Tag Archives for " ME/CFS "

My Chronic Illness Story And How You Can Help

Title reads My MEcfs Story, How it all started, pin by Chronically Hopeful, Picture of Char lying in bed under blankets, shes in an ME flare wearing sunglasses and headphones

​May is ME Awareness Month and once again I am participating in the ​virtual campaigns online to help raise awareness of this life-destroying illness called Myalgic Encephalomyelitis. Today I'm sharing my story. How did I become so terribly ill and housebound? How did it happen? When? And how long did I have to wait for a diagnosis? Here's my ME story:

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Get Your Own Personalised Millions Missing Poster For ME Awareness Month

#MillionsMissing Personalised poster for ME awareness. How to get your own millions missing poster

May is #MEAwarenessMonth​ and I thought, since many of us cannot go to the live #MillionsMissing events in person, I'd like to help my fellow people with ME (pwME) to raise awareness online​ by offering you personalised Millions Missing posters​!

​I know ​you ​are an incredibly creative and driven group of people, but I also know that many are too ill to use their skills and talents as they would like to and cognitive dysfunction as well as physical incapacity often makes ​using a device or learning new things very difficult. So I hope this free community service will be helpful to you. ​

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Health And Fitness: A Week Before I Fell Ill With Severe Chronic Illness

Title reads Health and fitness the week I fell ill with severe ME. Photo of Char and friends walking in a park wearing pink fluffy bunny ears and carrying green balloons. By Chronically Hopeful

​Ironically my life was super busy and active during the weeks and months ​before the onset of what lead to my Chronic Fatigue Syndrome diagnosis. There seems to be the general belief that we are tired or lazy or that we have some sort of unhealthy aversion or fear of exercise, but nothing could be further from the truth!

As we move towards ME Awareness Month (May), ​I wanted to share some of my health and fitness memories from the ​week before I fell ill. I hope that this will help to dispell the idea that we are lazy and afraid of exercise and help people understand that the opposite is actually true. Now I know that ​healthy eating and exercise simply doesn't cure everything.

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How Can I Be Physically Disabled And Not Depressed?

A girl sitting on her bed holding a cup of tea, resting her head on her knees. Title reads, I'm okay, seriously. How can I be physically disabled and not depressed? By Chronically hopeful

I'd like to speak about my own mental health. I feel like some people misunderstand my condition, so I wanted to address the matter directly. Yes, I have a severely debilitating illness. Yes, I practically live in bed. No, I cannot go out and I cannot have visitors coming over without paying for it​, but I am okay. Seriously.

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Photophobia: 6 Ways To Cope With Light Sensitivity

In a dark room a hand is held up to block the light that is shining in. Title reads, Photophobia in ME and CFS. 20 Patients share their experience.

​Have you ever experienced that moment of intense pain in your eyes and head when you've opened the curtains on a bright and sunny day? Anybody who has experienced a migraine or even a hangover would likely understand what I'm talking about too. Although photophobia or light sensitivity ​might ​seem quite common among ​the general population, it can be quite debilitating when combined with a chronic illness like ME.

Most people struggle with glare and direct sunlight in their eyes, but what you might not realise is that some people with ​chronic illness actually cannot tolerate any light at all and might have to spend hours, days, weeks or even months in the dark - and it's not just pain in the eyes that they're avoiding!

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