Still itching: time to find the unknown allergen

I’m still struggling with this allergic reaction that started in February. I initially thought it was the Keto rash and tried coming off the ketogenic diet to get rid of it, without success.

I then thought histamine intolerance, so I went low histamine, which cut out a huge amount of staples for me, including my main fat sources. So I added dairy back in.

This full body itch persists, I’m not sure what it is and it just won’t go away!

So I’m redoing my food list. I’m going dairy free again, nut free, caffeine free, as well as low histamine and Keto! It’s going to be tough.

I’m going to see if I can eliminate the itch by identifying the allergen. The doctors just prescribe antihistamines and I was told not to change my diet, but frankly I’m sick of them prescribing bandaid solutions rather than figuring out what the cause is. 

It has been months now and I’m still itching. It’s ridiculous!

So now that I’m thoroughly fed up, I’ll take it into my own hands, again, and do my own elimination diet. My meals might end up being very monotonous, but it’s what needs to be done at this point.

I really hope I’ll find the culprit soon, so I can get back to eating a wider variety of foods. If this change in diet does nothing to improve the situation within a few weeks, I will have to insist they refer me to an allergist, because I don’t have the energy to keep scratching… It’s exhausting and frustrating.

I’ll be quite sad if I’m allergic to nuts or dairy, but I’ll be relieved if I can pinpoint the culprit, whatever it is!

I really hope it’s not another symptom of ME/CFS – that would be quite bad, but I guess I will find a way to deal with it, if that is the case.

Have you experienced anything like this before? Just itching – everywhere.

UPDATE: I have since come to the conclusion that I am histamine intolerant and my histamine bucket is simply overflowing, I don’t think I’m necessarily allergic to any one thing, but rather having trouble eliminating histamine that accumulates naturally on food and in the body. You can read more about what my new doctor said here, and find out how I’m reducing the itching as well as the rashes and hives that later appeared, here.

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Mrs. C. - July 11, 2017 Reply

I’ve had this too! For years my shins would itch and even blister. When I cut out dairy, though, it went away. More recently, every once in a while I’d get itching all over my legs and hips, sometimes for months! I got an allergy test done, and after eliminating all possible culprits, I’m now itch-free 🙂 . Have you found your culprits?

    Chronically Hopeful - July 20, 2017 Reply

    Hi Mrs C,
    Thanks for sharing your story! Unfortunately I have not yet found my culprits. I hope to at least figure it out by the end of the year, in a couple of weeks, if my last attempts have not shown any improvement, then I’ll insist on a referral to an allergist. Thanks for your support!

Tonya - July 11, 2017 Reply

I suffered from this for years (chronic hives, stomach upset, etc, and miserable itching all over), and tried all types of elimination diets, but never could figure it out until I was allergy tested (skin prick test). Come to find out, it was MULTIPLE foods that were causing it, which was why it was so hard for me to figure it out. Maybe that will help you also. Don’t give up!

    Chronically Hopeful - July 20, 2017 Reply

    Thank you, Tonya! I’m so close to returning to the doctors and insisting they test me or refer me to an allergist. I don’t think there is much more I can do on my own to figure it out. Thank you for the encouragement xx

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