Housebound Life Archives - Page 2 of 3

Health & Wellness

Chronically ill being stalked and denied benefits

December 20, 2017

On this day last year something very wrong and so unfair came to my attention: People with disabilities, who are deemed unfit for work by doctors and occupational health assessors, are being denied benefits because of their Internet activity. They’re being stalked, not only online, but in real life too! In this post I will elaborate on some of my thoughts I’d shared online at the time. My heart goes out to anybody who has suffered unnecessarily due to such…

Memory Lane, Personal Updates

A career woman sits in a corridor with her head in her hands

Outcome: Unfit For Work

December 16, 2017
2

I love Facebook memories. Each day you wake up to find a lovely look back at how much things have changed over the past year. Some people find this depressing or sad, but I love looking back. I don’t find it sad, I find it interesting and I enjoy being reminded of all I’ve made it through and how far I’ve come. Even if I am still very ill and inactive, much has changed through the years, but it’s only…

Awareness Pictures, Life With M.E.

ME/CFS Awareness, 15 Nov 2017

November 16, 2017

As you might know by now, I spend every Wednesday evening on Twitter, along with many other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. We tweet about what life is like with this life draining illness. We tweet and retweet for an hour, hoping to to make our hashtags trend on the front page of Twitter so we can get the most attention possible. I hope you will join us, even…

Encouragement

Life is like a twisting roller-coaster ride

November 10, 2017
4

It’s easy to get caught up in all the negatives that happen in life. Things don’t go your way, you fall ill, you lose people or your job, you feel sick, there are just so many things that can bring us down, but this is just part of life. The minute we stop expecting life to be a fairytale and accept reality, that’s the moment we open ourselves up to the truth and the freedom that comes with it. It’s…

Awareness Pictures, Life With M.E.

ME/CFS Awareness, 8 Nov 2017

November 8, 2017
1

I have a date tonight – with Twitter! Every Wednesday evening I spend an hour on Twitter, along with a bunch of other ME/CFS warriors, taking part in ME Awareness Hour. It runs from 8-9pm (London time) every Wednesday evening. You can join in the fun too, we’d love to have more advocates taking part! We post memes, links to research or media coverage, personal experience, all sorts of things that will help shed some light on what life is like…

How To Get By, Life With M.E.

ME/CFS flares: what do they feel like and how to cope

November 3, 2017
3

People with ME all suffer at varying degrees, we cannot compare our flares to somebody else’s. What one considers an ME/CFS flare another considers just another regular day with ME. What one person with ME considers a normal day, might be somebody else’s idea of torture. Once thing they all have in common is that everybody’s battle is devastating. We learn to acknowledge and respect everybody’s pain and everybody’s victories, because despite not fully understanding each other’s experiences, we can…

Awareness Pictures, Life With M.E.

a close up shot of forget-me-not flowers

ME/CFS Awareness Pictures To Share, Part 1

November 2, 2017
2

Ever wondered where to find ME awareness pictures to share? Myalgic Encephalomyelitis is a very misunderstood illness, so my aim is to empower people with ME or CFS to raise awareness, share their own experience and to educate the public about the condition. In this series I will be sharing ME awareness pictures that I have created and shared on social media and I’ll elaborate on each topic here on the blog. All these posts and graphics have been created…

Encouragement, How To Get By

Man holding his head in his hands. Title Reads, Where to get help when you feel like giving up. Helplines & Prayer Partners available 24/7 Worldwide.

Do You Feel Like Giving Up? Where To Get Help When You Can’t Cope

October 26, 2017
4

In the chronic illness community, I have found some of the strongest people you will ever come across. They are warriors who fight many battles daily, often against their own bodies or minds, just to get through each day. As much as there is hope and strength, there is also a lot of neglect and isolation. It is natural in these lonely and scary times to feel like giving up. I often come across people who are losing all hope,…

How To Get By, Life With M.E., Personal Updates

Healthcare professionals pulling a patient's bed along the corridor

Why I Avoid Emergency Services And My Top Tips For Coping At Home

October 20, 2017
6

I often see people with ME/CFS writing about how they have spent hours in the emergency room only to be completely disappointed, misunderstood or even disbelieved. They go to the emergency room because they are feeling so weak and exhausted that they don’t know where else to go or what to do, they’re scared because they feel so utterly ill. I understand the fear that leads you to that conclusion, it’s scary to lose control of your body, but it’s…

How To Get By

Close up of herbs on a windowsill. Title reads: Enjoying nature while stuck indoors. Bring the beauty of nature to your room

Enjoying Nature When You’re Housebound With Chronic Illness

September 6, 2017
6

Living with a chronic illness like ME/CFS often means that you are housebound and unable to enjoy the outdoor activities you once loved. You might be like me, love nature and going exploring, but your condition has left you stranded in your home. But even if you can’t go out, you can still enjoy nature while housebound! Although there is no magic cure to get you out and about, there are a few things I have done to help me…