A bed and bedside table with a lamp on it. Title reads: You might be an M.E. sufferer if... part 1, guest post by David A Graham.

You Might Be An M.E. Sufferer If… (Part 1) Guest Post By David A Graham

​I can’t read this without a ​smile on my face and shaking my head in agreement. In this three-part series our guest author, David Graham, shares ​his humorous ​take ​on life with Myalgic Encephalomyelitis. I ​think it also ties in wonderfully with our Effects Of M.E. awareness campaign. I hope it makes you ​giggle as much as I am! ​I’ve…

Read MoreYou Might Be An M.E. Sufferer If… (Part 1) Guest Post By David A Graham
An empty bed in a dark room, title reads: Poem, Severe M.E. is... What it's like living with severe Myalgic Encephalomyelitis

A Poem About Life With Severe Myalgic Encephalomyelitis

​August 8 is Severe M.E. Awareness Day. A day to give a voice to the millions of people around the world who are living in isolation and torment due to the harsh effects of Myalgic Encephalomyelitis. 25% of people with M.E. are housebound or bedridden. The most severe living in darkness and silence for years… decades even. Neglected, misunderstood, vulnerable…

Read MoreA Poem About Life With Severe Myalgic Encephalomyelitis
Lots of hands giving thumbs up with gold confetti falling down. Title Reads WEGO Health Awards, ChronicallyHopeful

My 2019 WEGO Health Award Nomination – Best In Show: Facebook

​I’m so honoured and grateful to be nominated once again for the ​WEGO Health Award​s. Last year I was nominated for ​the Best In Show: Blog category, this year it’s for the Best In Show: ​Facebook category for all my ME/CFS advocacy​. ​Being an advocate is hard work, especially when you have a severe chronic illness like Myalgic Encephalomyelitis. Patients are…

Read MoreMy 2019 WEGO Health Award Nomination – Best In Show: Facebook
ME Warrior living with ME since the age of 18. Brittany Lachapelle shares her story. Photo of Brittany lying in hospital wearing a hospital gown.

ME Warrior Of The Week: Brittany, Living With M.E. Since She Was 18 Years Old

I’m Brittany. I have suffered with ME since September 2013. It started 2 weeks before my 19th birthday. I was a University student studying psychology and linguistics, working a part time job at a restaurant and had a booming social life. One morning I woke up and felt that something was very wrong, I blamed it on exhaustion and not…

Read MoreME Warrior Of The Week: Brittany, Living With M.E. Since She Was 18 Years Old
ME warrior overcoming stigma and disbelief. Emma shares her story. Emma wearing a red Millions Missing shirt, with oxygen tube in her nose.

ME Warrior Of The Week: Emma, Overcoming Stigma And Disbelief

In this new series I will be sharing ​stories from our beautifully resilient ME community. These chronic illness warriors are not only battling crippling symptoms everyday as they adjust to life with Myalgic Encephalomyelitis, but are also finding ways to continue dreaming, creating beauty and supporting each other, ​despite their ​debilitating illness. I hope their stories will help you better…

Read MoreME Warrior Of The Week: Emma, Overcoming Stigma And Disbelief
Title reads My chronic illness Story, How it all started and how you can help, by Chronically Hopeful, Picture of Char lying in bed under blankets, shes in an ME flare wearing sunglasses and headphones

My Chronic Illness Story: How I Became Housebound With Severe M.E.

​May is ME Awareness Month and once again I am participating in the ​virtual campaigns online to help raise awareness of this life-destroying illness called Myalgic Encephalomyelitis. Today I’m sharing my story. How did I become so terribly ill and housebound? When did it happen? And how long did I have to wait for a diagnosis? Here’s my ME story:…

Read MoreMy Chronic Illness Story: How I Became Housebound With Severe M.E.
Title reads, Out Of Sight, Out Of Mind, How can the church better serve the chronically ill? Picture of Shona Smith, she has short grey hair, wears glasses and is smiling. Guest post by Shona Smith. pin by Chronically Hopeful

Out Of Sight, Out Of Mind: How Can The Church Better Serve The Chronically Ill?

​Today I am sharing a guest post by Shona Smith. I must admit, I have mixed feelings about ​this topic, but it is an important issue and needs to be addressed. I​t is not just a few isolated cases, pastoral care in the church is something that is in desperate need of an overhaul. ​This shouldn’t be an issue, but…

Read MoreOut Of Sight, Out Of Mind: How Can The Church Better Serve The Chronically Ill?
#MillionsMissing Personalised poster for ME awareness. How to get your own millions missing poster

Get Your Own Personalised Millions Missing Poster For ME Awareness Month

May is #MEAwarenessMonth and I thought, since many of us cannot go to the live #MillionsMissing events in person, I’d like to help my fellow people with ME (pwME) to raise awareness online by offering you personalised Millions Missing posters!  Personalised Millions Missing Posters! Here are a few examples of what they look like. Scroll down to find out how…

Read MoreGet Your Own Personalised Millions Missing Poster For ME Awareness Month
Title reads, Celebrating Life despite chronic pain and Osteoporosis, Interview with Lynley. Below is a photo of a lady wearinga blu dress, sitting in a power chair at the beach with the sea in the background,pin by Chronically Hopeful

Celebrating Life Despite Chronic Pain And Osteoporosis – A Day In The Life Of Lynley

​​Today I am excited to share Lynley’s story. She has been living with chronic pain and osteoporosis for years and is sharing how her life has changed and how she not only gets through, but celebrates life despite her conditions. ​This interview is part of an ongoing series where ​warriors from around the world ​​share their struggles and victories as…

Read MoreCelebrating Life Despite Chronic Pain And Osteoporosis – A Day In The Life Of Lynley
Title reads Health and fitness the week I fell ill with severe ME. Photo of Char and friends walking in a park wearing pink fluffy bunny ears and carrying green balloons. By Chronically Hopeful

Health And Fitness: A Week Before I Fell Ill With Severe Chronic Illness

​Ironically my life was super busy and active during the weeks and months ​before the onset of what lead to my Chronic Fatigue Syndrome diagnosis. There seems to be the general belief that we are tired or lazy or that we have some sort of unhealthy aversion or fear of exercise, but nothing could be further from the truth! As…

Read MoreHealth And Fitness: A Week Before I Fell Ill With Severe Chronic Illness
Brenna is wearing a black top, she has long curly brown hair and is looking to the side. on the right the title reads A day in my life with POTS, MCAD, Gastro Paresis and More. Interview with Brenna by Chronically Hopeful

Living With POTS, Gastroparesis, MCAD And More – A Day In The Life Of Brenna

​Today I am ​excited to share ​Brenna’s chronic illness story with you. She is a creative warrior who has been battling​ a multitude of chronic conditions including POTS, Gastroparesis, MCAD and many more for over a decade. This interview is part of an ongoing series where we meet spoonie warriors from around the world ​who share their struggles and victories…

Read MoreLiving With POTS, Gastroparesis, MCAD And More – A Day In The Life Of Brenna
A lady sitting out in the garden having tea and cake in the sunshine. Title reads Eat To Heal Loss Of Appetite and Depression, Interview with Jo, by Chronically Hopeful

Eat To Heal Loss Of Appetite And Depression, Interview With Jo

​​In this interview series ​we ​explore ​how diet and chronic illness affect each other and today I have the honour of sharing Jo’s story. Jo’s ​appetite was severely affected by her mental health, but with the help of loved ones, she ​found a way to overcome it and get back to a place where she could once again enjoy a…

Read MoreEat To Heal Loss Of Appetite And Depression, Interview With Jo