July 6, 2018

The main focus of this post is to show you in a step-by-step way how you can edit MEpedia. I was very happy to recently discover the MEpedia website, I think it is a wonderful way to bring the community together and make our voices heard. If you have not heard of this wonderful resource yet, do go have a look! 

In a nutshell, ME-pedia.org is a knowledge base powered by the patient community. It was founded by MEAction and relies on crowd-sourcing to build an encyclopedia on the history, science and medicine of ME and CFS. Anybody can get involved and help populate the website with relevant content. Yes, even you!

That means patients, carers, charities, scientists and advocates all working together to create one huge bank of information about ME/CFS! A place where anybody can go to find answers, community and support. Brilliant!


ME-pedia Home page

The MEpedia Homepage

My First Impression of MEpedia

When I first visited the website I quickly recognised the layout and you might too. MEpedia runs on the Wiki platform - like Wikipedia which you are probably familiar with. When I tried to create a page though, I was quite confused and couldn't understand how it worked. I was not familiar with the editing side of the Wiki platform at all.

Let me just clarify, there are help pages on the website, but with my brain fog at the time, they were hard to find and it was like reading a foreign language, so much jargon was hard to handle. I've never really thought WIki was the most user-friendly platform, but that's just my opinion.

After much searching and frustration at my own inability to focus and comprehend, I eventually figured it out and in the end it was quite straight forward. So in this post I will show you how to create a simple user profile page. Just in case you, like myself, can't make heads or tails of the help pages due to the fog. This should help you navigate the page editor better. 

Bloggers: In my next post, I will show you how to add your blog to the MEpedia Blog Directory!

In case you feel like you can manage on the Wiki platform and want to just jump right in and get started, here are some useful links:

Getting Started On MEpedia

If you'd like to contribute to this database of information about ME or CFS, you will need to create your account. You should be able to find this link at the top right of any page unless you're already logged in.

The account creation is straight forward, you won't have trouble with that. You will be sent an email with a link you need to click on to verify your account. Until you do this, you will be required to type a security word for each edit you make. This could become tiresome, so try to get this step out of the way as soon as possible.

Creating Your User Page

Every time you edit a page, your username will appear in the edit history of the page you edited. You can create a user profile page so that if somebody comes across your name in the editing history and clicks on it, they will find some information about you.

Once logged in, you should see your username at the top right of the screen. If you click on that you will be taken to your user page. At this point it should be blank and you should see a red link inviting you to create the page. Click on the red link to get started.

If you click on the images below, you will see what the editor looks like and how my page turned out in the end.

ME-pedia Edit User Profile page

MEpedia Create or Edit Your User Profile

ME-pedia User Profile page

MEpedia User Profile Page

The Page Editor

There is apparently a visual editor available, which probably looks more like an email editor that you would be familiar with, but it doesn't always load - I have not yet been able to get it to load!

So I am going to show you the code I used to make my profile page. You can upload a photo or you can leave that first line of code and not have one, that's perfectly fine too.

How To Upload Your Profile Photo (optional)

Once you are logged in, you will see an Upload Files link on the left menu bar of any page you're on. Click this to open the upload window and select any blog logo or profile picture you would like to include in your personal profile or blog pages.

ME-pedia Upload your images

MEpedia - Upload Your Images

ME-pedia Find your images link up top

MEpedia - Find Your Image Link

Once you have uploaded your files, you will be able to find them at any time on the Contributions page. You can find the link near your Username at the top right of any screen when you are logged in.

On your contributions page you will find a list of all the files you have uploaded. You will need to copy the file address from this list if you want to incorporate it into any pages. It looks something like this:


You can also find the address by clicking on the file, it will open so you can confirm it's the right one and you can copy it from the URL (https://) at the top of that page.

The Code I Used To Make My Profile Page

You can copy and paste this into your editor and change the links and bio to your own:

[[File:Chronically_Hopeful_Char_Profile_Pic.jpg|200px|thumb|left|Char, Author at ChronicallyHopeful.com]]

'''ChronicallyHopeful''', also known as Char, resides in the UK, has been housebound with Severe ME since 2015 and blogs at [[Chronically Hopeful]].

== Online Presence ==

* Website: [http://chronicallyhopeful.com/ ChronicallyHopeful.com]
* Twitter: [https://twitter.com/chronic_hopeful @chronic_hopeful]
* Facebook: [https://www.facebook.com/chronicallyhopefulblog/ www.facebook.com/chronicallyhopefulblog]
* Instagram: [https://www.instagram.com/chronicallyhopefulblog/ www.instagram.com/chronicallyhopefulblog]

The first paragraph is for the photo. If you have uploaded a photo, you can add the link here and add a caption at the end. Look for and change:

Link to photo: File:Chronically_Hopeful_Char_Profile_Pic.jpg

Caption: Char, Author at ChronicallyHopeful.com

The next paragraph is where I wrote a short bio, you can write as much or as little as you want. You can list any relevant articles or books you've published or any interviews you've done too. 

Bold text appears if written between 3 inverted commas like this: '''ChronicallyHopeful'''

The little asterisk * creates a bullet point if you are making a list.

In the next paragraph I made a list of my blog and social media links. The heading is created by writing it between 2 equals signs like this: == Online Presence ==

Links to other pages on MEpedia appear if the title of the page is written between double square brackets like this: [[Chronically Hopeful]] This will only work if a page already exists with that title. You can create one for your blog like I did or you can link directly to your blog using links like the following:

Website: [http://chronicallyhopeful.com/ ChronicallyHopeful.com] Where your link comes first, followed by a space and then whatever text you want it to show.

Get Connected

You can follow MEpedia on Facebook and Twitter so you can keep track of all the latest updates in the ME community.

Fellow ME blogger Jo Moss from A Journey Through The Fog was the person who brought the blog directory to my attention a few weeks ago. She has written a great post you might want to check out too: MEpedia - Our Future

I hope you will find this new resource helpful even if you cannot contribute to it yourself. We now have a place to send people where they can find a huge collection of information on our condition - gathered from a variety of sources and people - all in one place!

How To Edit MEpedia, ChronicallyHopeful

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Thank you for stopping by. Hugs, Char xx

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Join The Conversation

    • Thanks, Jo! I hope so. It’s taken weeks to do this. The editor really did my head in initially. Thanks for pointing the directory out to me, I would have spent much energy trying to reinvent the wheel. The blog directory guide is almost done too. Hope you are doing okay. xx

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