A black butterfly on pink azaleas

This Week’s M.E. News – Week 19, 2021

It’s been a busy few days of advocacy as it’s M.E. Awareness Week, so there are a lot of ME News and Blog Highlights to share this week. I am constantly amazed at the incredible creativity in this community. This week we feature quite a few poems as well as a beautiful stop motion film. Please share any of the articles linked today – they are all excellent ways to raise awareness and sharing will support and encourage the creators…

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a bouquet of pastel flowers, title reads: ME Community News. News headlines and event highlights for week 18, 2021

This Week’s M.E. News – Week 18, 2021

M.E. Awareness Month is well under way now, but among all the advocacy campaigns and fundraisers there is still research and other news to catch up on too. Below you’ll find a summary of this week’s M.E. News Headlines and this week I’ve also added links to all the current advocacy events I could find, so you can easily decide which ones you’re able to join during the focused M.E. Awareness Week. Note: I do my best to make these…

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This week's ME News Headlines and Blog Updates from the community

This Week’s M.E. News – Week 17, 2021

It’s May, which means it’s M.E. Awareness Month, so to get things going, I’m sharing this week’s ME News Highlights and Blog updates from the ME Community. Although most of the news this week is focused on the awareness campaigns that will be running this month, there are some other interesting articles to read too. Are you comfy? Got a drink or snack ready? I know how hard it can with brain fog to read or stay focused on long…

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MEpedia Crowdsourced encyclopedia of ME cfs, ChronicallyHopeful

How To Edit MEpedia – The ME/CFS Encyclopedia

The main focus of this post is to show you in a step-by-step way how you can edit MEpedia. I was very happy to recently discover the MEpedia website, I think it is a wonderful way to bring the community together and make our voices heard. If you have not heard of this wonderful resource yet, do go have a look! In a nutshell, ME-pedia.org is a knowledge base powered by the patient community. It was founded by MEAction and relies on crowd-sourcing…

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Hailey is outside, looking back over her shoulder, she is smiling. Title reads A day in my life with Chronic Fatigue Syndrome, Interview with Hailey Hudson, by Chronically Hopeful

Chronic Fatigue Syndrome – A Day In The Life Of Hailey Hudson

Welcome to my first guest post in this new series where we will explore the impact of chronic illness and disability on our daily lives. Illness can have devastating effects not only on our own lives and bodies, but also on those closest to us. Despite this, you might be surprised to find out just how resilient and courageous people with chronic conditions are. We weren’t really given a choice in the matter, we have to quickly learn to adapt…

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Photo of hundreds of empty pairs of shoes in a town square representing th millions of ME/cfs patients missing from society. Title reads, How you can help the Millions Missing, Myalgic Encephalomyelitis awareness and advocacy,by Chronically Hopeful

Advocacy And Fundraising Ideas And Resources

What Is M.E? How To Get By Advocacy Tools M.E. Directory We in the ME community are so grateful that you are interested in supporting our cause. Thank you! I hope that the information on this page will inspire you to action, giving you ideas and resources to help you help us. We need all the help from healthy allies that we can get! The quickest way to support our cause is to donate towards advocacy campaigns or research. For…

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Title reads Join The MEcfs Community, Social group for ME & CFS patients and carers. Photo of blue forget-me-notspin by Chronically Hopeful

A Community for ME/CFS Bloggers and Patients

When I was first diagnosed with ​Chronic Fatigue Syndrome, I felt lost. It’s a condition I had never heard of before and my doctor didn’t seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created a community online for people with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) and their carers.…

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a field of forget-me-not flowers

ME/CFS Awareness Pictures To Share, Part 5

Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our personal experiences and more. Making new connections and supporting each other. I often join in and share various ME awareness pictures during that hour. ​Below you will find the graphics I shared during the last ME Awareness Hour. I hope this will help you understand what life is like with ME If you have learned…

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ME Awareness Hour

ME/CFS Awareness, 10 Jan 2018

Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated – multiple times, in the dark with sunglasses on, my phone’s screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time. This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night’s insomnia caught up with…

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First outing in 5 months BLOG

My First Outing in 5 Months

I am so happy to have visited the beautiful Lake District this holiday! As anybody with a chronic illness can tell you, holidays are a stressful time that we often dread. With many more people around, an increase in noise, activity and an abundant selection of unhealthy food choices, it is inevitable that we will experience an increase in unpleasant symptoms and will at some point need to isolate ourselves in order to rest and recover. I am fortunate to…

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