Tag Archives for " Chronic Illness "

Reassessing My Condition, Setting Realistic Goals

Time to reassess my condition ME cfs, ChronicallyHopeful

It's time for another personal update. Time to reassess and set realistic goals. This month has been so much harder than I anticipated. Somehow I imagined that summer would bring better health and more energy along with sunnier days and warmer temperatures, but it hasn't really. I have spent so much time in bed!

Despite this, there have been some exciting things happening here. Exciting for me anyway, not sure anybody else would define it as such! Haha... 

  • I got new glasses and prescription sunglasses (or was that in May?)
  • I got back into painting after a month off (slowly but surely...)
  • I made a few crafty things while in bed, to brighten my room (will show off soon!)
  • My parents bought us a bunch more mini cacti which I love! (see photos below)

There are many little things that have brought a smile to my heart even though I have been quite weak and flaring lately. It's important to focus on and cherish those little blessings that we so often overlook in the chaos of everyday life. Cultivating an attitude of gratitude. It really makes things easier to handle even if it will never cure our ills or heal our pain, it can certainly make life more pleasant!

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Bullet Journal – June Layout And Mid-Year Flip Through

Mid-year Bullet Journal flip-through, Chronically Hopeful Blog

As we head into a new month I am excited to show you my new bullet journal layout for June! I'll also share more detail about my symptom and mood tracker as well as a layout comparison with previous months.

I cannot believe we are already half-way through 2018, time is just racing by so fast. I only started this year's journal in March, so I don't have 6 months of journal updates to show you, but I will share the 4 months I have done so you can see how my journal has evolved over time.

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Living With Severe ME/CFS, Who Am I Now?

Living with severe ME/cfs, Who am I now?

Who am I? it is important to reflect and decide who you are in life, your dreams and goals, your passion and purpose. But when you are diagnosed with a severe chronic illness it can become a bit blurry.

When you can no longer do the job or hobbies you used to do or think and learn and read the way you used to, it can seem like all those plans you had for your life are a distant memory, an impossibility...

The truth is that although things are very different now, it's still possible to find joy and meaning in every day and even discover or fulfil your purpose.

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A Community for ME/CFS Bloggers and Patients

Join the ME CFS Community, ChronicallyHopeful #MEcfs #pwME #SupportGroup

When I was first diagnosed with ME/CFS, I felt lost. Chronic Fatigue Syndrome was a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created an ME/CFS community online.

It consists of a few places on social media where bloggers, vloggers and other content creators with ME/CFS (and their carers) can share their content to help support the ME/CFS community better.

My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support and resources available to them. 

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