Have you been searching for graphics to easily share with friends and family what Myalgic Encephalomyelitis is really like? Would you like to share relevant and informative infographics about ME? Find pictures that will give visual impact and get the point across without wasting your energy and time explaining? I'm so excited to introduce ME Awareness Pictures to you today!
ME Awareness Pictures is a community resource where we can collect and share ME awareness pictures from all over the web. In this post I will tell you where you can find them and even how you can help to expand the collection. There is also an opportunity to be a featured ME warrior!
Have you ever been out in town and seen somebody who looks perfectly healthy get out of a car they had just parked in the spot for disabled people or seen somebody on a mobility scooter park outside and walk into the shop? If you are anything like I was before I fell ill, you might think these people are faking and milking the system for benefits and attention, but you'd be wrong, just like I was!
This week is Invisible Disabilities Week. An annual awareness campaign where patients and activists share their knowledge and experience of life with invisible illness and disability. In 2015 I became severely ill with an invisible chronic illness. Before that, I was very judgemental about others when it came to illness and disability.
I believed that if people ate healthy, did exercise and avoided cigarettes, drugs and alcohol that they'd not get sick and that wheelchairs were for people who couldn't walk - the real issue was that I was simply ignorant of the realities of chronic illness and invisible disabilities. I just didn't know any better.
Chronic illness has completely turned my life and the lives of my whole family upside down, restricting me to my house and often my bed for years, but if you ever saw me outside, you'd think I was still completely healthy because my condition doesn't cause any physical deformities and cannot be detected visually. I have an invisible disability.
The main focus of this post is to show you in a step-by-step way how you can edit MEpedia. I was very happy to recently discover the MEpedia website, I think it is a wonderful way to bring the community together and make our voices heard. If you have not heard of this wonderful resource yet, do go have a look!
In a nutshell, ME-pedia.org is a knowledge base powered by the patient community. It was founded by MEAction and relies on crowd-sourcing to build an encyclopedia on the history, science and medicine of ME and CFS. Anybody can get involved and help populate the website with relevant content. Yes, even you!
That means patients, carers, charities, scientists and advocates all working together to create one huge bank of information about ME/CFS! A place where anybody can go to find answers, community and support. Brilliant!
It's time for another personal update. Time to reassess and set realistic goals. This month has been so much harder than I anticipated. Somehow I imagined that summer would bring better health and more energy along with sunnier days and warmer temperatures, but it hasn't really. I have spent so much time in bed!
Despite this, there have been some exciting things happening here. Exciting for me anyway, not sure anybody else would define it as such! Haha...
There are many little things that have brought a smile to my heart even though I have been quite weak and flaring lately. It's important to focus on and cherish those little blessings that we so often overlook in the chaos of everyday life. Cultivating an attitude of gratitude. It really makes things easier to handle even if it will never cure our ills or heal our pain, it can certainly make life more pleasant!
Welcome to my first guest post in this new series where we will explore the impact of chronic illness and disability on our daily lives. Illness can have devastating effects not only on our own lives and bodies, but also on those closest to us.
Despite this, you might be surprised to find out just how resilient and courageous people with chronic conditions are. We weren't really given a choice in the matter, we have to quickly learn to adapt in spite of harsh conditions. I hope you will enjoy this series and perhaps even learn a few tricks on how you might improve your quality of life.
Today I have the privilege of sharing Hailey Hudson's story with you.
Hailey is a 19-year-old published author who freelances as a voiceover artist and is the site coordinator at a charity that tutors refugee children.