Tag Archives for " Chronic Fatigue Syndrome "

This Week’s M.E. News – Week 17, 2021

This week's ME News Headlines and Blog Updates from the community

It’s May, which means it’s M.E. Awareness Month, so to get things going, I’m sharing this week’s ME News Highlights and Blog updates from the ME Community. Although most of the news this week is focused on the awareness campaigns that will be running this month, there are some other interesting articles to read too.

Are you comfy? Got a drink or snack ready? I know how hard it can with brain fog to read or stay focused on long blocks of text, so I’ll do my best each week to summarise the latest ME News and Blog Posts into short, easy to read paragraphs for you.

Please let me know in the comments below if there is any way I can improve these posts to make them more accessible to you.

Continue reading

How To Edit MEpedia – The ME/CFS Encyclopedia

MEpedia Crowdsourced encyclopedia of ME cfs, ChronicallyHopeful

The main focus of this post is to show you in a step-by-step way how you can edit MEpedia. I was very happy to recently discover the MEpedia website, I think it is a wonderful way to bring the community together and make our voices heard. If you have not heard of this wonderful resource yet, do go have a look! 

In a nutshell, ME-pedia.org is a knowledge base powered by the patient community. It was founded by MEAction and relies on crowd-sourcing to build an encyclopedia on the history, science and medicine of ME and CFS. Anybody can get involved and help populate the website with relevant content. Yes, even you!

That means patients, carers, charities, scientists and advocates all working together to create one huge bank of information about ME/CFS! A place where anybody can go to find answers, community and support. Brilliant!

Continue reading

Chronic Fatigue Syndrome – A Day In The Life Of Hailey Hudson

Hailey is outside, looking back over her shoulder, she is smiling. Title reads A day in my life with Chronic Fatigue Syndrome, Interview with Hailey Hudson, by Chronically Hopeful

Welcome to my first guest post in this new series where we will explore the impact of chronic illness and disability on our daily lives. Illness can have devastating effects not only on our own lives and bodies, but also on those closest to us.

Despite this, you might be surprised to find out just how resilient and courageous people with chronic conditions are. We weren't really given a choice in the matter, we have to quickly learn to adapt in spite of harsh conditions. I hope you will enjoy this series and perhaps even learn a few tricks on how you might improve your quality of life.

Today I have the privilege of sharing Hailey Hudson's story with you.

Hailey is a 19-year-old published author who freelances as a voiceover artist and is the site coordinator at a charity that tutors refugee children.

Continue reading

Advocacy And Fundraising Ideas And Resources

Photo of hundreds of empty pairs of shoes in a town square representing th millions of ME/cfs patients missing from society. Title reads, How you can help the Millions Missing, Myalgic Encephalomyelitis awareness and advocacy,by Chronically Hopeful
Photo of hundreds of empty pairs of shoes in a town square representing th millions of ME/cfs patients missing from society. Title reads, How you can help the Millions Missing, Myalgic Encephalomyelitis awareness and advocacy,by Chronically Hopeful

Advocacy / Fundraising Ideas & Resources

We in the ME community are so grateful that you are interested in supporting our cause. Thank you! I hope that the information on this page will inspire you to action, giving you ideas and resources to help you help us. We need all the help from healthy allies that we can get!

Continue reading

A Community for ME/CFS Bloggers and Patients

Title reads Join The MEcfs Community, Social group for ME & CFS patients and carers. Photo of blue forget-me-notspin by Chronically Hopeful

When I was first diagnosed with ​Chronic Fatigue Syndrome, I felt lost. It's a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created a community online for people with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) and their carers.

It consists of a few places on social media where ​people with ME or CFS and their carers can share ​relevent content to help support the ME/CFS community.

My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support and resources available to them. 

Continue reading
1 2 3 8
>