An empty bed in a dark room, title reads: Poem, Severe M.E. is... What it's like living with severe Myalgic Encephalomyelitis

A Poem About Life With Severe Myalgic Encephalomyelitis

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​August 8 is Severe M.E. Awareness Day. A day to give a voice to the millions of people around the world who are living in isolation and torment due to the harsh effects of Myalgic Encephalomyelitis. 25% of people with M.E. are housebound or bedridden. The most severe living in darkness and silence for years… decades even. Neglected, misunderstood, vulnerable and severely disabled, yet they carry on fighting, waiting, hoping. Moment by moment. One day their breakthrough will come. One…

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A pile of boxes stacked up next to a radiator. Title reads Moving to a new house, plus 12 tips to make moving easier

Moving To A New House – Plus 12 Ways To Make Moving Easier If You’re Chronically Ill

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This summer was a season of great change for our family. After little more than a year in our flat, my dad had found us a lovely big house with a garden and we were packing again. Moving house can be quite stressful for the healthiest of people, so it can really be a nightmare for somebody with a severe chronic illness like ME. We actually loved our flat, it was enough for my sister and I, it ticked most…

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Yellow roses in polaroid, Title on the right reads: My first 6 months housebound with MEcfs.

My First 6 Months Of ME/CFS: The Best And Worst Months Of My Life

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Today marks the end of six months since I got the viral infection that changed my life. That gloriously sunny day in Italy on the first of April 2015. It all happened so quickly and unexpectedly, I was out cycling in the countryside one minute and in bed the next. My body reached a point of weakness and exhaustion that I’d never known before and nothing has been the same since.  Today marks six months of being housebound with constantly…

Read MoreMy First 6 Months Of ME/CFS: The Best And Worst Months Of My Life
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