Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated - multiple times, in the dark with sunglasses on, my phone's screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time.
This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night's insomnia caught up with me and my body was flooded with pain in every muscle and every bone.
As you might know by now, I spend every Wednesday evening on Twitter, along with many other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening.
We tweet about what life is like with this life draining illness. We tweet and retweet for an hour, hoping to to make our hashtags trend on the front page of Twitter so we can get the most attention possible. I hope you will join us, even if you only retweet other people’s tweets, every bit helps!
I have a date tonight – with Twitter! Every Wednesday evening I spend an hour on Twitter, along with a bunch of other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. You can join in the fun too, we’d love to have more advocates taking part!
We post memes, links to research or media coverage, personal experience, all sorts of things that will help shed some light on what life is like with this debilitating illness. We tweet and retweet for an hour, our hope to to make #MECFS trend on the front page to get the most attention we can. I hope you will join us, even if you only retweet other people’s tweets. Come find me on Twitter at: chronic_hopeful
Ever wondered where to find ME awareness pictures to share? Myalgic Encephalomyelitis is a very misunderstood illness, so my aim is to empower people with ME or CFS to raise awareness, share their own experience and to educate the public about the condition.
In this series I will be sharing ME awareness pictures that I have created and shared on social media and I'll elaborate on each topic here on the blog. All these posts and graphics have been created for advocacy purposes, so feel free to share them online.
In 2017 I created the "Effects of ME" campaign for ME Awareness month in May. Quotes were collected from patients about how ME affects their daily life and I then used those quotes anonymously to create impactful graphics which the community could share during the online awareness campaigns.
The campaign continues to run to this day, with new quotes trickling in all the time. The graphics have been very well received in the M.E. community and continue to be shared widely. People relate to the quotes and it makes expressing their experience so much easier. I hope you will find this collection useful for your own advocacy efforts too.