A Community of ME/CFS Bloggers

ME Bloggers BLOG

When I was first diagnosed with ME/CFS, I felt lost. Chronic Fatigue Syndrome was a condition I had never heard of before and my doctor didn't seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by!

For this reason I have created some groups on social media where bloggers, vloggers and other content creators with ME/cfs (and their carers) can share their posts to help support the ME/cfs community better.

My hope is that newly diagnosed patients, or anybody struggling to manage life with ME, would not struggle as much as some of us have to find the support available to them. 

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Bullet Journal Layout, March 2018

March 2018 Bujo layout BLOG

My journaling has evolved much over the past few years since I discovered the Bullet Journal system. I love that this method is so flexible and streamline. The fact that my BuJo can be whatever I want it to be and if I change my mind or my style from one week to the next, it's perfectly fine and it still works!

At the start of this year I ordered a beautiful new journal, my goal was to start this year in style, but chronic illness is quite unpredictable and I ended up not really getting started on anything until now. I hope you will enjoy this little tour through this month's layout in my new Bujo - I love it and cannot wait to use it daily! 

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Quotes and Bible Verses to Share, from Feb 2018

Feb 2018 Freebies Quotes and Bible verses BLOG

In February I changed things up on my Instagram and created what I call a rainbow of positivity. My Bible verses and quotes now have plain backgrounds and span a lovely range of colours. I love how bright and cheerful they look and the encouraging messages they carry.

Here are all the Quotes and Bible Verse graphics I made and shared on social media in February. You are welcome to download any of these images.

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Update: Adapting, Practicing, Realising, Celebrating, Inviting

Feb 2018 Chronic Voice Link-up BLOG

This month has been quite productive! I can't believe it's almost gone already. I'm once again taking part in this thought-provoking monthly link-up with Sheryl from A Chronic Voice. I love the prompts she comes up with each month - they really force me to consider things I might not otherwise think about and perhaps, in a way, that helps to keep me focused and accountable too. This month's prompts are:

  1. Adapting - to intentional rest and fasting
  2. Practicing - watercolour blending
  3. Realising - it's hard to stick to a schedule
  4. Celebrating - a year since my parents moved to the UK
  5. Inviting - other chronic illness warriors to share their story
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Paleo-Ketogenic Breakfast and Snack Ideas

Paleo-keto Breakfast and Snacks BLOG

Some of the most common questions I get asked when people are considering the ketogenic diet is "What can I have for breakfast?" and "Which snacks can I eat?".

I have compiled a list of breakfast and snack ideas which I have enjoyed since I made my transition to Keto at the start of 2017. I hope these will inspire you.

You might notice, though, that after a while on this diet you will no longer be hungry in the morning and will be able to start fasting overnight like I do. Keto has certainly cured my munchies, I no longer need to eat every couple of hours like I used to and fast daily for 14 to 16 hours.

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Getting To Know The Me Behind The Illness

Getting to know me tag, BLOG

I've been nominated to take part in the blogging tag game "Me Behind The Illness". I think it is a great way to remind ourselves and others that we are not only our illness, but there is so much more to each of us. 

I've thoroughly enjoyed reading everyone's answers to these questions and can't wait to compile mine! Since it is about me behind the illness/without the illness, I will focus on answering the questions as though I didn't have any condition that governs my activity levels, physical and cognitive function or diet. 

This is a look at healthy Char - who I am without severe ME/CFS.

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How I overcome insomnia

How I overcame insomnia BLOG

When I first got ME/CFS, I was so utterly exhausted, I slept many hours a day and I slept at night too.

Later I was introduced to one of ME's most horrible symptoms: insomnia. It's quite ironic that people think we sleep all day when really we're just utterly exhausted, mentally and physically drained, but unable to sleep, especially at night.

I found myself nodding off in the day, trying hard to stay awake, and then at night when it's finally okay to go to sleep, my body and mind are wide awake and in no mood for rest, buzzing and restless, despite still feeling utterly wrecked.

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A Day in The Life of ME

A day in the life of ME BLOG

It might surprise you how often people with chronic illness are asked what they do with all the free time they have at home. I think many healthy people have no idea how difficult it is to deal with unrelenting symptoms on a daily basis. I hope to shed some light on this by sharing with you what a day in the life of severe ME is like.

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