Sometimes you don't notice the weight you're carrying until you let it go. This is often such a hard truth to accept, but letting go of that control we try so hard to hold onto can actually be very liberating! There really is freedom in letting go.
When living with a chronic illness, whether it’s a physiological or psychological condition, it is common to start doubting yourself. Your confidence dwindles as you lose the ability to function the way you once did. You might start to feel useless, helpless and hopeless, but there is so much you can still offer the world!
You have overcome so much already. Every day you wake up is a new victory and a clean page in your story on which you can write the next chapter. You’re brave and strong. Things that healthy people take for granted; their mental clarity, their energy, their physical strength – you fight for every little bit of it that you can find just to get through each day!Continue reading
Sometimes it’s hard to accept that when you’re living with a chronic illness, people fall away, but it is something that commonly happens after a period of time, and it might even be beneficial.
Initially, once people are made aware of your struggles, you might have an outpouring of support and practical help from many around you, but over time, when you don’t improve, most people will inevitably drift away as they are unable to make taking care of you a permanent fixture in their lives. They have their own lives to navigate.
When you’re no longer in the same circles, no longer going out, no longer socialising, you’re no longer in their life unless an effort is consciously made on both sides to stay in touch and make things happen. I have seen this happen over and over again with so many people who fall ill. That’s why I don’t believe you should take it personally, it’s just a fact of life – only a precious few will remain, if you’re lucky.Continue reading
As the new month starts, I am filled with joy and anticipation. It's been two years since I fell ill, that's two whole years in bed with ME/CFS, but I am celebrating. My sister says remembering the very day I got sick is like a memorial, something sad and depressing, but it's not like that for me!
I have a very different perspective. I praise God that I have never felt hopeless or depressed by my current circumstances. I have never suffered resentment and anger at having lost the very full life I had built here in London.
I love new beginnings, and for me, every new month is a new beginning. So is each new week, really. I enjoy celebrating the ordinary! In this post I want to share some very personal reflections as I look back at the road I've travelled and celebrate this new beginning.
Yesterday marked 2 years since I have been able to do any form of exercise that wasn't just a short walk. My last workout was actually a bike ride. It was Easter break and I was visiting my family in Italy.
Today marks 18 months of this Chronic Fatigue Syndrome. At least 18 months in this severe housebound state, we imagine I might have had it milder for at least 6 months before this. As a Christian, I find myself reflecting on the role of my faith through chronic illness.
I don't believe God made me ill or that He is testing me. I don't think God works like that. In my view, that would contradict His character of Love. Many people who suffer from long term illness and disability question God's love and wonder why they are so unwell. In this post I want to address those questions.