Who am I? When living with severe chronic illness it can be easy to feel like you've lost your identity. When experiencing a loss of identity, you start doubting yourself, you lose confidence, you lack purpose and vision. You start to feel useless. It is important to reflect and remember who you are. Reignite your dreams and goals, your passion and purpose.
Being diagnosed with a severe chronic illness means those things can become a bit blurry. When you can no longer do the job or hobbies you used to do or think and learn and read and move the way you used to, it can seem like all those plans you had for your life are a distant memory, an impossibility...
The truth is that although things are very different now, it's still possible to find joy and meaning in every day and even discover or fulfil your purpose.
It’s easy to get caught up in all the negatives that happen in life. Things don’t go your way, you fall ill, you lose people or your job, you feel sick, there are just so many things that can bring us down, but this is just part of life.
The minute we stop expecting life to be a fairytale and accept reality, that’s the moment we open ourselves up to the truth and the freedom that comes with it. It’s hard to expect perfection at all times. It’s hard on ourselves and on those around us. Nobody can live up to that expectation. Life doesn’t work that way.Continue reading
In the chronic illness community, I have found some of the strongest people you will ever come across. They are warriors who fight many battles daily, often against their own bodies or minds, just to get through each day. As much as there is hope and strength, there is also a lot of neglect and isolation. It is natural in these lonely and scary times to feel like giving up.
I often come across people who are losing all hope, but there is so much support and love available to us if we just reach out or know where to look. I hope this post will help you to find the support you need.
When living with a chronic illness, whether it’s a physiological or psychological condition, it is common to start doubting yourself. Your confidence dwindles as you lose the ability to function the way you once did. You might start to feel useless, helpless and hopeless, but there is so much you can still offer the world!
You have overcome so much already. Every day you wake up is a new victory and a clean page in your story on which you can write the next chapter. You’re brave and strong. Things that healthy people take for granted; their mental clarity, their energy, their physical strength – you fight for every little bit of it that you can find just to get through each day!Continue reading
Good morning friends, I’ve just woken up and it’s almost 11.30. I’m stiff and achy, was a little shaky upon waking, but I’m so happy!
I was brushing my teeth and realised I’ve been wearing the same clothes the whole week! Waking and sleeping. That grossed me out a bit, but it isn’t the first time this has happened and won’t be the last.
As I was filling in my journal last night, I noticed that every day this past week, except my birthday on Friday (Yay!), was marked as a flare day. Every single day.
Sometimes, no matter how hard we try to do the right thing, we just flare amyway, I can’t even remember what might have caused this week long flare.
I didn’t even realise it had already been so long. It’s like my memory resets when I have a good day and I am emotionally energised by the good days for quite some time after.
It’s like that good day will stay in my memory and the joy it gave me will just last, like a gust of wind in my sails, pushing me ahead until the next one. Despite actually paying for it physically for some time after.
It doesn’t even have to be a good day really, it could be a good meal or a fun chat with a friend or a beautiful comment from somebody I’ve never even met who connected over something I shared online.
These are all small things to the heathly person, but they are accomplishments worth celebrating if you’re chronically ill and housebound.
The good experiences we have daily fill our sails and can carry us forward to the next port. That could be a celebration, a visitor, an outing – any of those beautiful occasions that are rare and exciting, but also potentially difficult exhausting.
The effects of such occasions are often quite positive on us emotionally and are great for out mental health, but can be quite draining or even painful physically, which will mean once again focusing on the small blessings each day brings until we’re able to enjoy the celebration at the next port.
So you can see how the small things in life are so important. When you’re stuck in bed paying for some semblance of normality you tried to experience, it’s those little things that can mean so much: a text or a card in the mail, the sunshine on your face, the sound of birds outside, a delicious meal, a soak in the bath, clean sheets, a quiet neighbourhood, the view from your bedroom window…
Search for the beauty, the joy, the silver lining in every day. Focus on the good. Practice gratitude over every small gift that each day brings and let that feeling fill your sails like a gust of wind until the next one comes.
Life is going to be full of waves and high waters, specially if you’re ill, it affects every aspect of your life: physical ability, relationships, finances, confidence, faith, mental health, your independence, etc.
However, you can focus on the waves and let fear, anger, anxiety and panic set in, or you can focus on the fluffy clouds above, the blue sky, the sunshine, the fresh air, and be grateful for the shelter and protection you have and for every gust of wind that fills your sails, even just a little, pushing you forward and closer to your next port.