Tag Archives for " Post Exertional Malaise "

One of those days, again

Today is one of those days… 
I’ve overdone things this week. Went out to GP on Monday and although I was in wheelchair, it knocked me hard and I then also went into Sainsbury’s afterwards to get my meds, should have stayed in the hot car rather than going with into the busy supermarket, but the pharmacy had a delay in preparing my medication, so we thought the cooler shop would be better. 

Then the next day I somehow almost doubled my step count! Not sure how that happened, I was in the house all day. I really felt it in the evening though, so much pain… Not good. 

Last night my knees were on fire again and today I’m just drained. I didn’t even wake up until 10am! That is unusual. Silly me! I’m always too enthusiastic when I’m feeling good and then I overdo it. I’m sure a full day of complete rest will be good for my body though.

Be kind to yourself, your body works hard, listen to it, nurture and nourish it and don’t forget that rest is a vital part of life! 

No step goals today, just rest goals! 

Regardless of how weak I’m feeling, it’s a gorgeous day again, one can’t be anything but happy on a day like today! 

Hugs, Char

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Don’t Do Your Best, Do Less

Avoid the boom and bust cycle BLOG

This might seem like a strange motto for the new year, but before you decide I’ve lost the plot, let me explain: I have Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis or ME/CFS. It’s main characteristic is Post Exertional Malaise (PEM). Feeling really ill, weak and exhausted after any physical, emotional or mental exertion.

This means brushing my teeth, getting excited about a visitor coming or writing this post is exhausting and will have consequences in the form of a variety of symptoms.Continue reading

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Christmas 2016

Had a lovely quiet holiday weekend, but did enjoy my first outing in a couple of months on Christmas day. Was super blessed to have such understanding and considerate friends and that the Lord gave me just enough strength and relief to be able to really enjoy the day! Praise God!

Our friends came to pick us up and brought us back later in the evening. We got to spend a quiet and fun evening with the 2 of them in their new flat. There was a wonderful roast dinner of a Cornish Game Hen each, stuffed with an incredibly good wild rice stuffing. Green bean casserole and freshly baked bread were also on the menu, as was homemade mulled wine.

Although I’ve been in bed for the last couple of days since, today I felt quite good generally. Just my hips and coccyx tried to kill me each time I stood up. So much pain! I washed a few dishes this evening and tried to make a rice salad for dinner, had to stop and get back to bed in the middle as I got so weak and dizzy and felt I would collapse… Of course my sister finished off the dinner for us. So glad to have her here!

Then by 9-ish pm I was utterly exhausted again and had to lie down. I think I managed to fall asleep by around ten and slept for only an hour. Woke with the left side of my body numb and tingling… Like Pins and needles on steroids. Left arm and leg. Dead. So my sis suggested I sit up in bed to help the blood flow back to my limbs, it did help, and here I am at 2 am still awake…

Last night I also lost feeling in my left leg. I also had to sleep by ten and slept until ten this morning! Struggling to wake up in the mornings, not like me to sleep so late in the day. My mind has been all over the place too. Hard to form sentences at times, I’m forgetting words, or what I’m saying mid-sentence, it’s frustrating. Safe to say I’m in some sort of flare within a flare.

Spending my time in bed colouring, surfing Internet, Netflix and daydreaming… Also known as recovery mode or what I like to call vegging. Minimum exertion activities. And by minimum exertion I mean activities that require little to no brain or body exertion! Typing is exhausting. And I’m getting sleepy again too… By the way, I haven’t showered in days, so I haven’t taken any new photos in a while.  I’m hoping tomorrow can be a shower day!
Sweet dreams all. xx

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When unforseen problems force me to go out despite severe ME/CFS

autumn leaves

Had to go out today, needed to send off some paperwork, but my printer ran out of ink again – just changed it about two weeks ago! I needed to print off a load of sheets, so I had to take a bus to get that done at one place, then off on another bus to find a post office to send it.

By the time I got to post office my legs were not working properly anymore, it was like I was wading through lead or mercury, let’s just say Nutella (have to keep things positive!). I had shooting pains all over the place, so was reduced to waddling at snails pace (seriously) at one point I thought I wouldn’t make it across the road, but the bus driver was patient and waited for me to get safely out of his/her way.

Been lying in bed for hours now, but my body is done. I feel like I’ve done an hour of intense cardio. You know how you feel when the pain from your first workout in months sets in the day after and then you have to work out again on that very stiff and sore second day? That’s how I feel. Nothing like aching jelly legs to remind you why you never leave the house alone anymore! I did buy some chocolate en route, so it wasn’t all bad.Continue reading

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