​Note: ​​This resource bank is ​currently ​​being ​updated.​ Thank you for your patience.

What is ME?

​ME stands for Myalgic Encephalomyelitis. It is ​classified as a neurological disease by the World Health Organisation (WHO G93.3) and it affects all body systems. Science hasn't quite got to the bottom of it yet as research is slow ​due to being heavily under-funded globally. ​Although there is much evidence of abnormalities in various body systems, ​they have not figured out why it happens or how to treat or cure it - yet.

What are the symptoms of M.E?

A list of symptoms of Myalgic Encephalomyelitis

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​The illness affects the entire body. Symptoms include: generalised chronic pain, energy production and metabolism problems, impaired muscle function and recovery, cognitive dysfunction and memory loss, sensory processing issues, chemical intolerance as well as sensitivities to light, sound, smells, touch and movement, digestive issues, sleep disturbances including ​sleep reversal, insomnia and unrefreshing sleep, tremors, weakness, exhaustion upon any exertion, and a host of other fluctuating and unpredictable symptoms.

How does M.E affect patients?

​Although some patients might still manage to hold on to a ​job, millions of patients around the world are housebound or bedridden due to this debilitating illness. Those who do manage to continue working spend all their time off resting in order to be well enough to maintain their job.

Even in this milder state, ME has a devastating impact on a patient's social life and affects every aspect of their life, the way they plan things and manage their responsibilities and relationships are all affected.

The main characteristic of ​ME is ​a severe worsening of all symptoms upon any physical, mental or emotional exertion​, something called Post Exertional Neuroimmune Exhaustion, the onset of which can be delayed by 24-48 hours and can last anything from hours to weeks or even months. 

In the most severe cases patients are completely bedridden, in unthinkable pain, unable to speak, tolerate light or sound or be moved or touched. Highly sensitive to chemicals, various foods and medications. Some ​are paralysed and ​tube fed.

To read quotes submitted by patients with M.E, visit our ​galleries:

Science and Research

Despite the ​lack of government funding worldwide over the decades, there ​is some very exciting research happening and it's giving patients much hope for the future. Unfortunately it's a very slow process due to the fact that these scientists rely on donations and private funding. This is why raising awareness and fundraising is so important. 

​​External Resources

Links to highly respected websites which focus on ME awareness and research.

​What Is Myalgic Encephalomyelitis?

​Info to ​share with your doctor:

​Note: ​​This resource bank is ​currently ​​being ​updated.​ Thank you for your patience.

​Some Of My Articles On Life With M.E.

A day in the life of ME BLOG
A long list of symptoms, title reads: my symptoms of ME/cfs in 2015. Dozens of fluctuating symptoms.
A picture of tall purple flowers in a garden. Title reads: ME community news. News headlines and blog highlights from week 33 of 2019
ME CFS Flares, How to cope BLOG
Man in a wheelchair with his hand on the wheel. Title reads: Not all disabilities are visible. International day of people with disabilities.
Why I don't go to emergency room for ME CFS flares BLOG
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