Transitioning To A Paleo-Ketogenic Diet

A plate of fried eggs, salami and red pepper. Title reads: Transitioning to a paleo-ketogenic diet. Managing chronic fatigue and pain with diet

As some of you might know, I have recently started reading Dr. Sarah Myhill's book, Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis. It's a huge book, with over 400 pages, and includes so much detail about how the body works and what she believes is happening to sufferers of ME/CFS. I'm so excited about this!

Continue reading

Are You an Unchargeable or a Spoonie?

A lady with bed head, looking exhausted. Tital reads, Are you a chargie or a spoonie? Both analogies for chronic exhaustion explained.

​People often wonder what we mean when they hear us talking about spoons or that we are a spoonie or unchargeable. These are words I never used before joining the world of the chronically ill and disabled. In this post I will try to explain the meaning behind these terms and which one I identify with most.

Continue reading

Don’t Do Your Best, Do Less: How To Avoid The Boom And Bust Cycle

A woman carrying a bucket of cleaning products. Title reads: Don't do your best, do less. How to avoid the boom and bust cycle.

Anybody who has ME or CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) will be very familiar with the boom and bust cycle. ME's main characteristic is Post-Exertional Neuroimmune Exhaustion (PENE) also commonly referred to as Post Exertional Malaise (PEM). Feeling really ill, weak and exhausted after any physical, emotional or mental exertion. 

This means brushing my teeth, getting excited about a visitor coming, answering the phone or writing this post is exhausting and will cause an increase in a variety of symptoms. The problem is that when I feel better on a particular day, I tend to want to do more because I feel able and would like to participate more in life, but this can be detrimental.

Continue reading

International Day of People with Disabilities: Not All Disabilities Are Visible

Man in a wheelchair with his hand on the wheel. Title reads: Not all disabilities are visible. International day of people with disabilities.

December 3 is International Day of People with Disabilities. It's a great opportunity to raise awareness and make some noise all over the internet (and in real life) if you can manage it. The message I want to get across this year, is that not every disability is visible.

There are many conditions that do not display any outward signs of illness or disability, but they are just as debiitating as any condition you can clearly identify.

Continue reading
>