My 2019 WEGO Health Award Nomination – Best In Show: Facebook

Lots of hands giving thumbs up with gold confetti falling down. Title Reads WEGO Health Awards, ChronicallyHopeful

​I'm so honoured and grateful to be nominated once again for the ​WEGO Health Award​s. Last year I was nominated for ​the Best In Show: Blog category, this year it's for the Best In Show: ​Facebook category for all my ME/CFS advocacy​.

​Being an advocate is hard work, especially when you have a severe chronic illness like Myalgic Encephalomyelitis. Patients are putting their own health on the line during advocacy campaigns, pushing their limits, trying to be consistent, to be heard, to be seen. They often pay for months afterwards in the form of deterioration and much pain.

Of course we do not raise awareness for personal recognition, but for the good of the community as a whole. Being recognised is still a great joy and reward. It lets patient leaders and advocates know that their efforts were seen and appreciated, especially if they have been isolated by their worsened condition in the aftermath of a busy awareness campaign. Things like this can lighten the load and lift our spirits.

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Creating A Retreat Away From My Own Bedroom

A beautiful red Lily. Title reads: Creating a retreat away from my own bedroom, personal update.

Look at ​that beautiful Lily! Everyday there seems to be something new in the garden. It's constantly changing. I try to take a walk through the house daily, so I can look out the windows and see the different parts of our garden, it doesn't always happen, but it's a goal. ​And I've been careful to stay out of direct sunlight, shading my eyes better this week, after my sun-induced crash ​recently.

Looking Back On The Past Week

I've spent much of this week in the dark after some ​unforseen circumstances at the end of last ​week caused a flare. Ma brought ​some beautiful flowers in ​​while I was not doing so well. Having ​fresh flowers ​from our own garden ​in my room is such a treat, especially when ​I can't get out of the house regularly. I did however finally get out into the garden later in the week. So much colour, such a joy!

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ME Warrior Of The Week: Brittany, Living With M.E. Since She Was 18 Years Old

ME Warrior living with ME since the age of 18. Brittany Lachapelle shares her story. Photo of Brittany lying in hospital wearing a hospital gown.
This entry is part 4 of 5 in the series ME/CFS Awareness

I'm Brittany. I have suffered with ME since September 2013. It started 2 weeks before my 19th birthday. I was a University student studying psychology and linguistics, working a part time job at a restaurant and had a booming social life.

One morning I woke up and felt that something was very wrong, I blamed it on exhaustion and not taking care of myself... I thought it would go away in a day or two, 6 years later it’s still here.

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ME Warrior Of The Week: Emma, Overcoming Stigma And Disbelief

ME warrior overcoming stigma and disbelief. Emma shares her story. Emma wearing a red Millions Missing shirt, with oxygen tube in her nose.
This entry is part 2 of 5 in the series ME/CFS Awareness

In this new series I will be sharing ​stories from our beautifully resilient ME community. These chronic illness warriors are not only battling crippling symptoms everyday as they adjust to life with Myalgic Encephalomyelitis, but are also finding ways to continue dreaming, creating beauty and supporting each other, ​despite their ​debilitating illness. I hope their stories will help you better understand ​this life-altering condition, raise awareness and eliminate the stigma that still surrounds ME.

Emma's ME Story

​I started becoming ill with multiple infections in 2014 and no one knew what was causing it. An ENT told me I’d have to just live with the symptoms. Then in 2015 I had a head injury and it all spiralled downwards from there. 

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My Chronic Illness Story And How You Can Help

Title reads My chronic illness Story, How it all started and how you can help, by Chronically Hopeful, Picture of Char lying in bed under blankets, shes in an ME flare wearing sunglasses and headphones

​May is ME Awareness Month and once again I am participating in the ​virtual campaigns online to help raise awareness of this life-destroying illness called Myalgic Encephalomyelitis. Today I'm sharing my story. How did I become so terribly ill and housebound? When did it happen? And how long did I have to wait for a diagnosis? Here's my ME story:

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