First outing in 5 months BLOG

My First Outing in 5 Months

I am so happy to have visited the beautiful Lake District this holiday! As anybody with a chronic illness can tell you, holidays are a stressful time that we often dread. With many more people around, an increase in noise, activity and an abundant selection of unhealthy food choices, it is inevitable that we will experience an increase in unpleasant symptoms and will at some point need to isolate ourselves in order to rest and recover. I am fortunate to…

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Healthcare professionals pulling a patient's bed along the corridor

Why I Avoid Emergency Services And My Top Tips For Coping At Home

I often see people with ME/CFS writing about how they have spent hours in the emergency room only to be completely disappointed, misunderstood or even disbelieved. They go to the emergency room because they are feeling so weak and exhausted that they don’t know where else to go or what to do, they’re scared because they feel so utterly ill. I understand the fear that leads you to that conclusion, it’s scary to lose control of your body, but it’s…

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Char sitting in a wheelchair in a botanical nursery. Title reads: shopping with the family, Personal Update.

My Wheelchair And I: Shopping With The Family

​I actually left the house this week! Leaving the house is not something that happens very often when you have a chronic illness as debilitating as M​yalgic Encephalomyelitis. Months can go by without seeing the other side of my front door. I have reached a point where I’m able to walk around the house daily without causing too much payback, but going out is still so utterly draining that it usually takes me days to recover. My First Outing In…

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