It’s been a busy few days of advocacy as it’s M.E. Awareness Week, so there are a lot of ME News and Blog Highlights to share this week. I am constantly amazed at the incredible creativity in this community. This week we feature quite a few poems as well as a beautiful stop motion film. Please share any of the articles linked today – they are all excellent ways to raise awareness and sharing will support and encourage the creators…
M.E. Awareness Month is well under way now, but among all the advocacy campaigns and fundraisers there is still research and other news to catch up on too. Below you’ll find a summary of this week’s M.E. News Headlines and this week I’ve also added links to all the current advocacy events I could find, so you can easily decide which ones you’re able to join during the focused M.E. Awareness Week. Note: I do my best to make these…
It’s May, which means it’s M.E. Awareness Month, so to get things going, I’m sharing this week’s ME News Highlights and Blog updates from the ME Community. Although most of the news this week is focused on the awareness campaigns that will be running this month, there are some other interesting articles to read too. Are you comfy? Got a drink or snack ready? I know how hard it can with brain fog to read or stay focused on long…
We in the ME community are so grateful that you are interested in supporting our cause. Thank you! I hope that the information on this page will inspire you to action, giving you ideas and resources to help you help us. We need all the help from healthy allies that we can get! The quickest way to support our cause is to donate towards advocacy campaigns or research. For a list of global organisations which you can support, click here.…
When I was first diagnosed with Chronic Fatigue Syndrome, I felt lost. It’s a condition I had never heard of before and my doctor didn’t seem to know much about it either. What got me through was the support of other patients I found online. And they continue to be my support as the years go by! For this reason I have created a community online for people with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) and their carers.…
Every Wednesday the ME community comes together on Twitter to raise awareness of this debilitating chronic illness. We share recent media coverage, research news, our personal experiences and more. Making new connections and supporting each other. I often join in and share various ME awareness pictures during that hour. Below you will find the graphics I shared during the last ME Awareness Hour. I hope this will help you understand what life is like with ME If you have learned…
Sandwiched between 2 hot water bottles, under layers of clothes and blankets, medicated – multiple times, in the dark with sunglasses on, my phone’s screen dimmed and the blue light filter on so that I can bear looking at it for a few minutes at a time. This was me yesterday after I had a nap on the sofa where I toppled over after lunch, in a bundle of pain and tears as the previous night’s insomnia caught up with…
I am so happy to have visited the beautiful Lake District this holiday! As anybody with a chronic illness can tell you, holidays are a stressful time that we often dread. With many more people around, an increase in noise, activity and an abundant selection of unhealthy food choices, it is inevitable that we will experience an increase in unpleasant symptoms and will at some point need to isolate ourselves in order to rest and recover. I am fortunate to…
I love Facebook memories. Each day you wake up to find a lovely look back at how much things have changed over the past year. Some people find this depressing or sad, but I love looking back. I don’t find it sad, I find it interesting and I enjoy being reminded of all I’ve made it through and how far I’ve come. Even if I am still very ill and inactive, much has changed through the years, but it’s only…
I’m so excited to share this third part of my spoonie gift guide, I hope you are enjoying this series as much as I am! These gifts would be great for birthday presents or a house warming gift or even Christmas too. This series will continue to grow as I think of other cool gift ideas, watch this space! If you’ve missed any of my other gift guides, you can find them all here. Happy browsing! Disability Aids To Help…
