BuJo July: New month, new schedule, new goals!

I discovered the bullet journal craze in 2016 while I was looking for a way to track my symptoms, medications, activity levels and appointments.

Brain fog makes keeping on top of things quite difficult and I’ve always enjoyed the idea of keeping a journal, in fact I collect notebooks and paper because I always imagine all the use I could get out if them.

Bullet journals in particular are very versatile and personalisable which is perfect since we all have different needs.

I used my first one for many months, I almost filled the whole book, but at one point my therapist told me to stop keeping track of everything because she thinks this keeps me focused on the wrong things.

I took up her challenge and stopped taking notes, but I didn’t get any better, the problem is not in my head or my thinking, I am quite at peace with my condition and the season I’m in right now.

The problem is physical, and keeping track of things is a way for me to monitor my progress and figure out where I might need to adjust my routine. Continue reading

Decorating my journal

I’m starting a new journal tomorrow with the start of the new month. I want to track my health: supplements, diet, symptoms, etc as well as my to do lists and blogging ideas and my schedules or routines, etc. 

This is an old notebook from Poundland. I love these though, and have a few of them I have used over the years. They have lined pages, excellent for note taking, but not so great for art. 

I might end up sticking pages together if I decide to get creative in here and it runs through a page. I’m going to try not to be so focused on details and perfection in this book, and rather use it as a practice of patience and acceptance of flaws. 

I’d already used this book for notes when I used to attend bible study in London, but there weren’t many notes in this one, so I pulled out the used pages and have started fresh. 

I’ll probably share some internal pages occasionally, but with my shaky hands, my handwriting is really bad. It’s very different to drawing and lettering. Lettering is really just drawing large letters and doesn’t require such fine motor skills as regular writing. 
If you’ve ever received a letter or card from me, you’ll know what I’m talking about! 

The cover was rather plain, and if I am going to use the book, then I’ll need to love the book, so I decided to decorate it this morning. 

It took a few shifts and spanned a few hours, so I’m thoroughly exhausted now and resting, but I’m super pleased with how it turned out. 

What do you think? 

Still itching: time to find the unknown allergen

I’m still struggling with this allergic reaction that started in February. I initially thought it was the Keto rash and tried coming off the ketogenic diet to get rid of it, without success.

I then thought histamine intolerance, so I went low histamine, which cut out a huge amount of staples for me, including my main fat sources. So I added dairy back in.

This full body itch persists, I’m not sure what it is and it just won’t go away!

So I’m redoing my food list. I’m going dairy free again, nut free, caffeine free, as well as low histamine and Keto! It’s going to be tough.

I’m going to see if I can eliminate the itch by identifying the allergen. The doctors just prescribe antihistamines and I was told not to change my diet, but frankly I’m sick of them prescribing bandaid solutions rather than figuring out what the cause is. Continue reading

Too much of a good thing

If you’ve been following my journey, you will know that I’m currently experiencing an improvement in my condition thanks to the ketogenic diet I started earlier this year.

I thought it would be a great opportunity, having just passed international ME Awareness Month, to continue raising awareness and funds for ME research by setting myself a challenge.

Considering that I was almost completely bedridden for quite some time until last month, this is quite a huge deal.

I decided 1000 steps was a good place to start as that was what my fitbit was indicating. I have recently moved to a new home and through the packing and unpacking, I was reunited with my fitbit.

I wore it for a few days and noticed I was nearing 1000 steps a day, somewhere between 700 and 1000. I was so surprised and super pleased with the progress I was clearly making.

I started my challenge on 1 June 2017 and have managed to hit my target almost every day!

The idea is to aim for 1000 steps a day to raise £1000 for ME Research.

By keeping track of my progress with the fitbit and its app on my phone, I have noticed some behaviour patterns are emerging.

This past week I have managed to stay above 1000 steps daily, until yesterday. The problem was, as you can see from the image above, I overdid it on a few occasions and the flare day, yesterday, was inevitable. Continue reading

Took me 30 years to learn this truth about the Gospel

I grew up believing every word of the Bible. I still do, but my understanding has changed dramatically. It was all head knowledge, but I didn’t know the character of God.

I didn’t understand His ways or His plans for us as his creation. I certainly didn’t understand how salvation didn’t require jumping through hoops and sacrifices if that’s what God required in the old testament. It didn’t make sense to me.

I spent my life filled with guilt and fear. Fear that I wouldn’t make it to heaven, that I’d end up in that pit of flames. I tried so hard to be good, and by human standards I was quite a good child, I think, but I knew it wasn’t good enough according to God’s standards and that was my problem. Continue reading

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