Category Archives for "Practical Help"

Twiddle Muff For Anxiety, An Alternative To The Fidget Spinner

Crocheted Twiddle Muffs, Reduce anxiety, Increase focus, ChronicallyHopeful

Most people with chronic illness have experienced anxiety or panic at some point.  It's not always a condition on it's own, but commonly is a symptom of other illnesses that affect the autonomic nervous system. There are many ways to reduce anxiety and stress, but today I will be sharing a fun and creative craft project that will help you restore calm to your world - the Twiddle Muff!

If you've ever met somebody with mental health or even chronic pain conditions, you have likely noticed that they tend to have habits like fidgeting or making repetitive movements or sounds. These actions are called stimming, they are an automatic response to stress or pain and they have a specific purpose. A Twiddle Muff can be a great tool in helping with this need.

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How To Have ME Successfully

How To Have ME Successfully, How To cope with chronic illness, Chronically Hopeful

I came across this fantastic list of guidelines for how to live successfully with ME and just had to share it. So here they are, the 11 Rules For Having ME Successfully:

* Do not consider having M.E. unless you have a downstairs toilet.

* In order to have M.E. successfully you should acquire a cleaner, gardener, cook and a general handyman. If this is impossible, you should find a rich, devoted, non-talkative partner with few outside interests.

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How You Can Help The Millions Missing Worldwide

Photo of thousands of empty shoes filling a town square, foreground text says ME Awareness, How you can help the Millions Missing

Although May 12 is ME Awareness Day, a global day of "Millions Missing" protests and demonstrations by people with ME, their carers, family and friends, many patients are too ill to leave their beds and would be lost and hopeless if not for the able bodied supporters who take their places at these rallies and make some noise for those of us too ill to do it ourselves.

I have recently been asked by a few healthy friends how they could practically help our cause. So in this post I will list some ideas and links to other initiatives that would greatly benefit from any support you can give. 

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A Community for ME/CFS Bloggers and Patients

Join the ME CFS Community, ChronicallyHopeful #MEcfs #pwME #SupportGroup

When I was first diagnosed with ME/CFS, I felt lost. Chronic Fatigue Syndrome was a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created an ME/CFS community online.

It consists of a few places on social media where bloggers, vloggers and other content creators with ME/CFS (and their carers) can share their content to help support the ME/CFS community better.

My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support and resources available to them. 

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How I overcome insomnia

How I overcame insomnia BLOG

When I first got ME/CFS, I was so utterly exhausted, I slept many hours a day and I slept at night too. Later I was introduced to one of ME's most horrible symptoms: insomnia. I know the frustration and despair that comes from not getting sleep for nights on end, so in this post I will explain how I overcome insomnia whenever it creeps back into my life.

It's quite ironic that people think having ME/CFS means we sleep all day when really we're just utterly exhausted, mentally and physically drained, but unable to sleep, especially at night.

I found myself nodding off in the day, trying hard to stay awake, and then at night when it's finally okay to go to sleep, my body and mind are wide awake and in no mood for rest, buzzing and restless, despite still feeling utterly wrecked.

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