Blue forget-me-not flowers on the left. Title reads Day In My Life with undiagnosed chronic illness, Interview with Jodie, ChronicallyHopeful

Living With Undiagnosed Illness – A Day In The Life Of Jodie

In this interview series we highlight various chronic illnesses and the amazing warriors who deal with them daily. My aim is to raise awareness as well as celebrate the many ways in which our fellow warriors overcome the limits illness and disability has placed on them. Today I have the privilege of sharing Jodie‘s “A Day In My Life” interview here on Chronically Hopeful. Jodie has fought hard for years to get a diagnosis – a battle that many chronic…

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Laura has curly red hair, glasses and is smiling. Title reads A Day In My Life with multiple chronic illnesses, interview with Laura Morningstar, by Chronically Hopeful

Living With Multiple Chronic Illnesses – A Day In The Life Of Laura

In this interview series we feature the stories of chronic illness warriors around the world, we shine a light on various chronic illnesses and the amazing humans who deal with them daily. The aim is to raise awareness as well as celebrate the ways in which our fellow warriors overcome the limits placed on them. Today I have the privilege of sharing Laura Morningstar‘s A Day In My Life interview here on Chronically Hopeful. Laura is a warrior who battles…

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a field of forget-me-not flowers

ME/CFS Awareness Pictures To Share, Part 5

Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our personal experiences and more. Making new connections and supporting each other. I often join in and share various ME awareness pictures during that hour. ​Below you will find the graphics I shared during the last ME Awareness Hour. I hope this will help you understand what life is like with ME If you have learned…

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ME Awareness Hour

ME/CFS Awareness, 10 Jan 2018

Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated – multiple times, in the dark with sunglasses on, my phone’s screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time. This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night’s insomnia caught up with…

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Gift Guide, What to buy for chronically ill friend, ChronicallyHopeful

Gift guide: what to buy for your chronically ill friends, part 3

I’m so excited to share this third part of my spoonie gift guide, I hope you are enjoying this series as much as I am! ​These gifts would be great for birthday presents or a house warming gift or even Christmas too. This series will continue to grow as I think of other cool gift ideas, watch this space!  If you’ve missed any of my other gift guides, you can find them all here. Happy browsing! ​Disability Aids To Help…

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colourful flouting balloons with title, Gift Guide, what to buy for your Chronically Ill Friends

Gift guide: what to buy for your chronically ill friends, part 2

I know many people find such joy in shopping for gifts. They start shopping months in advance and they buy the most thoughtful, personalised gifts anybody would love, that’s not me. I’m so unorganised!  If you’re anything like me, you’ve waited till the last minute to do your gift shopping. Whether it’s for a birthday, Christmas or a house warming gift, I just cannot get it done unless it’s right around the corner and then I might just give up…

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A bowl of colourful confetti spilled on a wooden table. Title says, Gift guide, what to buy for your chronically ill friends.

Gift Guide: What To Buy For Your Chronically Ill Friends, Part 1

It can be quite tricky deciding what to buy your friends with chronic illness because of all the limitations and intolerances we often have. What would be useful and not harmful in their condition? There are many lists out there, and they’re all slightly different depending on the condition they’re tailored for, so I’m making a list of the things I would have loved to receive over the years of being housebound. I have chronic fatigue and chronic pain as…

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Feet in a bath tub, water moving. Title reads Shakes and Tremors with ME/CFS. Myalgic Encephalomyeitis causes visible body tremors.

Shaking And Trembling With ME/CFS

One of the most frustrating and debilitating symptoms of ME/CFS is the shaking and trembling after minimal exertion. Something that healthy people might get after a strenuous exercise. I was lying in the bath relaxing last night when I felt the shakes coming on. This is what I get for walking just a few steps to the bathroom and getting undressed. I started feeling a bit of the internal tremors at that point, I imagined it might come to the…

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ME Awareness Hour

ME/CFS Awareness, 15 Nov 2017

As you might know by now, I spend every Wednesday evening on Twitter, along with many other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. We tweet about what life is like with this life draining illness. We tweet and retweet for an hour, hoping to to make our hashtags trend on the front page of Twitter so we can get the most attention possible. I hope you will join us, even…

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ME Awareness Hour

ME/CFS Awareness, 8 Nov 2017

I have a date tonight – with Twitter! Every Wednesday evening I spend an hour on Twitter, along with a bunch of other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. You can join in the fun too, we’d love to have more advocates taking part! We post memes, links to research or media coverage, personal experience, all sorts of things that will help shed some light on what life is like…

Read MoreME/CFS Awareness, 8 Nov 2017