My First 6 Months Of ME/CFS: The Best And Worst Months Of My Life

Yellow roses on the right, Title on the left reads: My first 6 months housebound with MEcfs.

Today marks the end of six months since I got the viral infection that changed my life. That gloriously sunny day in Italy on the first of April 2015. It all happened so quickly and unexpectedly, I was out cycling in the countryside one minute and in bed the next. My body reached a point of weakness and exhaustion that I'd never known before and nothing has been the same since. 

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Today marks six months of being housebound with constantly recurring flu like symptoms, any combination of aches and pains, shaking, weakness, swollen glands, earache and exhaustion at the simplest tasks. On top of that there is cognitive dysfunction - brain fog, memory loss, digestive issues, tingling and creepy crawly sensation all over my skin.

I also have more frequent migraines, numbness and heaviness in my limbs, muscle atrophy in my lower legs, sensitivity to sound, smells, light and touch. I'm easily bruised, have temperature regulation issues, broken sleep, too much sleep, and so many more unpredictable and bizarre symptoms.

But it has also been six months of resting in the Lord, trusting His plan, hoping in His provision, acknowledging His hand, taking note of the simple things, the beauty of sunrise, lying outside on my patio watching the moon and stars, the quiet peace of early mornings, really feeling the heat of the sun on my skin and muscles, not taking for granted any small thing I manage to do or see or the occasional outing.

It's also been 6 months of exploring my creative side, truly appreciating each visit or conversation and realising the precious gift of true friends and loving family who stand by me and let me know that I'm not alone in this.

So much change, so much confusion, so much silence, so many tears, so much love and so much pain. I have felt the heartbreak of some people's indifference and I have felt the overwhelming gratitude for other people's sacrifice and love. It's been altogether the worst and the best six months of my life... 

​How You Can Help

Being so severely ill and with little understanding of this illness, we could really use all the help we can get from healthy allies. Find out how you can help the Millions Missing due to ME & CFS.

​More About My ​Chronic Life

A plate of fried eggs, salami and red pepper. Title reads: Transitioning to a paleo-ketogenic diet. Managing chronic fatigue and pain with diet
First outing in 5 months BLOG
Title on the left reads, Celebrating The Ordinary, personal update by Chronically Hopeful, on the right a picture of Char wearing a pink vest and yellow earrings, she's laughing and holding a few coloured markers and pens.
Char standing in the sunshine with sunglasses on. Title reads: Focus on the blessings of the present moment. A lessons from B. Manning
Girl lying on a bed, looking thoughtful. Title reads, Reflections after two years in bed. Thoughts on Faith, Patience, Surrender & Acceptance.
A pile of boxes stacked up next to a radiator. Title reads Moving to a new house, plus 12 tips to make moving easier

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  • Salena says:

    Thank you for sharing part of your journey! Ever since I found your blog I have been awaiting a new post. It was my first time being exposed to those who had the experience of vitality being snatched away, while hoping and trusting in a god unlimited by proper functioning of our bodies.

    May you ever be a beacon of light, may his love and comfort be rich, and may you continue in the courage it takes to say “it is well with MY SOUL!”

    • Hi Salena, thank you so much for your beautiful message. I have had a lot going on the past few months, so have not been able to write much due to long flares, but I’m getting a few things finished up this week while I can. Thank you for your patience and encouragement. God bless you.

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