Category Archives for "Life With M.E."

Where To Find ME Awareness Pictures

A collage of awareness pictures, Title reads: Where to find impactful M.E. awareness pictures

Have you been searching for graphics to easily share with friends and family what Myalgic Encephalomyelitis is really like? Would you like to share relevant and informative infographics about ME? Find pictures that will give visual impact and get the point across without wasting your energy and time explaining? I'm so excited to introduce ME Awareness Pictures to you today! 

ME Awareness Pictures is a community resource where we can collect and share ME awareness pictures from all over the web. In this post I will tell you where you can find them and even how you can help to expand the collection. There is also an opportunity to be a featured ME warrior!

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How To Have ME Successfully

Char pulling a funny face. Title reads: How to have M.E. successfully. A humorous look at life with Myalgic Encephalomyelitis.

I came across this fantastic list of guidelines for how to live successfully with Myalgic Encephalomyelitis and just had to share it. It's so refreshing to ​read a light-hearted account of life with this ​horrible illness. I'll be sharing this humorous look at life with M.E. below as well as explain the realities of each point in more detail to help with raising awareness. There's also an image you can share on social media. 

So here they are, ​The 11 Rules For Having ME Successfully:

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Living With Severe ME/CFS, Who Am I Now?

Char lying on the bed, feeling ill. Title reads: Living with severe M.E. Who am I now? When it feels like you've lost your identity to chronic illness

Who am I? When living with severe chronic illness it can be easy to feel like you've lost your identity. When experiencing a loss of identity, you start doubting yourself, you lose confidence, you lack purpose and vision. You start to feel useless. It is important to reflect and ​remember who you are​. Reignite your dreams and goals, your passion and purpose. ​

​Being diagnosed with a severe chronic illness means those things can become a bit blurry. When you can no longer do the job or hobbies you used to do or think and learn and read and move the way you used to, it can seem like all those plans you had for your life are a distant memory, an impossibility...

The truth is that although things are very different now, it's still possible to find joy and meaning in every day and even discover or fulfil your purpose.

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Advocacy And Fundraising Ideas And Resources

Photo of hundreds of empty pairs of shoes in a town square representing th millions of ME/cfs patients missing from society. Title reads, How you can help the Millions Missing, Myalgic Encephalomyelitis awareness and advocacy,by Chronically Hopeful

Advocacy ​/ Fundraising Ideas ​& Resources

​May 12 is ME Awareness Day, a global day of "Millions Missing" protests and demonstrations by people with ME, their carers, family and friends, but many patients are too ill to leave their beds and would be lost and hopeless if ​ir weren't for the able bodied supporters who take their places at these rallies and make some noise for those of us too ill to do it ourselves. We need all the help we can get!

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A Community for ME/CFS Bloggers and Patients

Title reads Join The MEcfs Community, Social group for ME & CFS patients and carers. Photo of blue forget-me-notspin by Chronically Hopeful

When I was first diagnosed with ​Chronic Fatigue Syndrome, I felt lost. It's a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created a community online for people with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) and their carers.

It consists of a few places on social media where ​people with ME or CFS and their carers can share ​relevent content to help support the ME/CFS community.

My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support and resources available to them. 

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