Blue emojis with quizzical look on their faces. Title reads: Frequently asked questions about M.E. Elaborating on terminology and topics I commonly refer to.

Frequently Asked Questions About Myalgic Encephalomyelitis

​As this community grows I get more and more questions about certain words or acronyms I use in my writing and graphics, so I thought I would create a page to answer some of the most frequently asked questions about M.E. I hope this will be helpful to you, please share any of the images from this page. It would help us raise awareness and eliminate stigma if more people understood this condition. ​Frequently Asked Questions About M.E. This page…

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An empty bed in a dark room, title reads: Poem, Severe M.E. is... What it's like living with severe Myalgic Encephalomyelitis

A Poem About Life With Severe Myalgic Encephalomyelitis

​August 8 is Severe M.E. Awareness Day. A day to give a voice to the millions of people around the world who are living in isolation and torment due to the harsh effects of Myalgic Encephalomyelitis. 25% of people with M.E. are housebound or bedridden. The most severe living in darkness and silence for years… decades even. Neglected, misunderstood, vulnerable and severely disabled, yet they carry on fighting, waiting, hoping. Moment by moment. One day their breakthrough will come. One…

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#MillionsMissing Personalised poster for ME awareness. How to get your own millions missing poster

Get Your Own Personalised Millions Missing Poster For ME Awareness Month

May is #MEAwarenessMonth and I thought, since many of us cannot go to the live #MillionsMissing events in person, I’d like to help my fellow people with ME (pwME) to raise awareness online by offering you personalised Millions Missing posters!  Personalised Millions Missing Posters! Here are a few examples of what they look like. Scroll down to find out how to get your own You are welcome to share these images online or print them out to display at events.…

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A collage of awareness pictures, Title reads: Where to find impactful M.E. awareness pictures

Where To Find ME Awareness Pictures

Have you been searching for graphics to easily share with friends and family what Myalgic Encephalomyelitis is really like? Would you like to share relevant and informative infographics about ME? Find pictures that will give visual impact and get the point across without wasting your energy and time explaining? I’m so excited to introduce ME Awareness Pictures to you today! ME Awareness Pictures is a community resource where we can collect and share ME awareness pictures from all over the…

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a field of forget-me-not flowers

ME/CFS Awareness Pictures To Share, Part 5

Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our personal experiences and more. Making new connections and supporting each other. I often join in and share various ME awareness pictures during that hour. ​Below you will find the graphics I shared during the last ME Awareness Hour. I hope this will help you understand what life is like with ME If you have learned…

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ME Awareness Hour

ME/CFS Awareness, 10 Jan 2018

Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated – multiple times, in the dark with sunglasses on, my phone’s screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time. This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night’s insomnia caught up with…

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ME Awareness Hour

ME/CFS Awareness, 15 Nov 2017

As you might know by now, I spend every Wednesday evening on Twitter, along with many other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. We tweet about what life is like with this life draining illness. We tweet and retweet for an hour, hoping to to make our hashtags trend on the front page of Twitter so we can get the most attention possible. I hope you will join us, even…

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ME Awareness Hour

ME/CFS Awareness, 8 Nov 2017

I have a date tonight – with Twitter! Every Wednesday evening I spend an hour on Twitter, along with a bunch of other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. You can join in the fun too, we’d love to have more advocates taking part! We post memes, links to research or media coverage, personal experience, all sorts of things that will help shed some light on what life is like…

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a close up shot of forget-me-not flowers

ME/CFS Awareness Pictures To Share, Part 1

Ever wondered where to find M​E awareness pictures to share? Myalgic Encephalomyelitis is a very misunderstood illness, ​so ​my aim is to empower ​people with ME or CFS to raise awareness, share their own ​experience and to educate the public about the condition. In this series I will be sharing M​E awareness ​pictures that I have created and shared on social media ​and I’ll elaborate on each topic here on the blog. ​All these posts and graphics have been created…

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A bed with lots of pillows in front of a blue wall. Title reads: The Effects of M.E. awareness campaign featuring quotes from people with M.E.

M.E. Awareness Campaign: The Effects Of Myalgic Encephalomyelitis

In 2017 I created the “Effects of ME” campaign for ME Awareness month in May. Quotes were collected from patients about how ME affects their daily life and I then used those quotes anonymously to create impactful graphics which the community could share during the online awareness campaigns. The campaign continues to run to this day, with new quotes trickling in all the time. The graphics have been very well received in the M.E. community and continue to be shared…

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