Char in her pyjamas, sitting in the sunshine in the middle of her room. Title reads: muscle wastage and personal grooming, a personal update

Muscle Wastage And Personal Grooming In ME/CFS

A couple of days ago we had some gorgeous autumn sunshine after a few dark and dreary days. I’d just got up and was getting dressed when I realised how warm the sun was and decided to sit right there and collect some sunshine D! The rest was welcome though, dressing is hard with a weakened body. I only managed about ten minutes in that chair, but it was lovely and warm. I love the sunshine so much, the warmth…

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A bird soaring in the sunset sky. Title reads: Reflections on faith through chronic illness after 18 months of chronic fatigue and pain.

Reflections On Faith Through Chronic Fatigue And Pain

Today marks 18 months of this Chronic Fatigue Syndrome. At least 18 months in this severe housebound state, we imagine I might have had it milder for at least 6 months before this. As a Christian, I find myself reflecting on the role of my faith through chronic illness. I don’t believe God made me ill or that He is testing me. I don’t think God works like that. In my view, that would contradict His character of Love. Many…

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Char lying on the patio in the sunshine. She looks very happy.

Enjoying This Gorgeous London Sunshine

Spent the whole morning enjoying this gorgeous London sunshine out on the patio today. I had breakfast, drew a bit, then painted for a while, and just enjoyed the sunshine! I even hung a sheet over the washing lines to create a sort of tent for a bit of shade and lay out on a grass mat enjoying the warmth of the sun on my legs and the cool breeze. I don’t have any patio chairs or table out there,…

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Autumn leaves on a tree. Title reads: When simple errands become overwhelming. Personal Update.

Chronic Illness: Making Simple Errands Overwhelming

When unforeseen problems force me to go out despite severe ME/cfs, simple errands can become overwhelming very quickly. I had to go out today, needed to send off some paperwork, but my printer ran out of ink, again! I needed to print off a load of sheets, so I had to take a bus to get that done at one place, then off on another bus to find a post office to send it. By the time I got to…

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