In 2017 I created the "Effects of ME" campaign for ME Awareness month in May. Quotes were collected from patients about how ME affects their daily life and I then used those quotes anonymously to create impactful graphics which the community could share during the online awareness campaigns.
The campaign continues to run to this day, with new quotes trickling in all the time. The graphics have been very well received in the M.E. community and continue to be shared widely. People relate to the quotes and it makes expressing their experience so much easier. I hope you will find this collection useful for your own advocacy efforts too.
As the new month starts, I am filled with joy and anticipation. It's been two years since I fell ill, that's two whole years in bed with ME/CFS, but I am celebrating. My sister says remembering the very day I got sick is like a memorial, something sad and depressing, but it's not like that for me!
I have a very different perspective. I praise God that I have never felt hopeless or depressed by my current circumstances. I have never suffered resentment and anger at having lost the very full life I had built here in London.
I love new beginnings, and for me, every new month is a new beginning. So is each new week, really. I enjoy celebrating the ordinary! In this post I want to share some very personal reflections as I look back at the road I've travelled and celebrate this new beginning.
Yesterday marked 2 years since I have been able to do any form of exercise that wasn't just a short walk. My last workout was actually a bike ride. It was Easter break and I was visiting my family in Italy.
I'm happy to report that there have been some welcome improvements after a month on this LCHF (Low Carb, High Fat) diet! As discussed in a previous post, I started this journey into a Paleo-ketogenic lifestyle in February 2017 in an attempt to help improve my current condition. I have quite severe ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) which has left me bedridden about 98% of the time.
Things were looking quite bleak a few weeks ago, I was getting progressively worse, and then out of the blue on day 33, I felt like somebody had flipped a switch and I suddenly could participate in life again!
Having Chronic Fatigue Syndrome, or any other chronic illness for that matter, can be extremely draining and leave you without much energy to do even the most basic things. How do you cope when you only have enough energy to do one or two things each day?
There are a number of things I started doing (or avoiding) once I realised that I was constantly reaching beyond my limits and actually causing my flare-ups, I will share them here. I hope you will find these tips useful and relevant.
As some of you might know, I have recently started reading Dr. Sarah Myhill's book, Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis. It's a huge book, with over 400 pages, and includes so much detail about how the body works and what she believes is happening to sufferers of ME/CFS. I'm so excited about this!