The M.E. Directory

Woman sitting on bed with laptop. TItle reads: ME Directory. ChronicallyHopeful.com/links

​This M.E. Directory is an ever-growing list of links to M.E. blogs and organizations. The links will open in a new window.

Please contact me if you know of a link that should be added.

You may use this image to link back to the directory from your own website.

​Disclaimer:
I do not necessarily endorse any methods or advice mentioned on the linked pages, please do your own research and speak to your health care provider before making changes to your treatment plan. 


Blogs by ME / CFS Patients And ​Carers

* This ​directory will be ​updated periodically. Please contac​​t me if you're a blogger with ME or CFS and would like to be added to this list.

Char from ChronicallyHopeful.com
Emma from Not Just Tired
Jo from A Journey Through The Fog
Mishka from Crafts, Chronic Illness & Adulting
Jennie from Occupy M.E.
Elizabeth from Rag And Bone Shop Of The Heart
Corina from Little Wings
Anita from Anita's Actions
Lee Ann from Cottage Lovely Home
Penny from Hope Found In ME
Susie from Find Your Own Hope
Jamison from Jamison Writes
Amy from Living With ME
Cort from Health Rising
Laura from Laura's Pen
Sally from Just ME
Jenny from Tips For M.E.
A Life To Love
Emma from Consciously Healthy
Hannah from Super Pooped
Robin from Sleepy Girl
dSavannah Rambles
Susan from Cinder Bridge
Jane Colby from StripeySocks Blog
Claire from The Hopeful Chronic
Lois from Where Truth Lives
Julie from ME/CFS Self-Help Guru
Clare from Smiling Clare
Ali from Living An Everyday Kind Of Life
Sue from Living With ME/CFS
Bella from Bella's Survival
Tournesol and Tigerduck from Micro And Friends
Steph from Rainy Days And Bright Clouds
Veronique from Chronic Illness Trauma Studies
Alisha Whittam
Ellie from As Well As I Can Be
Stonebird by Greg Crowhurst
Understanding Severe M.E.
Kirsten from Graphic Organic

Dormant Blogs

These blogs have not been updated in over a year, but still contain great content which highlights what it's like living with M.E.


M.E. Advocacy, Research & Support Groups

* This directory will be updated periodically. Please contact me if you know of a website that should be added to this list. 

Based In The United States

#MEAction
A global movement fighting for recognition, education and research.
Facebook | Instagram | Twitter | YouTube

Open Medicine Foundation
Supporting medical research to find effective treatments and diagnostic markers for ME and related chronic diseases.
Facebook | Instagram | Twitter | YouTube

Solve ME/CFS Initiative
A non-profit organization aiming to accelerate the discovery of safe and effective treatments.
Facebook | Instagram | Twitter | YouTube

Bateman Horne Center
Aims to empower patients, advance research, and improve care for those with ME/CFS and Fibromyalgia.
Facebook | Instagram | Twitter | YouTube

Pandora Org
​Patient ​focused organisation providing advocacy, education and support.
Facebook​ | Tw​​itter | YouTube

International Association for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis
​Dedicated to research, education, treatment and finding a cure for CFS/ME.

Based In The United Kingdom

The ME Association
Awareness campaigns, research funding and patient support.
Facebook | Instagram | Twitter 

Action For ME
Providing information, support and advice to children and adults with M.E. Home of the Young People's Community.
Facebook | Instagram | Twitter | YouTube

Cure ME & Biobank
​Leading participatory epidemiological, clinical and laboratory research into ME/CFS, home of the UK's first Biobank for ME.
Facebook | Twitter

The ME Trust
Providing multi-disciplinary care and support ​directly to patients, their families and carers.
Facebook | Twitter

M.E. Support
​Providing information, advice and support.
Facebook 

25% M.E. Group
Advocacy, advice and support for people with Severe M.E.

Tymes Trust
​The young ME sufferer's trust. Pursuing the educational rights and advancing the care of children with ME.
Facebook | Twitter

Irish ME/CFS Association
​Offering support to sufferers and carers, raising funds for research, providing information to ​raise awareness among the general public as well as within the medical profession and health care services. 
Twitter

Irish M.E. Trust
Providing ​information and counselling ​to those affected ​by M.E. ​as well as raising awareness among the general public and health care professionals. 
Facebook

Based In ​Europe

Associazione Onlus Malati Di CFS (Italia)
​Sensibilizzazione ​sull​a gravità di questa malattia, in modo che i procedimenti di diagnosi, riconoscimento​ e terapie vengano ​resi più efficaci ed immediati.
Facebook 

Associazione CFS Onlus (Italia)
​Fornire informazioni e documentazione, diffondere conoscenze, sviluppare contatti con analoghe associazioni e tutelare i malati presso le istituzioni.
Facebook | Instagram​ 

Other Areas Worldwide

Emerge Australia
​Providing education and advocacy and supporting people with M.E.
Facebook | Twitter | YouTube 

ME CFS Foundation South Africa
Addressing the needs of sufferers and advocating for their rights as well as educating the public, health care professionals and government.
Facebook | Instagram | Twitter | YouTube

FM-CFS Canada - Compassion In Action
​Aims to advance education, awareness and treatment of Fibromyalgia and Chronic Fatigue Syndrome.

​​Featured ME & CFS Warriors

These are ​​guest posts submitted by people with ​ME or CFS.

ME Warrior living with ME since the age of 18. Brittany Lachapelle shares her story. Photo of Brittany lying in hospital wearing a hospital gown.
Hailey is outside, looking back over her shoulder, she is smiling. Title reads A day in my life with Chronic Fatigue Syndrome, Interview with Hailey Hudson, by Chronically Hopeful
ME warrior overcoming stigma and disbelief. Emma shares her story. Emma wearing a red Millions Missing shirt, with oxygen tube in her nose.

You Can Be Featured Here Too - Share Your Story!

Do you have something you'd like to share with the world? ​If so, get in touch!

​​​I believe that sharing our personal stories helps raise awareness and eliminates stigma by promoting better understanding of what life with this illness is really like. It also helps other people with ME know that they are not alone. You do not need to be a blogger to​ be featured here and you ​may choose to remain anonymous. ​>> Find out more.

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