Tag Archives for " Chronic Illness "

Living With Severe ME/CFS, Who Am I Now?

Living with severe ME/cfs, Who am I now?

Who am I? it is important to reflect and decide who you are in life, your dreams and goals, your passion and purpose. But when you are diagnosed with a severe chronic illness it can become a bit blurry.

When you can no longer do the job or hobbies you used to do or think and learn and read the way you used to, it can seem like all those plans you had for your life are a distant memory, an impossibility...

The truth is that although things are very different now, it's still possible to find joy and meaning in every day and even discover or fulfil your purpose.

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A Community for ME/CFS Bloggers and Patients

Join the ME CFS Community, ChronicallyHopeful #MEcfs #pwME #SupportGroup

When I was first diagnosed with ME/CFS, I felt lost. Chronic Fatigue Syndrome was a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created an ME/CFS community online.

It consists of a few places on social media where bloggers, vloggers and other content creators with ME/CFS (and their carers) can share their content to help support the ME/CFS community better.

My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support and resources available to them. 

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Update: When Intention, Creativity and Chronic Illness Collide

When intention, creativity and chronic illness collide, BLOG

This month has been quite productive! I can't believe it's almost gone already. I'm once again taking part in this thought-provoking monthly link-up with Sheryl from A Chronic Voice. I love the prompts she comes up with each month - they really force me to consider things I might not otherwise think about and perhaps, in a way, that helps to keep me focused and accountable too. This month's prompts are:

  1. Adapting - to intentional rest and fasting
  2. Practicing - watercolour blending
  3. Realising - it's hard to stick to a schedule
  4. Celebrating - a year since my parents moved to the UK
  5. Inviting - other chronic illness warriors to share their story
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How I overcome insomnia

How I overcame insomnia BLOG

When I first got ME/CFS, I was so utterly exhausted, I slept many hours a day and I slept at night too. Later I was introduced to one of ME's most horrible symptoms: insomnia. I know the frustration and despair that comes from not getting sleep for nights on end, so in this post I will explain how I overcome insomnia whenever it creeps back into my life.

It's quite ironic that people think having ME/CFS means we sleep all day when really we're just utterly exhausted, mentally and physically drained, but unable to sleep, especially at night.

I found myself nodding off in the day, trying hard to stay awake, and then at night when it's finally okay to go to sleep, my body and mind are wide awake and in no mood for rest, buzzing and restless, despite still feeling utterly wrecked.

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