Raising Awareness Archives - Page 2 of 4

Awareness Pictures, Life With M.E.

An empty bed in a dark room, title reads: Poem, Severe M.E. is... What it's like living with severe Myalgic Encephalomyelitis

A Poem About Life With Severe Myalgic Encephalomyelitis

August 5, 2019
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August 8 is Severe M.E. Awareness Day. A day to give a voice to the millions of people around the world who are living in isolation and torment due to the harsh effects of Myalgic Encephalomyelitis. 25% of people with M.E. are housebound or bedridden. The most severe living in darkness and silence for years… decades even. Neglected, misunderstood, vulnerable and severely disabled, yet they carry on fighting, waiting, hoping. Moment by moment. One day their breakthrough will come. One…

Awareness Pictures

#MillionsMissing Personalised poster for ME awareness. How to get your own millions missing poster

Get Your Own Personalised Millions Missing Poster For ME Awareness Month

April 10, 2019
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May is #MEAwarenessMonth and I thought, since many of us cannot go to the live #MillionsMissing events in person, I’d like to help my fellow people with ME (pwME) to raise awareness online by offering you personalised Millions Missing posters! Personalised Millions Missing Posters! Here are a few examples of what they look like. Scroll down to find out how to get your own You are welcome to share these images online or print them out to display at events.…

Health & Wellness

A wheelchair parked outside in a field, a woman standing up in front of it. TItle reads: When somebody in a wheelchair gets up and walks. Why do people use wheelchairs if they can walk?

Have You Ever Seen Somebody In A Wheelchair Get Up And Walk?

October 15, 2018
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Have you ever been out in town and seen somebody who looks perfectly healthy get out of a car they had just parked in the spot for disabled people or seen somebody on a mobility scooter park outside and walk into the shop? If you are anything like I was before I fell ill, you might think these people are faking and milking the system for benefits and attention, but you’d be wrong, just like I was! This week is…

Life With M.E., Tips On How To Get By

Photo of hundreds of empty pairs of shoes in a town square representing th millions of ME/cfs patients missing from society. Title reads, How you can help the Millions Missing, Myalgic Encephalomyelitis awareness and advocacy,by Chronically Hopeful

Advocacy And Fundraising Ideas And Resources

April 27, 2018
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What Is M.E? How To Get By Advocacy Tools M.E. Directory We in the ME community are so grateful that you are interested in supporting our cause. Thank you! I hope that the information on this page will inspire you to action, giving you ideas and resources to help you help us. We need all the help from healthy allies that we can get! The quickest way to support our cause is to donate towards advocacy campaigns or research. For…

Life With M.E., Tips On How To Get By

Title reads Join The MEcfs Community, Social group for ME & CFS patients and carers. Photo of blue forget-me-notspin by Chronically Hopeful

A Community for ME/CFS Bloggers and Patients

March 14, 2018
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When I was first diagnosed with Chronic Fatigue Syndrome, I felt lost. It’s a condition I had never heard of before and my doctor didn’t seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created a community online for people with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) and their carers.…

Awareness Pictures, Life With M.E.

ME/CFS Awareness Pictures To Share, Part 5

January 26, 2018
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Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our personal experiences and more. Making new connections and supporting each other. I often join in and share various ME awareness pictures during that hour. Below you will find the graphics I shared during the last ME Awareness Hour. I hope this will help you understand what life is like with ME If you have learned…

Awareness Pictures, Life With M.E.

ME/CFS Awareness, 10 Jan 2018

January 10, 2018
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Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated – multiple times, in the dark with sunglasses on, my phone’s screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time. This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night’s insomnia caught up with…

Favourite Things

colourful flouting balloons with title, Gift Guide, what to buy for your Chronically Ill Friends

Gift guide: what to buy for your chronically ill friends, part 2

December 3, 2017
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I know many people find such joy in shopping for gifts. They start shopping months in advance and they buy the most thoughtful, personalised gifts anybody would love, that’s not me. I’m so unorganised! If you’re anything like me, you’ve waited till the last minute to do your gift shopping. Whether it’s for a birthday, Christmas or a house warming gift, I just cannot get it done unless it’s right around the corner and then I might just give up…

Favourite Things

A bowl of colourful confetti spilled on a wooden table. Title says, Gift guide, what to buy for your chronically ill friends.

Gift Guide: What To Buy For Your Chronically Ill Friends, Part 1

December 2, 2017
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It can be quite tricky deciding what to buy your friends with chronic illness because of all the limitations and intolerances we often have. What would be useful and not harmful in their condition? There are many lists out there, and they’re all slightly different depending on the condition they’re tailored for, so I’m making a list of the things I would have loved to receive over the years of being housebound. I have chronic fatigue and chronic pain as…