Category Archives for "Invisible Illness"

Out Of Sight, Out Of Mind: How Can The Church Better Serve The Chronically Ill?

Title reads, Out Of Sight, Out Of Mind, How can the church better serve the chronically ill? Picture of Shona Smith, she has short grey hair, wears glasses and is smiling. Guest post by Shona Smith. pin by Chronically Hopeful

​Today I am sharing a guest post by Shona Smith. I must admit, I have mixed feelings about ​this topic, but it is an important issue and needs to be addressed. I​t is not just a few isolated cases, pastoral care in the church is something that is in desperate need of an overhaul. ​This shouldn't be an issue, but sadly it is and Shona is working hard to find solutions.  

​I hope you do not relate to our shared experience, but if you do or know of somebody who might, please participate in the surveys and help us move towards better pastoral care in the church.

Out Of Sight, Out Of Mind - By Shona Smith

So many of us with chronic illness were leading such busy active lives full of people and places and we were church members, regularly enjoying spending time and energy with like minded friends and often serving and caring for each other in the crises of life. BUT when we have been absent for a while it seems like we are easily forgotten. Do you recognise your experience in the musings below?

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Celebrating Life Despite Chronic Pain And Osteoporosis – A Day In The Life Of Lynley

Title reads, Celebrating Life despite chronic pain and Osteoporosis, Interview with Lynley. Below is a photo of a lady wearinga blu dress, sitting in a power chair at the beach with the sea in the background,pin by Chronically Hopeful

​​Today I am excited to share Lynley's story. She has been living with chronic pain and osteoporosis for years and is sharing how her life has changed and how she not only gets through, but celebrates life despite her conditions.

​This interview is part of an ongoing series where ​warriors from around the world ​​share their struggles and victories as they navigate life with various chronic illnesses and invisible disabilities.​ I hope you will be encouraged and perhaps even find new friends ​or support through this amazing community of warriors.

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Living With POTS, Gastroparesis, MCAD And More – A Day In The Life Of Brenna

Brenna is wearing a black top, she has long curly brown hair and is looking to the side. on the right the title reads A day in my life with POTS, MCAD, Gastro Paresis and More. Interview with Brenna by Chronically Hopeful

​Today I am ​excited to share ​Brenna's chronic illness story with you. She is a creative warrior who has been battling​ a multitude of chronic conditions including POTS, Gastroparesis, MCAD and many more for over a decade.

This interview is part of an ongoing series where we meet spoonie warriors from around the world ​who share their struggles and victories as they navigate life with various chronic ​conditions ​​or invisible disabilities. 

I hope this series will encourage you and perhaps help you to find answers ​and community. I know that many of the things which I now ​depend on to manage my conditions came from ​listening to patients with more experience. I hope that, by sharing these stories, newly diagnosed ​warriors will feel more supported and less alone.

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How Can I Be Physically Disabled And Not Depressed?

A girl sitting on her bed holding a cup of tea, resting her head on her knees. Title reads, I'm okay, seriously. How can I be physically disabled and not depressed? By Chronically hopeful

I'd like to speak about my own mental health. I feel like some people misunderstand my condition, so I wanted to address the matter directly. Yes, I have a severely debilitating illness. Yes, I practically live in bed. No, I cannot go out and I cannot have visitors coming over without paying for it​, but I am okay. Seriously.

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Eat To Heal Loss Of Appetite And Depression, Interview With Jo

A lady sitting out in the garden having tea and cake in the sunshine. Title reads Eat To Heal Loss Of Appetite and Depression, Interview with Jo, by Chronically Hopeful

​​In this interview series ​we ​explore ​how diet and chronic illness affect each other and today I have the honour of sharing Jo's story. Jo's ​appetite was severely affected by her mental health, but with the help of loved ones, she ​found a way to overcome it and get back to a place where she could once again enjoy a healthy diet.

When it comes to chronic illness, there is no one-size-fits-all solution, especially when it comes to healing through diet. ​It's up to us to try different approaches until we find our personal solution - the thing that our body responds to most positively.

I hope ​this series will inspire you to make changes to your diet too, you never know how much relief you could experience through just a few modificaitons. What you eat really can make a big difference!

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