Category Archives for "Invisible Illness"

My Chronic Illness Story And How You Can Help

Title reads My MEcfs Story, How it all started, pin by Chronically Hopeful, Picture of Char lying in bed under blankets, shes in an ME flare wearing sunglasses and headphones

​May is ME Awareness Month and once again I am participating in the ​virtual campaigns online to help raise awareness of this life-destroying illness called Myalgic Encephalomyelitis. Today I'm sharing my story. How did I become so terribly ill and housebound? How did it happen? When? And how long did I have to wait for a diagnosis? Here's my ME story:

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Out Of Sight, Out Of Mind: How Can The Church Better Serve The Chronically Ill?

Title reads, Out Of Sight, Out Of Mind, How can the church better serve the chronically ill? Picture of Shona Smith, she has short grey hair, wears glasses and is smiling. Guest post by Shona Smith. pin by Chronically Hopeful
This entry is part 5 of 5 in the series Faith Through Illness

​Today I am sharing a guest post by Shona Smith. I must admit, I have mixed feelings about ​this topic, but it is an important issue and needs to be addressed. I​t is not just a few isolated cases, pastoral care in the church is something that is in desperate need of an overhaul. ​This shouldn't be an issue, but sadly it is and Shona is working hard to find solutions.  

​I hope you do not relate to our shared experience, but if you do or know of somebody who might, please participate in the surveys and help us move towards better pastoral care in the church.

Out Of Sight, Out Of Mind - By Shona Smith

So many of us with chronic illness were leading such busy active lives full of people and places and we were church members, regularly enjoying spending time and energy with like minded friends and often serving and caring for each other in the crises of life. BUT when we have been absent for a while it seems like we are easily forgotten. Do you recognise your experience in the musings below?

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Get Your Own Personalised Millions Missing Poster For ME Awareness Month

#MillionsMissing Personalised poster for ME awareness. How to get your own millions missing poster

May is #MEAwarenessMonth​ and I thought, since many of us cannot go to the live #MillionsMissing events in person, I'd like to help my fellow people with ME (pwME) to raise awareness online​ by offering you personalised Millions Missing posters​!

​I know ​you ​are an incredibly creative and driven group of people, but I also know that many are too ill to use their skills and talents as they would like to and cognitive dysfunction as well as physical incapacity often makes ​using a device or learning new things very difficult. So I hope this free community service will be helpful to you. ​

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Celebrating Life Despite Chronic Pain And Osteoporosis – A Day In The Life Of Lynley

Title reads, Celebrating Life despite chronic pain and Osteoporosis, Interview with Lynley. Below is a photo of a lady wearinga blu dress, sitting in a power chair at the beach with the sea in the background,pin by Chronically Hopeful
This entry is part 5 of 5 in the series A Day In My Life

​​Today I am excited to share Lynley's story. She has been living with chronic pain and osteoporosis for years and is sharing how her life has changed and how she not only gets through, but celebrates life despite her conditions.

​This interview is part of an ongoing series where ​warriors from around the world ​​share their struggles and victories as they navigate life with various chronic illnesses and invisible disabilities.​ I hope you will be encouraged and perhaps even find new friends ​or support through this amazing community of warriors.

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Living With POTS, Gastroparesis, MCAD And More – A Day In The Life Of Brenna

Brenna is wearing a black top, she has long curly brown hair and is looking to the side. on the right the title reads A day in my life with POTS, MCAD, Gastro Paresis and More. Interview with Brenna by Chronically Hopeful
This entry is part 1 of 5 in the series A Day In My Life

​Today I am ​excited to share ​Brenna's chronic illness story with you. She is a creative warrior who has been battling​ a multitude of chronic conditions including POTS, Gastroparesis, MCAD and many more for over a decade.

This interview is part of an ongoing series where we meet spoonie warriors from around the world ​who share their struggles and victories as they navigate life with various chronic ​conditions ​​or invisible disabilities. 

I hope this series will encourage you and perhaps help you to find answers ​and community. I know that many of the things which I now ​depend on to manage my conditions came from ​listening to patients with more experience. I hope that, by sharing these stories, newly diagnosed ​warriors will feel more supported and less alone.

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