Tag Archives for " Chronic Illness "

Reflecting, Aiming, Expanding, Focusing, Refreshing

Jan 2018 Reflecting Aiming Expanding Focusing Refreshing BLOG

I'm so happy to finally be taking part in A Chronic Voice's monthly link-up! I have been silently following along from the shadows for months, then last month I finally wrote the post, but of course I waited till the very last day and actually missed the deadline by 4 hours because Sheryl works on Singapore time. 

This time I'm doing a bit better, I am writing this post with 6 days to spare. Wow, I must say I am impressed with myself. I am trying hard to get into a good and productive as can be routine, but before I delve into all that, here are this month's prompts:

  1. Reflecting (on the year that's passed)
  2. Aiming (to get out more)
  3. Expanding (my social media presence)
  4. Focusing (on making more art)
  5. Refreshing (my soul)
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Thoughts On Needing A Wheelchair At Age 35

Needing a wheelchair at 35, ChronicallyHopeful

A year ago today I got my wheelchair! I was almost completely bedridden at the time. Walking just a few steps every hour or two just to keep circulation and muscles alive was a chore.

As a family we were house-sitting in the Lake District at the time. It was a long term arrangement, so was kind of our home away from home, but I had been confined to an upstairs bedroom and was unable to get out to see the countryside around me.

I would enjoy, for a few minutes, watching the birds at the feeders outside my window and the gorgeous orchids that adorned every windowsill. Although it was a freezing cold winter, I longed to go out and explore.

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ME/CFS Awareness, 10 Jan 2018

ME Awareness Hour

Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated - multiple times, in the dark with sunglasses on, my phone's screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time.

This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night's insomnia caught up with me and my body was flooded with pain in every muscle and every bone.

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My First Outing in 5 Months

First outing in 5 months BLOG

I am so happy to have visited the beautiful Lake District this holiday! As anybody with a chronic illness can tell you, holidays are a stressful time that we often dread. With many more people around, an increase in noise, activity and an abundant selection of unhealthy food choices, it is inevitable that we will experience an increase in unpleasant symptoms and will at some point need to isolate ourselves in order to rest and recover.

I am fortunate to have a very considerate and understanding family who keep noise levels low, TV off most of the time and serve me like royalty so that I don’t have to exert the little energy I have. It is frustrating when you want to join in and help others, but are bound by your condition to sit still and rest for much of your day.

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December 2017 Chronic Voice Blog Link-up

Blog Link-up Dec

As this year draws to an end, I have decided to start something new here on the blog.  One of my favourite parts of blogging is taking part in link-ups or blog parties.

If you’ve never heard of them, they are basically the virtual equivalent of a meet-up in a coffee shop with other bloggers online. Usually hosted by one or more bloggers, it is a collection of links, which are really invitations, to come visit other blogs who all have something in common; it could be a hobby, the focus or niche of their blogs, or the fact that they are parents that connects these blogs.

It’s a great way to find new blogs to follow and make new connections with other bloggers as well as possibly gaining a few new readers yourself.  There are usually questions, prompts or a theme to help guide the participants.

The link-up or blog party is usually run on a regularly recurring basis, either every week or month and sometimes there will even be seasonal ones! The prompts for this month’s one aimed at bloggers with chronic illness are:

  1. Recovering
  2. Shopping
  3. Enjoying
  4. Reminiscing
  5. Preparing

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