Category: M.E. Advocacy
My Many Symptoms Of ME/CFS In 2015
You might be wondering why on earth I'd write about the symptoms of ME/cfs when everybody knows Chronic Fatigue Syndrome or ME is about always ... Continue
International Day of People with Disabilities: Not All Disabilities Are Visible
December 3 is International Day of People with Disabilities. It's a great opportunity to raise awareness and make some noise all over the internet (and ... Continue
M.E. Awareness Campaign: The Effects Of Myalgic Encephalomyelitis
In 2017 I created the "Effects of ME" campaign for ME Awareness month in May. Quotes were collected from patients about how ME affects their ... Continue
12 Tips To Help You Adjust After An ME, CFS Or PVFS Diagnosis
I am regularly contacted by people who have recently been diagnosed with Post Viral Fatigue or Chronic Fatigue Syndrome. They are often scared, worried and ... Continue
Why I Avoid Emergency Services And My Top Tips For Coping At Home
I often see people with ME/CFS writing about how they have spent hours in the emergency room only to be completely disappointed, misunderstood or even ... Continue
ME/CFS Awareness Pictures To Share, Part 1
Ever wondered where to find ME awareness pictures to share? Myalgic Encephalomyelitis is a very misunderstood illness, so my aim is to empower people with ... Continue
ME/CFS flares: what do they feel like and how to cope
People with ME all suffer at varying degrees, we cannot compare our flares to somebody else’s. What one considers an ME/CFS flare another considers just ... Continue
ME/CFS Awareness, 8 Nov 2017
I have a date tonight – with Twitter! Every Wednesday evening I spend an hour on Twitter, along with a bunch of other ME/CFS warriors, ... Continue
ME/CFS Awareness, 15 Nov 2017
As you might know by now, I spend every Wednesday evening on Twitter, along with many other ME/CFS warriors, taking part in ME Awareness Hour. It ... Continue
MAIMES: Medical Abuse in ME Sufferers
As anybody with ME/CFS and their carers will know, many doctors and health care practitioners still treat ME as a psychological disorder, when in fact ... Continue
Shaking And Trembling With ME/CFS
One of the most frustrating and debilitating symptoms of ME/CFS is the shaking and trembling after minimal exertion. Something that healthy people might get after ... Continue
ME/CFS Awareness, 10 Jan 2018
Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated - multiple times, in the dark with sunglasses on, my phone's screen ... Continue
ME/CFS Awareness Pictures To Share, Part 5
Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our ... Continue
Imagine… A Day in The Life of ME
It might surprise you how often people with chronic illness are asked what they do with all the free time they have at home. I ... Continue
How I overcome insomnia
When I first got ME/CFS, I was so utterly exhausted, I slept many hours a day and I slept at night too. Later I was ... Continue
A Community for ME/CFS Bloggers and Patients
When I was first diagnosed with Chronic Fatigue Syndrome, I felt lost. It's a condition I had never heard of before and my doctor didn't ... Continue
Advocacy And Fundraising Ideas And Resources
What Is M.E? How To Get By Advocacy Tools M.E. Directory We in the ME community are so grateful that you are interested in supporting ... Continue
Living With Severe ME/CFS, Who Am I Now?
Who am I? When living with severe chronic illness it can be easy to feel like you've lost your identity. When experiencing a loss of ... Continue
How To Have ME Successfully
I came across this fantastic list of guidelines for how to live successfully with Myalgic Encephalomyelitis and just had to share it. It's so refreshing ... Continue
Where To Find ME Awareness Pictures
Have you been searching for graphics to easily share with friends and family what Myalgic Encephalomyelitis is really like? Would you like to share relevant ... Continue
Photophobia: 6 Ways To Cope With Light Sensitivity
Have you ever experienced that moment of intense pain in your eyes and head when you've opened the curtains on a bright and sunny day? ... Continue
Get Your Own Personalised Millions Missing Poster For ME Awareness Month
May is #MEAwarenessMonth and I thought, since many of us cannot go to the live #MillionsMissing events in person, I'd like to help my fellow ... Continue
My Chronic Illness Story: How I Became Housebound With Severe M.E.
May is ME Awareness Month and once again I am participating in the virtual campaigns online to help raise awareness of this life-destroying illness called ... Continue
A Poem About Life With Severe Myalgic Encephalomyelitis
August 8 is Severe M.E. Awareness Day. A day to give a voice to the millions of people around the world who are living in ... Continue
This Week’s M.E. News – Week 33, 2019
Grab a cuppa and get comfy - it's time for some weekend reading! I've gathered together a collection of some of this week's M.E. news ... Continue
You Might Be An M.E. Sufferer If… (Part 1) Guest Post By David A Graham
I can't read this without a smile on my face and shaking my head in agreement. In this three-part series our guest author, David Graham, ... Continue
This Week’s M.E. News – Week 34, 2019
It's that time of the week again! Pull up a chair and grab some snacks, we've got lots of exciting news and interesting blog updates ... Continue
This Week’s M.E. News – Week 35, 2019
It's time for this week's M.E. news and blog updates from the community. So get a nice cup of tea or coffee and make yourself ... Continue
This Week’s M.E. News – Week 36, 2019
I'm running a bit late this week, but here's a summary of the latest news on Myalgic Encephalomyelitis as well as blog updates from our ... Continue
Help Fund Vital Services For People With M.E. In Africa Through Char’s Birthday Fundraiser
Did you know that with a small donation you could help fund vital support for people with Myalgic Encephalomyelitis in Africa? It's true! My birthday ... Continue
This Week’s M.E. News – Week 37, 2019
It's time for some weekend reading! Curl up with a cuppa and let's catch up on some community news. I've summarised this week's M.E. news ... Continue
Frequently Asked Questions About Myalgic Encephalomyelitis
As this community grows I get more and more questions about certain words or acronyms I use in my writing and graphics, so I thought ... Continue
This Week’s M.E. News – Week 38, 2019
It's that time of the week again - grab some snacks, make yourself comfortable, and let's catch up! I've summarised the latest news articles and ... Continue
This Week’s M.E. News – Week 39, 2019
Hello lovelies! Scroll down for this week's M.E. news highlights and the latest blog updates from warriors in our community summarised just for you. Please ... Continue
This Week’s M.E. News – Week 40, 2019
It's that time of the week again! M.E. news headlines and blog updates from the community. There's been a lot of buzz this week with ... Continue
This Week’s M.E. News – Week 42, 2019
Time to catch up on the latest M.E. news headlines and blog updates from the community. So grab a cuppa and get comfy, there are ... Continue
This Week’s M.E. News – Week 43, 2019
Brrr... It's been so cold here in the UK this week. It's the perfect weather to wrap up in a soft blanket with a hot ... Continue
This Week’s M.E. News – Week 3, 2020
After a long break, I'm back with this week's ME News highlights and blog updates from the ME community. So make yourself comfortable and let's ... Continue
This Week’s M.E. News – Week 17, 2021
It’s May, which means it’s M.E. Awareness Month, so to get things going, I’m sharing this week’s ME News Highlights and Blog updates from the ... Continue
This Week’s M.E. News – Week 18, 2021
M.E. Awareness Month is well under way now, but among all the advocacy campaigns and fundraisers there is still research and other news to catch ... Continue
This Week’s M.E. News – Week 19, 2021
It's been a busy few days of advocacy as it's M.E. Awareness Week, so there are a lot of ME News and Blog Highlights to ... Continue
This Week’s M.E. News – Week 21, 2021
Are you ready for this week's ME News Headlines and Blog Updates from the ME Community? Get comfy, there are lots of exciting things to ... Continue
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