ME/CFS Archives - Page 9 of 9 - Chronically Hopeful

Faith Notes, Personal Updates

Char enjoying the sunshine outside. She's wearing sunglasses and smiling.

Focus On The Blessings Of The Present Moment

August 24, 2016
2

Today has been amazing! Its such a gorgeous day, extremely hot and sunny. I’ve only spent short bursts outside as my skin burns in the sun today – it’s that hot! I started the day with a lovely reading session out on the patio, the sun had just come round the wall and was slowly flooding my patio with light and heat. I’ve been enjoying The Raggamuffin Gospel by Brennan Manning lately, and today’s piece was quite fitting. It was…

Life With M.E.

A long list of symptoms, title reads: my symptoms of ME/cfs in 2015. Dozens of fluctuating symptoms.

My Many Symptoms Of ME/CFS In 2015

November 18, 2015

You might be wondering why on earth I’d write about the symptoms of ME/cfs when everybody knows Chronic Fatigue Syndrome or ME is about always being tired. What most people don’t know is that this neurological illness causes dozens of unrelenting symptoms that fluctuate constantly and are quite unpredictable. The very least of these is an unfathomable exhaustion at the slightest exertion! Fatigue is the least of our worries – let me share with you the list of symptoms that…

Personal Updates

Autumn leaves on a tree. Title reads: When simple errands become overwhelming. Personal Update.

Chronic Illness: Making Simple Errands Overwhelming

November 11, 2015

When unforeseen problems force me to go out despite severe ME/cfs, simple errands can become overwhelming very quickly. I had to go out today, needed to send off some paperwork, but my printer ran out of ink, again! I needed to print off a load of sheets, so I had to take a bus to get that done at one place, then off on another bus to find a post office to send it. By the time I got to…

Personal Updates

Yellow roses in polaroid, Title on the right reads: My first 6 months housebound with MEcfs.

My First 6 Months Of ME/CFS: The Best And Worst Months Of My Life

September 30, 2015
2

Today marks the end of six months since I got the viral infection that changed my life. That gloriously sunny day in Italy on the first of April 2015. It all happened so quickly and unexpectedly, I was out cycling in the countryside one minute and in bed the next. My body reached a point of weakness and exhaustion that I’d never known before and nothing has been the same since. Today marks six months of being housebound with constantly…

Personal Updates

Clouds in a blue sky, Title reads: Assessment and diagnosis at the chronic fatigue clinic, an update on my ME/cfs journey.

My Assessment And Diagnosis At The Chronic Fatigue Clinic

September 8, 2015
6

I attended my first appointment with the Chronic Fatigue Clinic today. I finally have an official diagnosis of Chronic Fatigue Syndrome (also known as Myalgic Encephalomyelitis). At last! I was referred to the CFS clinic by my doctor about 5 months ago, but the waiting lists are long. I’ve been searching for help online in the meantime and just doing what I can to manage alone. The clinic is about 45 minutes away and requires a couple of changeovers by…

Personal Updates

Char standing in front of her desk. She has dark circles under her eyes. Title Reads: When I'm Too Weak To Eat The Food I've Prepared

When Preparing A Meal Makes You Weak

August 29, 2015

It’s been a very weak and shaky few days. Trying to live within my very low energy limits is not easy. I seem to be crashing constantly. It makes managing everyday tasks like cooking and cleaning quite difficult. When Cooking Makes You Collapse Yesterday I rested all morning then at midday I made a salad and almost collapsed, fortunately my bed is just a few steps from my kitchenette! I praise God for this tiny flat, God knew what was…

Personal Updates

A bouquet of yellow roses in a vase. Title Reads: The randomness of my symptoms, a personal update

The Randomness Of My Post Viral Symptoms

June 17, 2015
2

This week I’d say my main issue has been pain. I’d wake up in pain, in the night, and in the morning. I’ll have aches all day, toothache, headaches, migraines, stabbing pain, hip pains, light sensitivity pain… All sorts. I’d still have a bunch of other symptoms too, but overall I’d say it’s been a relatively good week anyway. A Variety Of Random Symptoms I can function in the house with pain. I read, draw, cook, eat, maybe wash some…