When I was first diagnosed with Chronic Fatigue Syndrome, I felt lost. It's a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created a community online for people with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) and their carers.
It consists of a few places on social media where people with ME or CFS and their carers can share relevent content to help support the ME/CFS community.
My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support and resources available to them.