a field of forget-me-not flowers

ME/CFS Awareness Pictures To Share, Part 5

Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our personal experiences and more. Making new connections and supporting each other. I often join in and share various ME awareness pictures during that hour. ​Below you will find the graphics I shared during the last ME Awareness Hour. I hope this will help you understand what life is like with ME If you have learned…

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ME Awareness Hour

ME/CFS Awareness, 10 Jan 2018

Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated – multiple times, in the dark with sunglasses on, my phone’s screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time. This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night’s insomnia caught up with…

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Gift Guide, What to buy for chronically ill friend, ChronicallyHopeful

Gift guide: what to buy for your chronically ill friends, part 3

I’m so excited to share this third part of my spoonie gift guide, I hope you are enjoying this series as much as I am! ​These gifts would be great for birthday presents or a house warming gift or even Christmas too. This series will continue to grow as I think of other cool gift ideas, watch this space!  If you’ve missed any of my other gift guides, you can find them all here. Happy browsing! ​Disability Aids To Help…

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colourful flouting balloons with title, Gift Guide, what to buy for your Chronically Ill Friends

Gift guide: what to buy for your chronically ill friends, part 2

I know many people find such joy in shopping for gifts. They start shopping months in advance and they buy the most thoughtful, personalised gifts anybody would love, that’s not me. I’m so unorganised!  If you’re anything like me, you’ve waited till the last minute to do your gift shopping. Whether it’s for a birthday, Christmas or a house warming gift, I just cannot get it done unless it’s right around the corner and then I might just give up…

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A bowl of colourful confetti spilled on a wooden table. Title says, Gift guide, what to buy for your chronically ill friends.

Gift Guide: What To Buy For Your Chronically Ill Friends, Part 1

It can be quite tricky deciding what to buy your friends with chronic illness because of all the limitations and intolerances we often have. What would be useful and not harmful in their condition? There are many lists out there, and they’re all slightly different depending on the condition they’re tailored for, so I’m making a list of the things I would have loved to receive over the years of being housebound. I have chronic fatigue and chronic pain as…

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ME Awareness Hour

ME/CFS Awareness, 15 Nov 2017

As you might know by now, I spend every Wednesday evening on Twitter, along with many other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. We tweet about what life is like with this life draining illness. We tweet and retweet for an hour, hoping to to make our hashtags trend on the front page of Twitter so we can get the most attention possible. I hope you will join us, even…

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ME Awareness Hour

ME/CFS Awareness, 8 Nov 2017

I have a date tonight – with Twitter! Every Wednesday evening I spend an hour on Twitter, along with a bunch of other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. You can join in the fun too, we’d love to have more advocates taking part! We post memes, links to research or media coverage, personal experience, all sorts of things that will help shed some light on what life is like…

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Update: current ME/CFS flare is slowing me down

It’s hard to deal with these unexpected flares or relapses that seem to come out of the blue. You end up asking yourself a million questions. What did I do wrong? Did I eat the wrong thing? What did I do yesterday or the day before to cause this much pain? Why am I so weak today, did I overdo it this week? Was the TV too loud? Did I miss the signs and push too hard? Did I get…

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A woman looking off to the side, she's sad and demotivated

You’ve Got This: You’re A Warrior And A Survivor

When living with a chronic illness, whether it’s a physiological or psychological condition, it is common to start doubting yourself. Your confidence dwindles as you lose the ability to function the way you once did. You might start to feel useless, helpless and hopeless, but there is so much you can still offer the world, don’t let doubt and negative self-talk steal your joy and faith! Note: You may freely download and share the following graphics on social media or…

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a woman sitting alone on a windowsill, looking lonely. Title reads Isolation, why people drift away when you're chronically ill and why this might be a good thing

Isolation: Why Do People Drift Away?

Sometimes it’s hard to accept that when you’re living with a chronic illness, people fall away, but it is something that commonly happens after a period of time, and it might even be beneficial. Initially, once people are made aware of your struggles, you might have an outpouring of support and practical help from many around you, but over time, when you don’t improve, most people will inevitably drift away as they are unable to make taking care of you…

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