Tag Archives for " Chronic Illness "

Living With Undiagnosed Illness – A Day In The Life Of Jodie

Picture of forget-me-nots on the left, title on the right, guest interview with jodie, a day in my life with undiagnosed chronic illness.
This entry is part 2 of 3 in the series A Day In My Life

In this interview series we highlight various chronic illnesses and the amazing warriors who deal with them daily. My aim is to raise awareness as well as celebrate the many ways in which our fellow warriors overcome the limits illness and disability has placed on them.

Today I have the privilege of sharing Jodie's "A Day In My Life" interview here on Chronically Hopeful. Jodie has fought hard for years to get a diagnosis - a battle that many chronic illness warriors know all too well. She has a lovely blog where she writes about her health, her goals and victories on her road to recovery.

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Have You Ever Seen Somebody In A Wheelchair Get Up And Walk?

When somebody in a wheelchair gets up and walks, Invisible Disability, ChronicallyHopeful

Have you ever been out in town and seen somebody who looks perfectly healthy get out of a car they had just parked in the spot for disabled people or seen somebody on a mobility scooter park outside and walk into the shop? If you are anything like I was before I fell ill, you might think these people are faking and milking the system for benefits and attention, but you'd be wrong, just like I was!

This week is Invisible Disabilities Week. An annual awareness campaign where patients and activists share their knowledge and experience of life with invisible illness and disability. In 2015 I became severely ill with an invisible chronic illness. Before that, I was very judgemental about others when it came to illness and disability.

I believed that if people ate healthy, did exercise and avoided cigarettes, drugs and alcohol that they'd not get sick and that wheelchairs were for people who couldn't walk - the real issue was that I was simply ignorant of the realities of chronic illness and invisible disabilities. I just didn't know any better.

Chronic illness has completely turned my life and the lives of my whole family upside down, restricting me to my house and often my bed for years, but if you ever saw me outside, you'd think I was still completely healthy because my condition doesn't cause any physical deformities and cannot be detected visually. I have an invisible disability.

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How To Have ME Successfully

How To Have ME Successfully, How To cope with chronic illness, Chronically Hopeful

I came across this fantastic list of guidelines for how to live successfully with ME and just had to share it. So here they are, the 11 Rules For Having ME Successfully:

* Do not consider having M.E. unless you have a downstairs toilet.

* In order to have M.E. successfully you should acquire a cleaner, gardener, cook and a general handyman. If this is impossible, you should find a rich, devoted, non-talkative partner with few outside interests.

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Living With Multiple Chronic Illnesses – A Day In The Life Of Laura

Interview Day In My Life, multiple illnesses, BLOG
This entry is part 3 of 3 in the series A Day In My Life

In this interview series we feature the stories of chronic illness warriors around the world, we shine a light on various chronic illnesses and the amazing humans who deal with them daily. The aim is to raise awareness as well as celebrate the ways in which our fellow warriors overcome the limits placed on them.

Today I have the privilege of sharing Laura Morningstar's A Day In My Life interview here on Chronically Hopeful. Laura is a warrior who battles against multiple chronic illnesses daily. She has a lovely blog where she writes about health and fitness, books, family, music and more. 

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Reassessing My Condition, Setting Realistic Goals

Time to reassess my condition ME cfs, ChronicallyHopeful

It's time for another personal update. Time to reassess and set realistic goals. This month has been so much harder than I anticipated. Somehow I imagined that summer would bring better health and more energy along with sunnier days and warmer temperatures, but it hasn't really. I have spent so much time in bed!

Despite this, there have been some exciting things happening here. Exciting for me anyway, not sure anybody else would define it as such! Haha... 

  • I got new glasses and prescription sunglasses (or was that in May?)
  • I got back into painting after a month off (slowly but surely...)
  • I made a few crafty things while in bed, to brighten my room (will show off soon!)
  • My parents bought us a bunch more mini cacti which I love! (see photos below)

There are many little things that have brought a smile to my heart even though I have been quite weak and flaring lately. It's important to focus on and cherish those little blessings that we so often overlook in the chaos of everyday life. Cultivating an attitude of gratitude. It really makes things easier to handle even if it will never cure our ills or heal our pain, it can certainly make life more pleasant!

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