Tag Archives for " Chronic Fatigue Syndrome "

This Week’s M.E. News – Week 19, 2021

A black butterfly on pink azaleas

It's been a busy few days of advocacy as it's M.E. Awareness Week, so there are a lot of ME News and Blog Highlights to share this week. I am constantly amazed at the incredible creativity in this community. This week we feature quite a few poems as well as a beautiful stop motion film. Please share any of the articles linked today - they are all excellent ways to raise awareness and sharing will support and encourage the creators too.

Continue reading

This Week’s M.E. News – Week 18, 2021

a bouquet of pastel flowers, title reads: ME Community News. News headlines and event highlights for week 18, 2021

M.E. Awareness Month is well under way now, but among all the advocacy campaigns and fundraisers there is still research and other news to catch up on too. Below you'll find a summary of this week's M.E. News Headlines and this week I've also added links to all the current advocacy events I could find, so you can easily decide which ones you're able to join during the focused M.E. Awareness Week.

Continue reading

This Week’s M.E. News – Week 17, 2021

This week's ME News Headlines and Blog Updates from the community

It’s May, which means it’s M.E. Awareness Month, so to get things going, I’m sharing this week’s ME News Highlights and Blog updates from the ME Community. Although most of the news this week is focused on the awareness campaigns that will be running this month, there are some other interesting articles to read too.

Are you comfy? Got a drink or snack ready? I know how hard it can with brain fog to read or stay focused on long blocks of text, so I’ll do my best each week to summarise the latest ME News and Blog Posts into short, easy to read paragraphs for you.

Please let me know in the comments below if there is any way I can improve these posts to make them more accessible to you.

Continue reading

How To Edit MEpedia – The ME/CFS Encyclopedia

MEpedia Crowdsourced encyclopedia of ME cfs, ChronicallyHopeful

The main focus of this post is to show you in a step-by-step way how you can edit MEpedia. I was very happy to recently discover the MEpedia website, I think it is a wonderful way to bring the community together and make our voices heard. If you have not heard of this wonderful resource yet, do go have a look! 

In a nutshell, ME-pedia.org is a knowledge base powered by the patient community. It was founded by MEAction and relies on crowd-sourcing to build an encyclopedia on the history, science and medicine of ME and CFS. Anybody can get involved and help populate the website with relevant content. Yes, even you!

That means patients, carers, charities, scientists and advocates all working together to create one huge bank of information about ME/CFS! A place where anybody can go to find answers, community and support. Brilliant!

Continue reading

Chronic Fatigue Syndrome – A Day In The Life Of Hailey Hudson

Hailey is outside, looking back over her shoulder, she is smiling. Title reads A day in my life with Chronic Fatigue Syndrome, Interview with Hailey Hudson, by Chronically Hopeful

Welcome to my first guest post in this new series where we will explore the impact of chronic illness and disability on our daily lives. Illness can have devastating effects not only on our own lives and bodies, but also on those closest to us.

Despite this, you might be surprised to find out just how resilient and courageous people with chronic conditions are. We weren't really given a choice in the matter, we have to quickly learn to adapt in spite of harsh conditions. I hope you will enjoy this series and perhaps even learn a few tricks on how you might improve your quality of life.

Today I have the privilege of sharing Hailey Hudson's story with you.

Hailey is a 19-year-old published author who freelances as a voiceover artist and is the site coordinator at a charity that tutors refugee children.

Continue reading
1 2 3 9
>