Category Archives for "Invisible Illness"

Living With Undiagnosed Illness – A Day In The Life Of Jodie

Blue forget-me-not flowers on the left. Title reads Day In My Life with undiagnosed chronic illness, Interview with Jodie, ChronicallyHopeful

In this interview series we highlight various chronic illnesses and the amazing warriors who deal with them daily. My aim is to raise awareness as well as celebrate the many ways in which our fellow warriors overcome the limits illness and disability has placed on them.

Today I have the privilege of sharing Jodie's "A Day In My Life" interview here on Chronically Hopeful. Jodie has fought hard for years to get a diagnosis - a battle that many chronic illness warriors know all too well. She has a lovely blog where she writes about her health, her goals and victories on her road to recovery.

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Have You Ever Seen Somebody In A Wheelchair Get Up And Walk?

A wheelchair parked outside in a field, a woman standing up in front of it. TItle reads: When somebody in a wheelchair gets up and walks. Why do people use wheelchairs if they can walk?

Have you ever been out in town and seen somebody who looks perfectly healthy get out of a car they had just parked in the spot for disabled people or seen somebody on a mobility scooter park outside and walk into the shop? If you are anything like I was before I fell ill, you might think these people are faking and milking the system for benefits and attention, but you'd be wrong, just like I was!

This week is Invisible Disabilities Week. An annual awareness campaign where patients and activists share their knowledge and experience of life with invisible illness and disability. In 2015 I became severely ill with an invisible chronic illness. Before that, I was very judgemental about others when it came to illness and disability.

I believed that if people ate healthy, did exercise and avoided cigarettes, drugs and alcohol that they'd not get sick and that wheelchairs were for people who couldn't walk - the real issue was that I was simply ignorant of the realities of chronic illness and invisible disabilities. I just didn't know any better.

Chronic illness has completely turned my life and the lives of my whole family upside down, restricting me to my house and often my bed for years, but if you ever saw me outside, you'd think I was still completely healthy because my condition doesn't cause any physical deformities and cannot be detected visually. I have an invisible disability.

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How To Crochet A Twiddle Muff, A Handmade Sensory Toy To Relieve Anxiety

A crocheted twiddle muff with tassels and buttons on it lying on the carpet. Title reads, How to crochet s twiddle muff

Most people with chronic illness have experienced anxiety or panic at some point.  It's not always a condition on it's own, but commonly is a symptom of other illnesses that affect the autonomic nervous system. There are many ways to reduce anxiety and stress, but today I will be sharing a fun and creative craft project that will help you restore calm to your world - the Twiddle Muff!

If you've ever met somebody with mental health or even chronic pain conditions, you have likely noticed that they tend to have habits like fidgeting or making repetitive movements or sounds. These actions are called stimming, they are an automatic response to stress or pain and they have a specific purpose. A Twiddle Muff can be a great tool in helping with this need.

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Chronic Pain and Lukewarm Faith, by Heather Hart

Heather wearing a floral top, smiling at the camera. Title reads Chronic Pain and Lukewarm Faith, guest post by Heahter Hart, ChronicallyHopeful

After almost a year of severe, chronic migraines, I am happy to announce that I am finally feeling better. I’m not 100% yet, but I have had several pain-free days for the first time in ten months.

I am over-the-moon excited and thankful for the relief.

But as much as I clung to God over the past year, I’m sad to say that my faith still suffered.

For months I was unable to read my Bible (or anything else for that matter), and I am struggling to get back into the groove.

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How To Have ME Successfully

Char pulling a funny face. Title reads: How to have M.E. successfully. A humorous look at life with Myalgic Encephalomyelitis.

I came across this fantastic list of guidelines for how to live successfully with Myalgic Encephalomyelitis and just had to share it. It's so refreshing to ​read a light-hearted account of life with this ​horrible illness. I'll be sharing this humorous look at life with M.E. below as well as explain the realities of each point in more detail to help with raising awareness. There's also an image you can share on social media. 

So here they are, ​The 11 Rules For Having ME Successfully:

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