warrior overcoming stigma and disbelief. Emma shares her story. Emma wearing a red Millions Missing shirt, with oxygen tube in her nose.

In this new series I will be sharing ​stories from our beautifully resilient ME community. These chronic illness warriors are not only battling crippling symptoms everyday as they adjust to life with Myalgic Encephalomyelitis, but are also finding ways to continue dreaming, creating beauty and supporting each other, ​despite their ​debilitating illness. I hope their stories will help you better understand ​this life-altering condition, raise awareness and eliminate the stigma that still surrounds ME.

Emma's ME Story

​I started becoming ill with multiple infections in 2014 and no one knew what was causing it. An ENT told me I’d have to just live with the symptoms. Then in 2015 I had a head injury and it all spiralled downwards from there. 

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