Get Your Own Personalised Millions Missing Poster For ME Awareness Month

May is #MEAwarenessMonth and I thought, since many of us cannot go to the live #MillionsMissing events in person, I’d like to help my fellow people with ME (pwME) to raise awareness online by offering you personalised Millions Missing posters

Personalised Millions Missing Posters!

Here are a few examples of what they look like. Scroll down to find out how to get your own

Char has been missing from teaching, natue walks, cinema, cycling, church, shopping and daily baths since 2015. MillionsMissing.org, Char lying on the bed, feeling ill.Joel's been missing from full time education, cubs, football, swimming, afamily days out since 2017. Picture of Joel luing down, looking exhausted and sad.Stefan has been missing diving, going outside, entrepreneurship, seeing friends and family, sun and rain, planning his life since 2012. Picture of Stefan deep sea diving before he fell ill.Anita has been missing her vocation of teaching, being a daughter, sister and aunt, seeing any family or friends, tolerating any treatments, and autonomy since 1979.

Click on the above examples to zoom in.

You are welcome to share these images online or print them out to display at events.

How It Works

  1. Fill in a short form and email me your photo, it will probably take about 5 minutes.
  2. Once I’ve made your poster, I will send it to you via email. 

PLEASE NOTE: This is not an official ME Action Network campaign although the graphics do follow their branding guidelines, using their colours, fonts and logo to maintain their standards and identity. This is a voluntary service to the ME community, done manually by me. If you fill in the request form, I will make and send your graphic to you as soon as I’m able. Thank you for your patience and understanding. – Char (Chronically Hopeful)

Using These Graphics For Advocacy Online

Please note that by filling in the request form, you agree that your poster will be shared publicly, by me and others, on social media and possibly on printed posters as part of the live Millions Missing awareness campaigns. You may share any of the posters in the collection to raise awareness.

If you intend on using these graphics anywhere other than on social media, please visit this page to read the full terms of use.

Your Privacy

Your email address will not be shared publicly, it is only needed to contact you about your poster, if necessary, and to send the completed poster to you.

I understand that some people are in vulnerable positions and cannot be identified publicly. You may still contribute anonymously.

If you do not wish to show your face, you may send a representative image instead. You could send a photo of your view from your bed in the “ME Perspective” style or send a photo of an empty pair of shoes you no longer wear in the “Millions Missing” style.

If you do not wish to use your real name, you may use a nickname or initials.

How To Print Your Poster For Events

Many have asked about printing these posters out to display at awareness events. So I have tested it, the poster came out nice and big, covering most of the page. Here’s how I did it:

Once you’re downloaded it to your computer, double click the image to open it, then select the following menu options

  1. File
  2. Print
  3. Select A4 (or whatever your page size is)
  4. Select Fit To Page (so it fills the page without spilling over)
  5. Print

Another option would be to insert the picture into a Word document, adjust size, margins, etc and print it.

Contribute To Other Awareness Campaigns

I have a few other awareness campaigns you may be interested in contributing towards. These campaigns include quotes from patients with ME. The graphics in these campaigns are not sent to you once created, but you can access the entire collection online. See details below.

The “Effects Of ME” Campaign

MyalgicE, when you delevope intolerance to the medication that should relieve your symptomsMyalgicE, when your doctor doesn't believe you because he can't find anything wrong in your bloodMyalgicE, When walking 7 steps to the toilet feels like leg day at the gym

In 2017 I created the “Effects of ME” campaign for ME Awareness month in May. Quotes are collected from patients about how ME affects their daily life. They are asked to complete the sentence “You know you have ME when…” in their own words. The responses show, in a practical way, ME’s debilitating effects on even the most ordinary parts of our daily lives. All quotes in this series are anonymous.

These images are free to share online and can be found here.TERMS OF USE – if you intend on using these graphics anywhere other than on social media: click here.

The “Severe ME Is…” Campaign

Severe ME is every moment is a tightrope walk between holdinf on and letting go. Severe ME DaySevere ME is being unable to see, touch, hold or interact with my 2 year old son. Severe ME DaySevere ME is missing solitude, privacy, unstructured time and autonomy. Severe ME Awareness Day

In 2018 I created the “Severe ME is…” campaign for Severe ME Day in August. For this series, severely ill patients are asked to complete the sentence “Severe ME is…” in their own words. The response I got was powerful and heartbreaking. A very vivid look at the suffering this illness causes. For this series patients may choose to share their identity or remain anonymous. You must be housebound or bedridden to participate in this series.

These images are free to share online and can be found here.TERMS OF USE – if you intend on using these graphics anywhere other than on social media: click here.

Thank You!

I’d like to thank everybody who has contributed to these awareness campaigns and shared their stories. Your openness and honesty about the devastating effects of this illness is helping to educate the public as well as showing other patients that they are not alone.

Share Your Whole Story

If you’d like to share your whole story in more detail, I’d love to feature you as a Warrior of The Month here on Chronically Hopeful and accross all my social media channels. 

Visit this page to see how you can be featured. Once again, you may remain anonymous if you prefer not to be identified when sharing your story.

Get your own Millions Missing Poster with your photo and your words, share your M.E story, pin by Chronically Hopeful

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More About Life With M.E.

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Let’s Stay In Touch

My Chronic Life Pages: Facebook | Instagram | Twitter M.E. Awareness Pics: Facebook | Instagram | Twitter | The ME/CFS Community I’m also on: Pinterest | Bloglovin’ | Mix | Flipboard Support My Work: Buy My Art | Shop My Favourite ThingsOr if you’d like to send me something, here’s my Amazon Wishlist – Thank you!

email chronically hopeful char at gmail dot com

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Chronically Hopeful
Chronically Hopeful

Char was born and raised in South Africa, but has been settled in Europe for over 20 years. She's passionate about finding ways to live well, despite chronic illness.

Apart from blogging, she enjoys art, cooking, reading, gardening, gaming and learning new things. She speaks English, Italian and Afrikaans fluently and is slowly learning French too.

She used to be a teacher, but has been housebound with Myalgic Encephalomyelitis since 2015. Since then, she's focused on spending the little energy and strength she has each day on the people and activities she loves. Finding joy in the little things and celebrating the ordinary.

6 Comments

Let's Chat! Leave A Comment Below:

  1. First, THANKS so much for doing this! It is incredibly kind and generous.

    Sadly, I can’t get the button for the short form for the poster information to connect. Could you please look into this?

    • Ah, thank you, Savannah. I’m just happy to help and be a part of the campaign even if I can’t get out of bed. Requests are coming in at a rate of about 10-20 a day! Glad it’s been so well received.

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