Category Archives for "Personal Updates"

Shaking And Trembling With ME/CFS

Feet in a bath tub, water moving. Title reads Shakes and Tremors with ME/CFS. Myalgic Encephalomyeitis causes visible body tremors.

One of the most frustrating and debilitating symptoms of ME/CFS is the shaking and trembling after minimal exertion. Something that healthy people might get after a strenuous exercise. I was lying in the bath relaxing last night when I felt the shakes coming on. This is what I get for walking just a few steps to the bathroom and getting undressed. I started feeling a bit of the internal tremors at that point, I imagined it might come to the shakes, and then as I lay in the tub to rest, before washing, they suddenly started up. (see the video clip below)

This is just the start, it then takes over my whole body and that's when holding my phone, or anything else for that matter, becomes very hard.

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Update: current ME/CFS flare is slowing me down

It’s hard to deal with these unexpected flares or relapses that seem to come out of the blue.

You end up asking yourself a million questions. What did I do wrong? Did I eat the wrong thing? What did I do yesterday or the day before to cause this much pain? Why am I so weak today, did I overdo it this week? Was the TV too loud? Did I miss the signs and push too hard? Did I get over excited about something?

It can be a bit worrying when you are sure you’ve done everything right, but your body fails you anyway. The key is to not get distressed, because that just makes things worse. Stress absolutely is your enemy. Continue reading

Why I Avoid Emergency Services And My Top Tips For Coping At Home

Healthcare professionals pulling a patient's bed along the corridor

I often see people with ME/CFS writing about how they have spent hours in the emergency room only to be completely disappointed, misunderstood or even disbelieved. They go to the emergency room because they are feeling so weak and exhausted that they don't know where else to go or what to do, they're scared because they feel so utterly ill. I understand the fear that leads you to that conclusion, it's scary to lose control of your body, but it's often an unnecessary risk to your own health. Let me explain why I think so...

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My Histamine Issues Have Caused An ME/CFS Flare

Char is pointing to her shirt which shows an empty battery with the words

​It's been a while since I wrote a personal update. I have recently been extremely drained and weak, so haven't been very social or active online. My primary focus this month was on my itching. I wanted to try get it under control as it was really getting me down, much more than ​the M.E. does. I ​have been in tears and so very frustrated. The scratching ​has been utterly exhausting and to top it off, I caused myself a massive ME/CFS flare too!

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How I’m Tackling The ME/CFS Flares

Char's legs covered in blankets. Title reads: How I'm tackling the MEcfs flares. Personal Update.

I had been doing so well for so long that I had almost forgotten how bad these flares can get. It can be discouraging when you are reminded so unexpectedly of the horrible passenger you carry with you always. This ME/CFS might be managed or worked around for a time, but it does come back to show itself from time to time, makes sure you remember it's still there and just how strong it is.

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