Flatlay of bullet journal open on a table with pents and washi tape above. Title reads June 2018 Bullet Journal layout and mid-year flip through.

Bullet Journal – June Layout And Mid-Year Flip Through

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As we head into a new month I am excited to show you my new bullet journal layout for June! I’ll also share more detail about my symptom and mood tracker as well as a layout comparison with previous months. I cannot believe we are already half-way through 2018, time is just racing by so fast. I only started this year’s journal in March, so I don’t have 6 months of journal updates to show you, but I will share…

Read MoreBullet Journal – June Layout And Mid-Year Flip Through
Christmas lights and baubles in some branches. Title reads: How I survived Christmas despite Severe M.E. My tips for coping during the festive season

How I Survived Christmas Despite Chronic Illness – How To Cope During The Festive Season

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One thing that can really cause a lot of stress for people with Chronic illness is coping with Christmas and all that it entails. For me personally, Christmas has changed so much over the years. It’s ​changed from huge family get-togethers when I still lived with my parents, to multinational bring-and-share gatherings of friends once I moved to London, and then small meals with just my sister and I in my bedroom after I fell ill, ​and every combination in…

Read MoreHow I Survived Christmas Despite Chronic Illness – How To Cope During The Festive Season
Feet in a bath tub, water moving. Title reads Shakes and Tremors with ME/CFS. Myalgic Encephalomyeitis causes visible body tremors.

Shaking And Trembling With ME/CFS

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One of the most frustrating and debilitating symptoms of ME/CFS is the shaking and trembling after minimal exertion. Something that healthy people might get after a strenuous exercise. I was lying in the bath relaxing last night when I felt the shakes coming on. This is what I get for walking just a few steps to the bathroom and getting undressed. I started feeling a bit of the internal tremors at that point, I imagined it might come to the…

Read MoreShaking And Trembling With ME/CFS

Update: current ME/CFS flare is slowing me down

It’s hard to deal with these unexpected flares or relapses that seem to come out of the blue. You end up asking yourself a million questions. What did I do wrong? Did I eat the wrong thing? What did I do yesterday or the day before to cause this much pain? Why am I so weak today, did I overdo it this week? Was the TV too loud? Did I miss the signs and push too hard? Did I get…

Read MoreUpdate: current ME/CFS flare is slowing me down
Healthcare professionals pulling a patient's bed along the corridor

Why I Avoid Emergency Services And My Top Tips For Coping At Home

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I often see people with ME/CFS writing about how they have spent hours in the emergency room only to be completely disappointed, misunderstood or even disbelieved. They go to the emergency room because they are feeling so weak and exhausted that they don’t know where else to go or what to do, they’re scared because they feel so utterly ill. I understand the fear that leads you to that conclusion, it’s scary to lose control of your body, but it’s…

Read MoreWhy I Avoid Emergency Services And My Top Tips For Coping At Home
A woman carrying a bucket of cleaning products. Title reads: Don't do your best, do less. How to avoid the boom and bust cycle.

Don’t Do Your Best, Do Less: How To Avoid The Boom And Bust Cycle

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Anybody who has ME or CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) will be very familiar with the boom and bust cycle. ME’s main characteristic is Post-Exertional Neuroimmune Exhaustion (PENE) also commonly referred to as Post Exertional Malaise (PEM). Feeling really ill, weak and exhausted after any physical, emotional or mental exertion.  This means brushing my teeth, getting excited about a visitor coming, answering the phone or writing this post is exhausting and will cause an increase in a variety of symptoms.…

Read MoreDon’t Do Your Best, Do Less: How To Avoid The Boom And Bust Cycle
Char standing outside under a tree, shes wearing a greet top and matching dangling earrings and smiling.

Grateful For Those Productive Days

Today has been quite productive! We just had our shower doors replaced this week, which meant waiting at least 24 hours for the silicone to dry before we could use the shower. It smells really bad, but Praise God we found a cheap little fan on Amazon and it’s been such a help with the ventilation in the room. We don’t get a draught or breeze through the flat, there is only one window which is really our patio door.…

Read MoreGrateful For Those Productive Days
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