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What Is M.E? How To Get By Advocacy Tools M.E. Directory
Blogs by Patients & Carers | Advocacy, Research & Support Groups
The M.E. Directory
This M.E. Directory is an ever-growing list of links to M.E. blogs and organizations. The links will open in a new window.
Please contact me if you know of a link that should be added.
You may use this image to link back to the directory from your own website.
Disclaimer: I do not necessarily endorse any methods or advice mentioned on the linked pages, please do your own research and speak to your health care provider before making changes to your treatment plan.
Blogs by ME / CFS Patients And Carers
* This directory will be updated periodically. Please contact me if you’re a blogger with ME or CFS and would like to be added to this list.
Char of Chronically Hopeful
Emma of Not Just Tired
Jo of A Journey Through The Fog
Mishka of Crafts, Chronic Illness, and Adulting
Jennie of Occupy ME
Elizabeth of Rag and Bone Shop of the Heart
Anita of Anita’s Actions
Corina of Little Wings
Heather of Heather Dreske
Jane of ME The New Plague
Susie of Find Your Own Hope
Jamison of Jamison Writes
Lois of Where Truth Lives
Cort of Health Rising
Catherine of Understanding Severe ME
Laura of Laura’s Pen
Jenny of Tips For ME
Emma of Consciously Healthy
Clare of Smiling Clare
Hannah of Super Pooped
Robin of Sleepy Girl CFS
dSavannah of dSavannah Rambles
Susan of Cinder Bridge
Penny of Hope Found In ME
Sue of Live With MEcfs
Alisha of Alisha Whittam
Steph of Rainy Days And Bright Clouds
Greg of Stonebird
Julie of MEcfs Self-Help Guru
Amy of A Chronic Glow
Ali of Everyday Kind Of Life
Veronique of Chronic Illness Trauma Studies
Dormant Blogs
These blogs have not been updated in over a year, but still contain great content which highlights what it’s like living with M.E.
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M.E. Advocacy, Research & Support Groups
* This directory will be updated periodically. Please contact me if you know of a website that should be added to this list.
Based In The United States
#MEActionA global movement fighting for recognition, education and research.Facebook | Instagram | Twitter | YouTube
Open Medicine FoundationSupporting medical research to find effective treatments and diagnostic markers for ME and related chronic diseases.Facebook | Instagram | Twitter | YouTube
Solve ME/CFS InitiativeA non-profit organization aiming to accelerate the discovery of safe and effective treatments.Facebook | Instagram | Twitter | YouTube
Bateman Horne CenterAims to empower patients, advance research, and improve care for those with ME/CFS and Fibromyalgia.Facebook | Instagram | Twitter | YouTube
Pandora OrgPatient focused organisation providing advocacy, education and support.Facebook | Twitter | YouTube
International Association for Chronic Fatigue Syndrome / Myalgic EncephalomyelitisDedicated to research, education, treatment and finding a cure for CFS/ME.
Based In The United Kingdom
The ME AssociationAwareness campaigns, research funding and patient support.Facebook | Instagram | Twitter
Action For MEProviding information, support and advice to children and adults with M.E. Home of the Young People’s Community.Facebook | Instagram | Twitter | YouTube
Cure ME & BiobankLeading participatory epidemiological, clinical and laboratory research into ME/CFS, home of the UK’s first Biobank for ME.Facebook | Twitter
The ME TrustProviding multi-disciplinary care and support directly to patients, their families and carers.Facebook | Twitter
M.E. SupportProviding information, advice and support.Facebook
25% M.E. GroupAdvocacy, advice and support for people with Severe M.E.
Tymes TrustThe young ME sufferer’s trust. Pursuing the educational rights and advancing the care of children with ME.Facebook | Twitter
Irish ME/CFS AssociationOffering support to sufferers and carers, raising funds for research, providing information to raise awareness among the general public as well as within the medical profession and health care services. Twitter
Irish M.E. TrustProviding information and counselling to those affected by M.E. as well as raising awareness among the general public and health care professionals. Facebook
ME Advocates IrelandA non-profit, volunteer group advocating for recognition of ME in Ireland by promoting greater understanding of ME in the general public, medical profession and other related services.Facebook | Instagram | Twitter
Based In Europe
Associazione Onlus Malati Di CFS (Italia)Sensibilizzazione sulla gravità di questa malattia, in modo che i procedimenti di diagnosi, riconoscimento e terapie vengano resi più efficaci ed immediati.Facebook
Associazione CFS Onlus (Italia)Fornire informazioni e documentazione, diffondere conoscenze, sviluppare contatti con analoghe associazioni e tutelare i malati presso le istituzioni.Facebook | Instagram
Other Areas Worldwide
Emerge AustraliaProviding education and advocacy and supporting people with M.E.Facebook | Twitter | YouTube
ME CFS Foundation South AfricaAddressing the needs of sufferers and advocating for their rights as well as educating the public, health care professionals and government.Facebook | Instagram | Twitter | YouTube
FM-CFS Canada – Compassion In ActionAims to advance education, awareness and treatment of Fibromyalgia and Chronic Fatigue Syndrome.
Featured ME & CFS Warriors
These are guest posts submitted by people with ME or CFS.
You Can Be Featured Here Too – Share Your Story!
Do you have something you’d like to share with the world? If so, get in touch!
I believe that sharing our personal stories helps raise awareness and eliminates stigma by promoting better understanding of what life with this illness is really like. It also helps other people with ME know that they are not alone. You do not need to be a blogger to be featured here and you may choose to remain anonymous. >> Find out more.
