Category Archives for "Invisible Illness"

Living With POTS, Gastroparesis, MCAD And More – A Day In The Life Of Brenna

Brenna is wearing a black top, she has long curly brown hair and is looking to the side. on the right the title reads A day in my life with POTS, MCAD, Gastro Paresis and More. Interview with Brenna by Chronically Hopeful
This entry is part 1 of 5 in the series A Day In My Life

​Today I am ​excited to share ​Brenna's chronic illness story with you. She is a creative warrior who has been battling​ a multitude of chronic conditions including POTS, Gastroparesis, MCAD and many more for over a decade.

This interview is part of an ongoing series where we meet spoonie warriors from around the world ​who share their struggles and victories as they navigate life with various chronic ​conditions ​​or invisible disabilities. 

I hope this series will encourage you and perhaps help you to find answers ​and community. I know that many of the things which I now ​depend on to manage my conditions came from ​listening to patients with more experience. I hope that, by sharing these stories, newly diagnosed ​warriors will feel more supported and less alone.

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How Can I Be Physically Disabled And Not Depressed?

A girl sitting on her bed holding a cup of tea, resting her head on her knees. Title reads, I'm okay, seriously. How can I be physically disabled and not depressed? By Chronically hopeful

I'd like to speak about my own mental health. I feel like some people misunderstand my condition, so I wanted to address the matter directly. Yes, I have a severely debilitating illness. Yes, I practically live in bed. No, I cannot go out and I cannot have visitors coming over without paying for it​, but I am okay. Seriously.

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Eat To Heal Loss Of Appetite And Depression, Interview With Jo

A lady sitting out in the garden having tea and cake in the sunshine. Title reads Eat To Heal Loss Of Appetite and Depression, Interview with Jo, by Chronically Hopeful

​​In this interview series ​we ​explore ​how diet and chronic illness affect each other and today I have the honour of sharing Jo's story. Jo's ​appetite was severely affected by her mental health, but with the help of loved ones, she ​found a way to overcome it and get back to a place where she could once again enjoy a healthy diet.

When it comes to chronic illness, there is no one-size-fits-all solution, especially when it comes to healing through diet. ​It's up to us to try different approaches until we find our personal solution - the thing that our body responds to most positively.

I hope ​this series will inspire you to make changes to your diet too, you never know how much relief you could experience through just a few modificaitons. What you eat really can make a big difference!

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10 Important Life Lessons I Learned From Chronic Illness

10 Important Life Lessons learned from Chronic Illness, by Chronically Hopeful. A woman sits by the window, gazing out while holding a cup of tea. She has shoulder length hair and is smiling contemplatively.

Last year was a tough one for many of us, but looking back I ​realised that I have learned many important lessons which make me stronger and ​better equipped for the year ahead.

So although 2018 was a year of very high highs and very low lows​, there were many ​lessons scattered among both the trials and the triumphs. ​This is the way life goes - it is never linear and it's always changing - but we can always look back and learn something from what we have been through. 

Through the course of each year we ​will grow wiser, we ​will heal old wounds, we ​will get up and try again, but ​each time we will also be a little stronger.

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Photophobia: 6 Ways To Cope With Light Sensitivity

In a dark room a hand is held up to block the light that is shining in. Title reads, Photophobia in ME and CFS. 20 Patients share their experience.

​Have you ever experienced that moment of intense pain in your eyes and head when you've opened the curtains on a bright and sunny day? Anybody who has experienced a migraine or even a hangover would likely understand what I'm talking about too. Although photophobia or light sensitivity ​might ​seem quite common among ​the general population, it can be quite debilitating when combined with a chronic illness like ME.

Most people struggle with glare and direct sunlight in their eyes, but what you might not realise is that some people with ​chronic illness actually cannot tolerate any light at all and might have to spend hours, days, weeks or even months in the dark - and it's not just pain in the eyes that they're avoiding!

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