Who am I?
My name is Char and I’m a chronic hopeful. I am a Bible-believing Christian. I’m also a dreamer and love all things creative and health or nutrition related!
Despite my chronic illness, which has utterly changed my life and isolated me completely from the life I used to live, I remain positive and filled with hope and joy – in constant anticipation of what lies ahead!
Why am I blogging?
I used to blog many years ago and loved it. I had a few blogs on different topics. Things like recipes, faith, photography and a personal journal. I’ve always enjoyed writing and now that I am confined to my room, and often confined to my bed, I felt it was the right time to start blogging again.
I want this blog to be a place where people can be educated on the daily struggles and victories of people with chronic illness. Celebrating the small victories each day and cheering each other on through the not so nice times. I hope you will find encouragement and hope despite your diagnosis.
I’d also like this to be a place where people can come to find answers and helpful advice. Where I share links to relevant websites and articles and help raise awareness for our cause.
I am an “unchargeable” spoonie! In 2015 I was diagnosed with Chronic Fatigue Syndrome. It is a complex neurological disease which affects all body systems. It has had many names over the decades, but is now most commonly referred to as ME/CFS. (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome).
Although my diagnosis came in 2015, I have had it since at least 2014, and as time goes on and I learn more about it, I realise that I might have had for years prior to that too.
My most persistent symptoms are widespread pain in muscles and joints, excessive fatigue and weakness upon exertion (mental, emotional or physical exertion), unrefreshing sleep, shaking and tremors, tingling pins and needles and numbness of the limbs as well as heart palpitations and breathlessness. These are only the constant companions, there are many more unpredictable symptoms that come and go and they all vary in intensity daily.
I hope to share some insight and help raise awareness for this very common, but heavily misunderstood illness. My hope is that somebody will find it beneficial.
I’ve been posting regularly online for quite some time, mainly on Instagram, but recently also on a brand new Facebook community page and Twitter. Connect with me here:
Instagram: @chronicallyhopefulblog | https://www.instagram.com/chronicallyhopefulblog/
Facebook community page: https://www.facebook.com/chronicallyhopefulblog
Twitter: @chronic_hopeful | https://twitter.com/chronic_hopeful
I am a member of the Amazon EU Associates Programme, an affiliate advertising programme designed to provide a way for sites to earn a little money by advertising and linking to Amazon.co.uk. The price of the items are the same to you, but if you use my links to Amazon, I will get a small reward which will help me to maintain this website. If I ever I manage to earn too much for my needs through the affiliate program, I will donate it to ME/CFS research.
Fundraising for ME research
I am raising funds for ME/CFS research with a challenge I have set for myself since experiencing improvements through the ketogenic diet I’m on: I’m aiming to walk 1000 steps a day to raise £1000 for Invest In ME Research.
IiMEr is a UK based charity that is investing in biomedical research into ME as well as educating the public and medical professionals and supporting patients and their families. It is an extremely worthy cause.
If you’d like to sponsor my efforts to regain strength and muscle tone after spending 2 years in bed with this illness, please visit justgiving.com/chronicallyhopeful where you can make a donation safely and securely. You can remain anonymous if you choose to. All donations go directly to the charity.
Thank you for supporting this chronically hopeful spoonie!