Tag Archives for " ME/CFS "

Health And Fitness: A Week Before I Fell Ill With Severe Chronic Illness

Title reads Health and fitness the week I fell ill with severe ME. Photo of Char and friends walking in a park wearing pink fluffy bunny ears and carrying green balloons. By Chronically Hopeful

​Ironically my life was super busy and active during the weeks and months ​before the onset of what lead to my Chronic Fatigue Syndrome diagnosis. There seems to be the general belief that we are tired or lazy or that we have some sort of unhealthy aversion or fear of exercise, but nothing could be further from the truth!

As we move towards ME Awareness month (May), I'll be sharing some of my health and fitness ​habits and memories from the months before I fell ill. I hope that this will help to dispell the idea that we are lazy and afraid of exercise and help people understand that the opposite is actually true. Now I know that sometimes healthy eating and exercise simply doesn't cure everything.

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How Can I Be Physically Disabled And Not Depressed?

A girl sitting on her bed holding a cup of tea, resting her head on her knees. Title reads, I'm okay, seriously. How can I be physically disabled and not depressed? By Chronically hopeful

I'd like to speak about my own mental health. I feel like some people misunderstand my condition, so I wanted to address the matter directly. Yes, I have a severely debilitating illness. Yes, I practically live in bed. No, I cannot go out and I cannot have visitors coming over without paying for it​, but I am okay. Seriously.

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Photophobia: 6 Ways To Cope With Light Sensitivity

In a dark room a hand is held up to block the light that is shining in. Title reads, Photophobia in ME and CFS. 20 Patients share their experience.

​Have you ever experienced that moment of intense pain in your eyes and head when you've opened the curtains on a bright and sunny day? Anybody who has experienced a migraine or even a hangover would likely understand what I'm talking about too. Although photophobia or light sensitivity ​might ​seem quite common among ​the general population, it can be quite debilitating when combined with a chronic illness like ME.

Most people struggle with glare and direct sunlight in their eyes, but what you might not realise is that some people with ​chronic illness actually cannot tolerate any light at all and might have to spend hours, days, weeks or even months in the dark - and it's not just pain in the eyes that they're avoiding!

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Moving To A New House – Plus 12 Ways To Make Moving Easier If You’re Chronically Ill

A pile of boxes stacked up next to a radiator. Title reads Moving to a new house, plus 12 tips to make moving easier

This summer was a season of great change for our family. After little more than a year in our flat, my dad had found us a lovely big house with a garden and we were packing again. Moving house can be quite stressful for the healthiest of people, so it can really be a nightmare for somebody with a severe chronic illness like ME.

We actually loved our flat, it was enough for my sister and I, it ticked most of the boxes when we were house hunting a year ago, but there wasn't room for the parents when they came over, and it was starting to get crowded.

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Where To Find ME Awareness Pictures

blue awareness ribbon with caption, ME Awareness Pictures, Myalgic Encephalomyelitis

Have you been searching for graphics to easily share with friends and family what Myalgic Encephalomyelitis is really like? Would you like to share relevant and informative infographics about ME? Find pictures that will give visual impact and get the point across without wasting your energy and time explaining? I'm so excited to introduce ME Awareness Pictures to you today! 

ME Awareness Pictures is a community resource where we can collect and share ME awareness pictures from all over the web. In this post I will tell you where you can find them and even how you can help to expand the collection. There is also an opportunity to be a featured ME warrior!

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