In a dark room a hand is held up to block the light that is shining in. Title reads, Photophobia in ME and CFS. 20 Patients share their experience.

Photophobia: 6 Ways To Cope With Light Sensitivity

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​Have you ever experienced that moment of intense pain in your eyes and head when you’ve opened the curtains on a bright and sunny day? Anybody who has experienced a migraine or even a hangover would likely understand what I’m talking about too. Although photophobia or light sensitivity ​might ​seem quite common among ​the general population, it can be quite debilitating when combined with a chronic illness like ME Most people struggle with glare and direct sunlight in their eyes,…

Read MorePhotophobia: 6 Ways To Cope With Light Sensitivity
A collage of awareness pictures, Title reads: Where to find impactful M.E. awareness pictures

Where To Find ME Awareness Pictures

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Have you been searching for graphics to easily share with friends and family what Myalgic Encephalomyelitis is really like? Would you like to share relevant and informative infographics about ME? Find pictures that will give visual impact and get the point across without wasting your energy and time explaining? I’m so excited to introduce ME Awareness Pictures to you today! ME Awareness Pictures is a community resource where we can collect and share ME awareness pictures from all over the…

Read MoreWhere To Find ME Awareness Pictures
Char pulling a funny face. Title reads: How to have M.E. successfully. A humorous look at life with Myalgic Encephalomyelitis.

How To Have ME Successfully

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I came across this fantastic list of guidelines for how to live successfully with Myalgic Encephalomyelitis and just had to share it. It’s so refreshing to ​read a light-hearted account of life with this ​horrible illness. I’ll be sharing this humorous look at life with M.E. below as well as explain the realities of each point in more detail to help with raising awareness. Also, I’ve created this image you can share on social media:  ​Pin This! Do not consider…

Read MoreHow To Have ME Successfully
Char lying on the bed, feeling ill. Title reads: Living with severe M.E. Who am I now? When it feels like you've lost your identity to chronic illness

Living With Severe ME/CFS, Who Am I Now?

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Who am I? When living with severe chronic illness it can be easy to feel like you’ve lost your identity. When experiencing a loss of identity, you start doubting yourself, you lose confidence, you lack purpose and vision. You start to feel useless. It is important to reflect and ​remember who you are​. Reignite your dreams and goals, your passion and purpose. ​ ​Being diagnosed with a severe chronic illness means those things can become a bit blurry. When you…

Read MoreLiving With Severe ME/CFS, Who Am I Now?
Photo of hundreds of empty pairs of shoes in a town square representing th millions of ME/cfs patients missing from society. Title reads, How you can help the Millions Missing, Myalgic Encephalomyelitis awareness and advocacy,by Chronically Hopeful

Advocacy And Fundraising Ideas And Resources

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We in the ME community are so grateful that you are interested in supporting our cause. Thank you! I hope that the information on this page will inspire you to action, giving you ideas and resources to help you help us. We need all the help from healthy allies that we can get! The quickest way to support our cause is to donate towards advocacy campaigns or research. For a list of global organisations which you can support, click here.…

Read MoreAdvocacy And Fundraising Ideas And Resources
Title reads Join The MEcfs Community, Social group for ME & CFS patients and carers. Photo of blue forget-me-notspin by Chronically Hopeful

A Community for ME/CFS Bloggers and Patients

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When I was first diagnosed with ​Chronic Fatigue Syndrome, I felt lost. It’s a condition I had never heard of before and my doctor didn’t seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created a community online for people with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) and their carers.…

Read MoreA Community for ME/CFS Bloggers and Patients
How I overcame insomnia BLOG

How I overcome insomnia

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When I first got ME/CFS, I was so utterly exhausted, I slept many hours a day and I slept at night too. Later I was introduced to one of ME’s most horrible symptoms: insomnia. I know the frustration and despair that comes from not getting sleep for nights on end, so in this post I will explain how I overcome insomnia whenever it creeps back into my life. It’s quite ironic that people think having ME/CFS means we sleep all…

Read MoreHow I overcome insomnia
A messy bed. Title reads: Imagine... a day in the life of M.E. Have you ever wondered what chronically ill people do all day?

Imagine… A Day in The Life of ME

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It might surprise you how often people with chronic illness are asked what they do with all the free time they have at home. I think many healthy people have no idea how difficult it is to deal with unrelenting symptoms on a daily basis. I hope to shed some light on this by sharing with you what a day in the life of Severe ME is like. This post was originally written as a first person account of my…

Read MoreImagine… A Day in The Life of ME
a field of forget-me-not flowers

ME/CFS Awareness Pictures To Share, Part 5

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Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our personal experiences and more. Making new connections and supporting each other. I often join in and share various ME awareness pictures during that hour. ​Below you will find the graphics I shared during the last ME Awareness Hour. I hope this will help you understand what life is like with ME If you have learned…

Read MoreME/CFS Awareness Pictures To Share, Part 5
ME Awareness Hour

ME/CFS Awareness, 10 Jan 2018

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Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated – multiple times, in the dark with sunglasses on, my phone’s screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time. This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night’s insomnia caught up with…

Read MoreME/CFS Awareness, 10 Jan 2018
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Feet in a bath tub, water moving. Title reads Shakes and Tremors with ME/CFS. Myalgic Encephalomyeitis causes visible body tremors.
Shaking And Trembling With ME/CFS
Char's bare leg full of itchy bumps. Title reads: How I'm managing histamine intolerance. Eliminating the itching, rashes and hives.
Histamine Intolerance: Reducing The Itching, Rashes And Hives
Woman with her hands in her hair, she looks frustrated. Title reads: Our house is infested with teeny, tiny white bugs. TIny mites that look like specks of dust moving around.
What Are These Teeny, Tiny White Bugs All Over My House And How To Get Rid Of These Little Mites?
A lady with bed head, looking exhausted. Tital reads, Are you a chargie or a spoonie? Both analogies for chronic exhaustion explained.
Are You an Unchargeable or a Spoonie?